Anyone starting radiotherapy May 2014

Hi ladies, I’m from the November newbies chemo thread and start my rads on the 7th May. I was told to use Aqueous cream and only simple shower gel for washing. I’ve read that the udder cream by Moogoo is really good so I’ve purchased some and are going to give it a go. Apparently it’s recommended by oncologists in Australia.

I’m down for 15 session but no boosters as I had a bilateral mx with immediate reconstruction in October 2013, followed by FEC-T chemo.

Hope rads are kind to us all

Tracy XXX

Thats my first week in.

 

the travel for me is the worst part.

 

I take my E45 in my bag and apply before getting dressed. I didn’t on Monday and felt uncomfortable on the way home.  I always carry loads of water as I am finding I feel  dehydrated.

 

I have tried to treat myself after every treatment. A nice lunch, or today was an ice cream as the weather is so nice. I had an hour delay yesterday and half an hour today so take something to distract you.

 

only 11 more to go. 

 

Keeks

Hello all
I just had my surgery 12 days ago and I’m waiting on the schedule of the radio treatments
Thank you so much for sharing your experience, it makes if for me much less scary
Good luck for all of you
Paula

Hi Paula welcome.

 

I was told at the hospital I could use simple deodorant and simple soap.

 

I use the standard E45 I noticed one with the extras has a metal in it. 

 

I got my oncologist appointment six weeks after surgery then started within three weeks.

 

take care

 

Keeks

Hi LG and Keeks

 

Glad you have both got through your first week ok

 

I am hanging around and reading all your tips and how you are getting on.  I start on 13th May

 

Have a good weekend

 

Jaye x

Hi Everyone,

 

I started radiation today.  I am having 25 treatments to my entire breast then 5 booster treatments to the location where my tumour was located!

 

happy to have number one over with!

Hi

Great posts sugal and sal, thanks for that.

 

I start my rads next Tuesday and it seems to have been an endless wait to get started. 

 

I’m starting to get nervous about it now but guess I’ll be ok once I get going.

 

Jaye x

 

Thats me over the half way mark.

 

the treatment it’s self is so easy, just lie there, I could just fall asleep it’s so effortless. 

 

However for me the travel and waiting is a problem.  But it’s the same people, at the same time every day so you start chatting and the time passes. The longest wait I have had was over an hour,  the lady I travel with didn’t get her treatment today because her machine broke down. 

 

the hospital I go to say not to put any moisturiser on at all, I do and have had no problems, other ladies I have spoken to have used nothing and have burns.   My scar is a little sore and inflamed but it wasn’t healed when I started so it’s not a surprise

 

all in all it’s been very easy, only 7 more to go.

 

Keeks

 

 

Hi Keeks

 

Glad to hear you are getting on ok and over half way now,.

 

What cream are you using?    I’ve been putting on aqueous cream for a couple of weeks in readiness for next week.

 

Jaye x

Hi Jaye

 

I’m using E45 lotion, the one with the white lid. I got a huge bottle for home and a small one to take to hospital.

 

I use it because someone on here was told it’s ok by their oncologist.   My skin did feel tight on the first day but now I use the cream I’ve had no problems. The radiation site is starting to change colour a little but the skin feels ok.

 

you must be desperate to get yours started.  Once you get going the time passes quickly.  

 

Keeks

Hi Keeks

 

Quite a few on here seem to using E45.

 

Yes the waiting is horrible, I seem to be getting more wound up the longer I wait - just want to get started now.  It’s been 2 weeks since my planning meeting and 10 weeks since my operation, I suppose I am just getting fed up with all the waiting we have to do.

 

Hi Songbird

 

I have read some using Aloe vera too

 

I hope you don’t have to wait too long to start your rads

 

Jaye x

 

Hi Jaye.

 

I have my aloe Vera ready. I think from reading on here it’s best for use on burns. 

 

It’s in the penny sale at Holland and Barrett so I’ve stocked up.  But I’m just using the E45 for now.  I have also found that my skin is getting very dry because I can’t use my normal shower gel so I’m using it everywhere. 

 

I can’t believe I’m two weeks in already.  The time does pass quickly.   The waiting was much worse than the treatment. 

 

Take care

 

Keeks

Hi Fluffy

I’m in week 3 of 7. I’m not on Tamoxifen but have not been too tired. I make sure I lay down for an hour when I get home. Sometimes I have a nap but just resting enables me to carry on as normal. Don’t worry you can get through this. Xx

Hi all

 

I was very tired on Friday and Sat but woke up on Sunday feeling fine again, I really think it’s a case of listening to your body and being good to yourself.

 

on Monday noticed a large scarlet patch under my boob, got a bit of a panic because my scar is still not fully healed but saw nurse after my treatment and it’s a fungal infection. Completely normal it seems and it’s fading already after using cream.

 

I like that there’s always someone on hand to check you out if there is any concern over anything. Nothing is too small to bother about. That’s me 11 down 4 to go already.  I have had a little pain from time to time but my skins fine and it is vert doable. 

 

To the ladies starting today it will be over before you know it.

 

take care all

 

Keeks

Glad to hear you are doing reasonably well Keeks.

 

Just been for my first one this morning - was very stressed  beforehand but all went well once I got in.

 

Parking is horrendous, so never know how early I need to go to queue to get in the car park

 

Jaye x

That’s you on the way Jaye.

 

each appointment gets quicker the more you do it. The hospital I go to is very organised as parking is limited. They have attendants and you just don’t get in unless you are having treatment.

 

is there a place near the hospital you can park and walk, or even a buss route you can park and hop on a bus.  The stress of getting there and parking is worse than the treatment sometimes.

 

it will all be over before you know it.

 

take care.

 

Keeks

Hi Keeks

 

Your hospital sounds like they have the right idea.

 

Will go even earlier tomorrow and if queue is long again then I’ll look for somewhere else to park and walk back.

 

At least I am only 20 minutes from the hospital where as some have to travel 50 miles so I shouldn’t moan

really.

 

Hope your last few treatments go quickly and you are ok

 

Jaye x

Hi Fluffy
How many sessions are you getting?
Tomorrow I will know how many, but probable 15 for me
I’m a bit concern as the weather now is hot -around 27 degrees. I live in Lisbon
Does any of you feel worse with the hot weather?
Good luck for all of you

Second radiotherapy session done - in and out of hospital in 20 minutes. 

 

Hope everyone else is doing ok with theirs

 

Jaye x

Just had my last radiotherapy.

 

I am so tired, the machine broke down and so I had an hours delay, I am very glad I don’t have to do the 120 mile round trip again.

 

not sure if the tiredness is travel or treatment but they told me I’ll feel worse over the next 3 to 4 weeks before I feel better,  it’s all very doable. But it does take it out of you.

 

to all the ladies just starting, it passes very quickly,  I can’t believe that’s three weeks already.

 

Keeks