Thought I would activate this thread again now that I’m starting this regime so hopefully we can all have a moan together with side effects …
Xxxx
Hi Carolyn
Well the day has come to start Everolimus.
Unfortunately I am not much help wirh any side effects I was lucky once the dose was reduced I was fine.
I did work 31 hours whilst on that treatment and went on holidays. I have got my fingers crossed for you that you will be the same.
Good luck.
Linda
Just sat here now looking at these new pills …aah why did I read the side effects leaflet …scared myself now …but going to eat something and go for it …the quicker the pills start working on the little blighters that have gatecrashed my body …the better.
Hi Carolyn
I know like you I read all the side effects. Not everyone gets them. When you were on Letrozole side effects can be quite bad.
If we got all the side effects it would be terrible. Fortunately I have been quite lucky when I think about it.
As I said previously I took tablets after evening. meal. Did the same when I was on Letrozole. I.take blood pressure tablets which I take on a morning. Don’t like to take all the tablets together.
Good luck.
Linda
Hiya lyndyloo
Well took both today mid morning as soon as I ate something. …fingers crossed no side effects.
If these don’t work out. .it will be cape pills so.might have to join the Cape crusaders thread !
Hugs xx
Well day 7 on the devil pills! I was getting headache and sicky about 4 hours after taking them so the last day or so …take exmestance in the morning and everminus later in the day …this seems to help by separating them.
I’ve been on this combo for nearly 2 weeks. The last week I have been getting ulcers and have Gelclair and Difflam to help ease the misery! I’m going on holiday next week and my Oncologist has said I could stop taking Everolimus if getting bad side effects. As I have a particularly nasty ulcer on the tip of my tongue I’m tempted to do this but maybe it will take a while for my mouth to recover? Also presumably I am going to hinder its effectiveness? Any advice would be welcome please? Ps I’m also aware of more fatigue than when I was Letrozole.