Ju did you get the jobsworth doc receptionist again!!!
Hi ladies,
I’m from the October optimist , and was wondering if any of you could give me a bit of info.
I had my 2nd EC last Thursday, and have felt a lot worse this time, as if the SE have been magnified .
Do they get worse each cycle? At least I’ll be prepared if I know
Best wishes all x
Thanks for that ladies, I’ll speak to my onc nurse, see if they can change or up my meds.
I will drop in from time to time, it’s reassuring to know others have been there.
And I don’t mind being a taffy lol xx
Hi Teffy echo what all the girls say join us anytine for a chat etc and to see there is an end to all of this.
Lols poity it wasnt jobsworth would have paid good money for a ringside seat! Hope tyhe chat with neighbours daughter went well and she has helped you get some perspective on how the future can be.
Where is everyone?? Christy know you ok cos we been in contact but where is everyone else???
What about Annie? Do you have any news on her Ju???
Lucy disappeared a while ago
Fran is coming home today I think
What about all the others???
ec 4 day 6
can you tell me is anyone else really really struggling with feeling sick all the time have tried 2 different sorts of anti sickness, changed it after the last chemo, but just nothing seems to be working even the ones they send you home with for the first few days havent worked this time, seems endless just fed up of feeling dreadful all day has anyone any suggestions please help
HI all
Roller - Susie been on fb page she was admited to hospital but is at home again now.
Annie hope you are ok and the talk with onc is productive.
My heating and hot water has packed up have now been waiting for British Gas since half six. cant see them turning up now at this time!!!
Enjoy your lunch Wendy
Heating still not sorted gas bloke still here! FREEZING!!!
Hello Maisies, back from fab holiday in lovely countryside. Feel really revived - all set for FEC5 on Tues! I’ve read through all your posts since 22nd Oct - can’t reply to all individually but it’s really good to catch up with everyone, been thinking of you all and hoping you’re struggling through.
Rollercoaster, really glad your parents are settled now, it’s all very sad but at least you have some peace of mind now.
Susie, sorry you’re having a rough time and Nicola too and Lols.
Hello Teffy!
Much love to all xxx
hi finding FEC4 day6 very hard worst ever re fatigue. Have a really strange feeling a heaviness inside and thirsty quite alot my mouth feels very odd . Hope eveyone is coping .Do you think this is going to get progressively worse on 5 and 6 till chemo is finished . I can understand why some ladies wanted to stop at 4 Hope to finish watching Strickly before I have to go to bed x
just needed to talk to people who wont judge my ex hubbie died this afternoon and im devastated, much more uoset than i think i should be. he is my eldest twos dad and my daughter has been on the phone in tears, im also sort of friends with his widow. am i wrong in being so upset i dont know how im supposed to feel.
sorry ladies but i needed to get it out xxx
thanks for all good wishes, aches kicked in last night ended up sleeping in the spare room so my OH cd get some sleep, feel low today but that might be tiredness too. spoke to my daughter she is still very upset of course so will leave her to ring me when shes ready, its such a shock, ive been married three times and all of my hubbies have passed away, only my last when i was still with him, but he passed in the same way as this latest one did, i feel like a black widow no wonder my OH won’t marry me.
lovely sunny day here though windy, had lots of fireworks around last night but luckily finished quite early on.
hope other ladies are not suffering too much atm, love to all xxxx
Ang sorry to hear about the ex. As the others have said its perfectly normal in fact Id be a tad worried if you were nt upset. You have a shared history.
Heating finally got sorted yesterday so nice not to have to wear a coat indoors!!
Hope everyone ok. Christy not posted for a while so will text her and see what she is up to
Good evening Maisies
Susie, glad you’re feeling better now.
Lols, glad you enjoyed your break too, it’s amazing how a change of scene can help you forget beastly BC
It seems lots of us have found no.4 hard – I’m right at the end of the cycle, aching all over and exhausted.
Thinking of you Pendragon and hoping you’re coping with your loss
Glad you’re warming up Chezz and coping with weekly dunking
Thinking of you all especially those who are up next week
Love to all xxx
Hi maisies
Hope everyone is doing ok.
Im really well to be honest the weekly stuff is suiting me at the moment. I know its not going to be this good all the time so Im taking advantage whilst I can and getting out and about enjoing myself and also exercisng a bit too.
Am meeting two of the June jewels tomorrow for lunch. Really miss their thread since they all voted with their feet and went to FB.
Love and hugs to all
FEC 5, day 1
Hello everyone, back from the ward full of chemicals, waiting for onslaught. Relieved it went ahead, neutros down to 0.5 yesterday, but when retested had gone up to 1.3. So glad there’s only one more to go and really sorry for all of you who are still continuing after Christmas
It’s really quiet as you say, perhaps people are just too wiped out. Also I think loads of Maisies use fb instead (I’m not on fb, shows my age!) So grateful to fb users who are still using the forum.
It’s so good to know we’re all going through this together, always a relief to hear people have same symptoms so it’s ‘normal’.
Rollercoaster, yes we are amazing, we just keep going even though we’re exhausted. I hope all goes well for your Dad’s return on Thurs. It’s probably important that he tries to manage at home with care. If he doesn’t at least he’s been given the chance. Has he managed to see your mum yet? It’s so hard for them both, and you too, you could do without all this worrying.
Susie and Lols, hope you feel better soon and able to make the most of the time before no.5 I’m the same stiff achy joints plus lack of confidence, blurry eyes… all new ses to add to the list, also chronic night sweats which my onc said were nothing to do with BC, just the menopause (I thought that finished 4 years ago!) Apparently the tablets I have to take when chemo ends, before radio starts are a bit like HRT so sweats may improve. They’re called Anastrozole, taken for 5 years.
Glad the weekly doses are working for you, Chezz, you need a break
Thinking of Christy and Annie, haven’t heard for a long time, hope you’re ok as possible
Love to all, will be thinking of you through the sleepless night that follows. All take care xx
annie62 im sorry that you suffered so much following your chemo, seems to hit us all in different ways.
i havent posted as had a bit of a bad weekend, not even sure if i did post it on here chemo brain im afraid really bad atm, my ex hubbie my kids dad died on saturday and its hit me real hard, my daughter is devastated as you can imagine.
also having some pain in my boob and under arm where i had lumpectomy and am worrying myself silly over that, feels like my bra is too tight and a sore pain in my scar, im on weekly taxol so expect some aches and pains, i feel like my boob has eventually settled into its new place and now i need a lil bit of a chicken fillet to fill it in if you see what i mean. i know i should expect pain and have been told it takes maybe years to fully settle down, and i suppose with whats happened im a bit more worked up.
went to counselling this morning, she seems to think im coping ok but i must admit i dont agree just sat and cried.
love to you all xx
rollercoaster hope your dads return home goes as smoothly as possible, its been a very hard few weeks for you.
rang bcn re my aches and pains but didnt get a call back hopefully up for chemo tomorrow and the restart of herceptin so ill try and grab 5 mins with her.
not very busy on here atm, i am on the fb site and i do find it easier but it is nice to keep up with others on here.
good luck to thos dunked today and those due over the next few days
angie xx
Hi Maisies
Sorry not posted Ive just been gallavanting all the time. Met Chelle and Jill from the jewels for lunch yesterday and had a great laugh. Saw onc today and he has agreed to let me have sub cut herceptin after my chemo so I can get rid of the dreaded portacath.
Been running and zumba and feel normal its hard to keep reminding myself that Im ill and having chemo til I catch sight of myself in mirror.
Since starting weekly tax all my body hair is disappearing. My eyelashes gone and brows on way out too. Hadnt even realised til I went to put on some mascara and nothing was there!!
Hope everyone else well.
Annie glad you posted you can see we all asked about you and were worried. You have done right thing for sure and as Ju says keep with us and let us know how the rads are going.
I text Christy the other day she is ok as Ju said but she had chemo Monday so is prob having SE too. She just text me now and siad she is a bit achey.
Roller hope your dad manages to settle back in at home. Its awful to have to watch them upset. My dad has now realised he is in a home and is devestated. He has just qualified for continuing care so we get three months fees paid then has to be reviewed again.
Lols how was Cardiff? Did you spend lots??
Susie and Fran hope you both doing well. Nearly there ladies.
Venice let us know how you are.
Hello girls
Still feeling sick and bloated after dunking on Tues, but so pleased it went ahead – neutros 0.5 on Mon, up to 1.3 on Tues! My second daughter moved out yesterday – still in Exeter as is OD, makes me sad, because she’s been brilliant, but I know it’s the right thing as she’s 24 and needs her own life.
Lols, sorry your day in Cardiff, knackered you out but good about the wine! Don’t worry about what people think about headscarf etc, they’re probably thinking how brave you are really. I hate my wig, looks good, feels horrible. I’m about to go into half pay too – who should I ring for advice – I wondered about Macmillan
Roller, rant away! Been thinking of you and your Dad, no wonder you’re worried about him. If he continues like this you must get back to SW. I hope Monday goes well. I haven’t found no.5 any worse than no.4, though both are worse than the 3 before!
Pendragon, I think aches and pains are all par for the course with chemo, but not much fun on top of all other debilitating things. My radio planning meeting is the day before yours!
Susie, glad you managed some retail therapy and wine, you appreciate all these things all the more nowadays don’t you? Good luck next week, what day are you up?
Chezz, so lovely to hear you sound all perky and bright – gives us all hope.
Annie, I hate having no eyelashes too. Hope they grow back soon now you’ve made your decision
I wish some of fb Maisies would check base – it woud be great to hear how they are all doing.
Hugs to all, Fran xx
Hi fellow dunkers Im back too.
Pax number 4 done and herceptin 2. Feeling bit light headed and tired but ok generally. neuts were only 1.7 and they keep going lower each week as body no time to bring them back up. They will keep on til they reach 1 and then delay a week. The injections dont work well with weekly so cant have them as I asked cos wanted to keep on track but looks like will have couple of delays along the way.
I agree Annie I think depression starts to set in near end of chemo. I certainly have been feeling bit down last few days and just thiking its gonna come back etc cant shake the negative throughts. very dark place.
Hope everyone else is well. Hope to have bit more energy tomorrow!!!