Hi All!
I started with Tamoxifen after a bilateral with node invasion and FEC and was changed to Farestone (active ingredient Toremifene). I am getting a lot of joint pain and I was wondering if anybody else is as well. I do yoga but it does not help, although keeps me mentally sane.
all the best,
Pir.
Hi Pir
I’ve just been to see my GP who has suggested Farestone because the branded ta,oxifen I;ve been taking is being discontinued. I would be interested to know what side effects you have. Obviously joint pain which I don’t relish but does it affect you any other way.
Thanks Jan
Hi Jan!
The main one is the joint pain (especially feet), I think. It is difficult to say at the moment because I have only been on it since August and I have other symptoms which I do not know whether they are related (like I am beginning to have dull headaches almost everyday as well…but is that my high blood pressure?). I suppose the problem is that, in my case, I am not even one year off the last chemo (dec. 2008) so a lot of the symptoms are those expected after 3 ops and the chemo, to which -accordingly to my oncologist- my body reacted “violently” (yep, don´t do things by halves, me!).
I suppose I also have to add the predictable ones from the chemically induced early menopause: hot flushes, night sweats, emotionally unstable, etc., etc. etc. oh! joy! but that does not stop me being back to work full time so I can´t really complain.
Keep in touch and all the best with the new tablet.
Pir
Hi Pir.
Thanks for the info. You sound as if you’ve had a rough time of it.I hope that the after effects of the chemo settle down soon. It’s all very confusing isn’t it. My GP was going to speak to my onc about changing tablets. He’s going to phone me when he’s sorted it out. I haven’t heard anything yet. I really don’t want to change I’ve been really well on my current ones.
Thanks for your help.
Jan xxx
Hi Pir
I heard from my GP this morning. I’m being put on Femara instead of Tamoxifen. I don’t know why they ruled Fareston out. I’m a bit worried about changing. As I said before I’ve been really well on Nolvadex-D. Hopefully the new one will not give me any problems. I hope you are well. Thanks for your help.
Take care
Jan xxx
Hi Jan! How are you doing? I am in for another tablet change because of the joint pains so I am starting Arimidex in two weeks time, after a bit of a holiday from pills to get a breather. Pains got so bad that I had to get some time off work…never mind!
Take care
pir
Hi Pir
Its good to hear how you are getting on.
I’m into my 6th week on Femara now. I’m quite stiff and achey especially in the mornings. My feet and ankles are the worst and my left foot is very painful sometimes.
I’m having a lot of headaches which is a concern because I have really bad migraines which my GP has managed to get under control over the last few years.
I also feel very tired, sometimes I think my legs aren’t going to get me upstairs.
I’m trying to exercise as much as possible because I think that helps.
It’s a shame that Fareston was no good for you. Hopefully Arimidex will be better. My friend has been on Arimidex since her op a month after me which is 2 years now. She had some stiffness but it eventually went away and she’s fine now.
I think I’ll have to plod on a bit longer with Femara and see if the SE’s get better. Hopefully they will.
Keep in touch. I’d like to know your experience on Arimides.
Take care of yourself
Love
jan xxx
Good to hear about your friend and arimidex…light at the end of the tunnel!
Yes, I keep exercising as well and I took 2 weeks off work, which also helped. I am feeling much better and now, after what you said, looking forward to starting the Arimidex!
pir x
and keep your spirits up!!!