hi all ,
iv been on here a while so some of ye should no me
anyway il give ye a brief history just incase ye dont
im 31 was dx last june invasivive ductal grade 3 nodes positive her+3 and oestregen+
had partial mastectomy plus axila clearence had cmf chemo x6 30 rads and now awaiting to start taxol and herceptin also on zoladex injections every month.
anyhow last week r so back started to act up and hip pain in leg ect so went to doc on monday she sent me for mri scan which i had done yesterday and today got the results
i have a small tumor in spine they think it mite be a cordoma which is a benign tumour but have apt with nuro seprgon next tuesday to find out more, im up ta ninety cant sleep thats y im on here so late
did anyone ever have this?
any info wud be greatly appreciated
lots of love to all
b reda
Hi Breda
I have spine mets and had a tumour which was treated by radiotherapy. I had severe back pain for months before being diagnosed but, long story short, after treatment the mri scan showed lots of spots on my spine which are bone mets. I haven’t any knowledge about a cordona but no doubt some other ladies will help you with this
I just wanted to say Hi because you have been waiting ages for a reply to your message. If you are online then reply and we can have a chat if you want.
Ali
hi ali
thank you so much for your reply
iv been up all nite with worry
no spots showed up just a .8cm lesion in the conus area of spine which i think is down near tail bone
doc thinks it mite me a cordoma which is a benign tumor but wont rreally no anything till tuesay thats when im seeing neuro surgon
iv had alot of back pain recently and numbness in legs ect thats what made me go to doc to get it checked out im awaiting a bone scan too
lots of love
breda
Hi Breda
I have just consented to have a proceedure to my back to ease the pain from two crushed vertebra caused by that tumour. Now I could spend sleepless nights worrying about it or put it on the back burner. I suppose I’ll be scared about it from time to time but I’m determined not to let it spoil my days. When I didn’t know about whether I had secondaries before the tumour was discovered I used to say ‘It is what it is’, we cannot change it. So try not to worry about the outcome of your consultation or the bone scan results because worry will not change it. It is what it is, and you will soon know. Am I making sense? Worry is such a useless emotion which is exhausting too. Go and have some fun this weekend. And you know what? I’m going to take my own advice and do the same.
Good luck and keep us posted.
Lots of love Ali
HI Ali,
you no what that makes perfect sense, nothing i can do about it now if its their sure il just go with the flow so to speak
my first bone scan was clear that was last july , they were a few hot spots but they said it was nothing alarming.
u no i just taught of something i had a really bad fall off a horse few years ago so maybe its a result of that
well will no more tuesday and yes im going to let my hair down( bit iv got)over the weekend and forget about everything for now, you do the same
and i will certainly keep you posted on the outcome of consult on tuesday, apt is @1.30pm will prob be their half the day
lots of love
breda
HI all, just to let ye no iv had apt with nuto surgeon today and it was confirmed i have tumor in conus melladaris area of spine its very rare wud have to happen to me
scheduled for surgery tomor at half two got to be their for ten, its in a very tricky area of the spinal cord so cud be left parralised but hopefully not
il be in hosp for few days but will try and post when i get home
love to u all
breda
xxx
Best of luck with this procedure, Breda – we’ll be waiting to hear how it went, when you’re back home and well enough to post.
Marilyn x
Hi all,
just letting ye all no home from hosp surgery went well tg. can still get around barely but getting thier
he had to leave base of tumor their as it was attached to alll the nerves
back 12th of june to see him so will no more then
was due to start taxatere 22nd may but that has been posponed for 6-8 weeks
well hope everyone is doing ok
chat soon
love and hugs to all
breda
xxx
Hi Breda , i have bone mets i have had it nearly 3 years just found out yesterday i have brain mets, notices your message ! i am on herceptin and folsedex only been on folsdex for 12 months but seem to be work until this , however my qualility of life has been good x so keep in their i m sure you will be ok let me know how you go on tracy xxxx
Hi Breda
thinking of you - great that you managed to get online after surgery…amazing 
let us know how you are…
i have asmall mets on T9 - between the shoulder blades dx C’mas eve after DCIS 3 years ago and have surgery to remove nodes under rt arm. have finished FEC chemo and am on a break until surgery in June…then some more treatment - pamidronate
keep fighting…
good to hear about you Tracy
Jan
Jan