Day3 2nd dunking Afternoon ladies having a good day again been to toys r us for grandsons birthday pressie he will be 2 tractor and trailer , called for a full English now feel stuffed loaded car up for car boot in the morning , chillin for a bit with a coffee then an afternoon of ironing and hopefully a good movie , hope you ladies are feeling better today as I see some of you are struggling with se,s don’t mind my bald head infact drove to Rotherham yesterday and didn’t put scarf on till I got there, wire wig today for the first time looks ok but straight off when I got home just feels a bit warm to ware luv to all xxxxx Rose
Just very lucky not to feel ill, onc lowered my chemo to 90% hopefully to stop my white cell count dropping so hopefully won’t pick up a bug this time , luv to you all xxx Rose
hi all
Sorry to hear so many of us are suffering today.
Im on day 6 cycle 2 and although still very tired not quite as zonked out as yesterday.
Yes Tamsin it was day 6 last time it all went Pete Tonge so Im a bit paranoid today. Have taken an immodium just in case and a cyclazine to keep nausea at bay. That doesnt zonk me out as much as levopro so am hoping that will be enough to get me through next couple of days.
Christy and Kaz hold on in there girls. Penny is right it does get better mid way though week 2.
I find day 1 2 and 3 absouletly fine its around day 5 and 6 I hit my low both physically and emotionally. Then around day 8 I start to pick up again. |Think we need a couple under our belts to know our individual pattern.
Sam great news on appointment. Lets get this show on the road!!
have text Lynsey but no answer yet so hoping she is ok as she was bad last night.
Im beginning to wonder how on earth on the days I have literally no energy how Im going to get Rafael dressed and take him on school run. OH is going to return to work 10th Sept and Im already panicking about how Im going to cope. Have decided to put Sergio in nursery as theres just no way on my bad days I can look after him.
Tash will have a look at email in a bit once little un in bed etc
Agree to the like button for penny home make cake and bread where’s mine lol xxxx
dont feel guilty Daisymegan Im sure your mum wanted to keep things as normal as possible for you at the time and didnt want the bleep that is cancer impacting on you when you were just a teen. And exactly as you say unless you are going through it yourself you really dont understand how hard it is. I thought I was a real tough cookie til this came along and kicked me in the teeth.
All of us on here have our own struggles aside from the BC and we all cope in our own ways including you. I bet you a pound to a penny that your friends and family are in awe of how you are getting through this. I know we have no choice really but even so just think how far you have come since being diagnosed and you are a step nearer the finishing post now. You have to hang onto that thought to pull you through it.
just heard from Lynsey she is at hospital with voniting still. Think she is going to be kept in.
I’m so confused re bloods but can’t do anything until Tuesday anyway as its b/h on Monday, sounds like it might not go ahead from what you say but I’m going to pin them down whilst I’m there that’s for sure and try and get something sorted.
will do she knows all the maisies are thinking of her. Once they get some IV fluids in her she will feel better.
Hi there all you Maisies - I’m only just starting to post although I have been reading the forum for a while. I started my first cycle of chemo (Fec - 3 cycles T - 3 cycles) on 21st August. I’m still feeling very wired from I think the steroids - is that the effect they have on you? I can’t sleep no matter how early I take them in the day. Thank goodness I only had to take them up until today - just hoping I can catch up a bit tonight. I’ve never had so much energy! Is there anything that will help with this? Probably a case of grin and bear it I suppose. Not to many other se’s - did feel a bit sick even with the anti-sickness meds which I took. Also bad headache on first and second day for a few hours. Any advice gratefully appreciated!
Oh, what are the group I’m in called? I don’t think I’m a Bond girl - went to the bar on 21st?
Jill
I had to ask for more as I knew the emend would only last for couple of days and with me the sickness kicks in day 5 - 6.
If get from GP it takes few days am told as apparently in higher doses they are used as an anti psychotic drug. Apparently the part of the brain that tells us we feel sick is same part that sees little green men!!! For thats reason you may be best going to your chemo hospital and seeing if you can get them from their pharmacy.
I found them alternated with cyclazine worked.
pm me your mobile cos you are in trhe wirral arent you
Well I’ve gone & done it, the hair has gone xxxx
well done Christy. Big up to Christy xxxxxx
think was spikey red
Thank you, it wasn’t as bad as I was imagining but my daughter was there to support me & my brother, sister, hubby & daughters boyfriend all had theirs done, how amazing!
Hello everyone, I’ve never wanted to go on any sort of forum before, but coming across so many brave upbeat women I realise it would be stupid not to! Diagnosed in May, surgery in June, finally started FEC 16 days ago. Only minor side effects this time – so far so good. I tried the cold cap which was horrible, blinding headache for duration, but hair is still firmly intact. Only thing is my scalp really hurts – is that significant? I’m not sure I want to go through cc any more – is that mad? I’d sort of come to terms with hair loss before I knew there was something that might help. Why am I obsessed with hair loss when I’m apparently calm about having BC. Makes no sense.
Good luck everyone!
Fec 1 day 17 evening Maisies just trying to catch up on all the posts lol , well done christy I feel so much better for doing mine , oh and 3 adult kids think I look good but 9 year old doesn’t want to see me bald so wearing all my annabandana hats during day and cotton sleeping hats at night , survived a whole day out at monkey forest today in my wig and felt confident nobody stared at me so I’m guessing it looked ok , After 9 hours I was glAd to take it off and I did find my sunglasses dug into my head with it on , hope your all doing ok and love to Lynsey xxxx
That’s amazing ChristyMay, what a fabulous supportive family. My Oh won’t need to shave his as is already bald. I am asking him to shave mine when we get to that point. Sure it will be emotional for us both. Hope everyones’s SEs are getting less and you all manage to get a decent nights sleep.
love that A.A.Milne quote and the poem.
xxx
Hi Maisies … I have been away from my laptop a few days and BOY!!! have I got some catching up to do lol
Oh dear , seems like lots of hair shaving and nasty se"s for many of you 
I sincerely hope they improve very quickly for you all.
Daisymegan I would just like to share this with you hun. I"m 43 with a 11yr old and a 14yr old and although we have spoken in lenght about BC and what it means to us as a family, my children are really quiet emotionally unaffected by my dx and treatment, which I find comfort in. They are too young to have the worries I have. Thier biggest disappointment was having to cancel our hoilday, which I totally get, as I too was gutted. I know that the best thing I can try and give my children right now is some sort of normality to our everyday lives and try and stay as happy as I possibly can in their presents (easier said than done sometimes , but I think I’m doing ok at it) because I know if they see me ok and happy, then they will be too.
So I guess what I’m trying to say to you hun, is please dont feel guilty about your mums treatment and what you did or didnt do. I think as a parents we shield our children from as much pain and upset as we possibly can. I’m sure you were less aware of what was happening with your mum for the very same reason as my own children are right now , which I think is a good thing. No loving parent wants this for themselves or their family and I;m sure your mum was no different. Dont be so hard on yourself!! much love xxx
Sam I’m so please your appointment has come through…YAY!!
To all other Maisies , Im still catching up on the post , but I havent forgotten about you all.
Take care you lovely lot . xxx
Not sure when I joined if I sposed tell bit about myself?
Hi There Christy and welcome, I see you have joined whilst I have been off line for a while .
you dont have to, but it is always lovely to get to know each other better.
much love
Jo xx