Hi, just starting treatment (chemo + herceptin) and would like to talk to/meet someone in the same position. Im lost and cant believe its happening to me! Cant look at myself and really upset about losing my hair.
Hi there
I am in Devon and a bit further along with my treatment. Things do move on and if you can take one step at a time you will get through. I can’t believe that I have had a full mastectomy and 5 rounds of chemo (one to go). I shaved my head, found I couldn’t bear the wig so now have two HeadBuffs. I am now even getting used to my bald head, although it is rather cold.
I hope you find some support on these reads, I have just by reading them.
Best wishes - Jane xx
I am even further down in treatment since I am now on Farestone (the tamoxifen type of drug). I was not too bothered about loosing my hair last september. I thought that was the least of my problems (I had a bilateral mastecomy and had some node invasion and had nodes removed as well). I bought a lovely blonde wig in Debenhams and used it when I was out and about (calling myself “Barbie”) till the hair returned the following January. At home, I used to be without the wig all the time and used a little (and very cute) pink woolly hat when I was cold. Like Jane, I also shaved my hair as soon as the hair started falling to avoid the trauma of going through the stages and it worked for me.
Please, look at yourself, you are beautiful! with or without hair, like all of us.
Best
Pir xxx
hello ,im in weston super mare ,im 3 yrs down the line and can still remember the day my hair came out ,i had very long hair before chemo and to loose it all was so traumatic but i found little sarongs did the job of making me look ok ,they had little beads and sequins on so could mix and match to whatever i was wearing .seems a long time ago now ,i didnt loose my hair again this time ,but hopefully i wont need chemo for a while yet .there is a bristol meet up end of oct im sure you would be welcome to come take care.x
Hi everyone
Mrsmac doesn’t seem to have posted again, hope you are okay if you are reading this. I have been down for the last couple of days and it’s exhausting trying to hide it hey?
Well it’s my last chemo tomorrow, then radiotherapy. Did any of you have radiotherapy? How did it go?
Best wishes
Jane xx
Sorry Jane, I did not have radio so I cannot help there. But I understand what you say about hiding the low days…I am going through a low month, really! sometimes I think I just lose sight of what is important…but hey! it is OK to be low with what we are going through. The main thing is to recognize that we are low and ask for help. I am all for black humour and laughing about everything but even soembody likes me needs cheering and pampering from time to time. When low, time doing yoga really helps me…I recommend it to anyone!
Mrsmac if you read this, please let us know how you are!
Pir xxx
Forgot to say (chemo brain!!), Jane…Congratulations on finishing the chemo!!! well done!!! I hope everything went well
Pir xxx
Hi Pir
Well I thought I would be feeling great this week having had last chemo, but amd feeling really low. have not even been able to go online because I thought it would make me worse. How are you doing?
have to say I am feeling a bit better now, I think? It doesn’t take much though!!
Jane xx
Oh and Pir
Meant to say, thanks for the advice re. yoga. I think I am going to go for it, the BC nurse also suggested it. Just got to know where to start really, will get onto it now I’m a bit more with it
Jane xx
HI Jane!
Sorry for not having been active…Hope you are doing well. I´m afraid my cancer saga took second place in my life with my husband having massive heart problems…you realize how everything is “relative”, really, when life seems to keep on sending you hurdles to jump one after the other…I am thinking of going to the Olympics, I´m so well trained now!
I am glad to know that you are thinking of taking up yoga. I went to a local group (Westbury Park) that I saw advertised in our post office and I am sooo happy. I don´t think I could have coped so well without the yoga! I am also having one to one sessions so that I can recover my full mobility in the arms…and amazingly, less that 18 months after the bilateral and less than a year after the reconstruction, I have FULL movement in both arms. My surgeon is really impressed! …so, don´t delay! the benefits are amazing. I wish I had discovered it 20 years ago!
The joints are still very painful but I have added an hour of bike to my regime and it seems to give me a bit of energy. Still finding a full time job difficult to cope with on top of everything else but…never mind! that´s life! and as Monty Python sang: always look on the bright side of life!!! (ie. still here!!!)
Take care!
Pir.