ive just had mx now got to have 5 wks rads starting 29 dec thought id see if anyone else was joining me so we cld compare notes
Hi Laura
Ive been informed by my Breast Surgeon that I will probably be starting Rads around Xmas! Timing could be better!!! Would be good to compare notes with you xx
cleesyB hi that will be gd yea i no wat u mean no new yr 4 me but then i spose its only one yr do u no how many u got to have
Laura
I’m due to start rads on 8th Dec, spreading either side of Christmas and New Year. I am having 15 (3 weeks), plus 4 boosters.
Ann x
iv got my simulator and tattooing session on the 8th of dec and start rads on 10th… 3 weeks to the day after last chemo… tattoos are tiny and you dont really feel them getting done had them 3 yrs ago too for BC.
im having 25 (20 plus 5 boosters) and finish near the end of jan because of the xmas hols.
i had the same amount of rads 3 1/2 years ago for the first BC on the other breast… although didnt have chemo first time round so it maybe a completely different experience this time post chemo as im knackered before i even start LOL.
but i didnt experience any bad effects the last time was actually quite a breeze compared to the chemo iv just had… i had a part time job 2 evenings a week as a family planning nurse and still managed to do that during my treatment, so even though i had to keep on my toes it didnt affect me too badly… did get a bit of a burned boob towards the end of treatment.
but my trust doesnt advocate the use of aqueous cream unless you start burning, however other units will recommend its use from te start… there isnt any definitive reserach that proves either way is right… i used to keep my aqueous cream in the fridge so was soothing to use.
i also used to wear a bikini top so that i didnt have any hard wires and tight elastic which is fine if you have wee boobies like me but maybe not so comfy for bigger breasted women… my mum also had BC and rads the year before me and has a bigger chest and she wore kinda soft sloggie bra tops which she found really comfy during treatment.
i was also recommended not to shave or use deo… but as i was only having rads to the breast and not the auxilla i used an electric razor to shave and roll on deo so that i didnt cause any damage or chemicals to the radiotherapy area.
sorry about the essay.
good luck
Lulu x
hi all thanks u just dont no do u ive gtg 10 dec then 29 for rads ive 25 no mention of boosters but i might no more when i go up yea i got a bit tub of cream which im using now as ive got cording so have to massage god nos how id cope with rads thanks all and kp posting
Hey Laura
Sorry for delay in posting again - op last weds didnt go too well, reacted badly to anaesthetic but okay now. I am due to see Oncologist on the 4th Dec with teeh Breast Surgeon for the results of last weeks op (I really hoped she reached her safety margin this time!!!) but my Breast Surgeon has said that Radiotherapy will probably commence right after Xmas everyday for 6 weeks (got to have the delay to allow my wound to heal). Once I see the Oncologist then I will know the techy terms I guess.
On the one hand I’m looking forward to it(Radiotherapy) - just want to get the b…y thing blasted - on the other I am a bit concerned about how I will physically react to it.
Stay well and keep posting - it really does help soothe the mind everyone:) lol Leigh xxx
Hi all.I’m going to see the consultant radiologist on thurs to discuss treatment.I’m hoping to start treatment asap even though it will mean hospital visits over xmas 
I just want to get on with it!
Keep posting.
Love Debs xx
Hi Laura - love the photo of children look real pickles . I am about to see my doc at hospital for planning next week but have been promised rads too. Yes I expect mine will run over Christmas ! theres me thinking I’d be back at work for the last two weeks of December. Hope all goes well with you please let me know of your expereinces - I’ll be attending Addenbrooks in Cambridge where will you be? This is a great site and I’m just so grateful for all you out there who contribute it makes things easier for ‘new kids on the block’ like me. Good luck darling hope all goes well.
hi girls in having mine done in brighton they r my boys twins but now 21 they where little devils now big devils gd luck to everyone who starting soon we will kp posting and can share this exp
Hi Ladies
I know its an ungodly hour in the morning but I couldnt sleep - dressings and stitches to be snipped later today and have got ‘cording’ in my armpit which is proving painful - never had this much problem with the first surgery!!!
I will be having my Rads at Ipswich and am hoping my appt next Friday will get me measured and scheduled - I really do not want any more surgery - last weeks experience has put me off totally and I just want to get it all underway.
Sorry for the ramble - am feeling tired and not a little fed up.
Keep smiling everyone else though, stay positive Leigh xx
hi ahh i no that fealing i cant slp either i got cording also which is a pain i now have a red ichy rash above my scar which might be skin mets i gtg wed to see surgeon god this never ends tc laura
Hi everyone, I have just had my second rad session at Addenbrookes today, nice to have the weekend break before going again next week. I am having 15 so 2 down 13 to go! Travelling is a pain in the a***e, for a 15 min session have to drive an hour but very thankful for the hospital they are great and worth the travel in so many ways. The countryside scenery makes up for it though!!
Hi leigh -hope you are feeling a bit better today. I had bilateral surgery about 6 weeks ago, and i know the feeling i think recovery from that is harder than the chemo and everything else put together - i hope you have a nice weekend and get some relief.
My rads are due to finish 16th Dec then i have ovary removal on 18th so i am really hoping that i have none of the bad effects that i have heard about and that my skin is going to behave itself!
Feel like a whale tonight though want to get in control of my life again and the chocolate just keeps calling! Thinking of travelling to London this weekend to see friends, not feeling great about how i look (like a bloke who is 8 months pregnant) but think i need the company of friends and a few glasses of wine! Hope the weekend treats you all well - you are all wonderful women!! karen xx
hi leigh and laura i had bad cording on and off in right arm since BC in 2006 this time had cording in my left boob called mondors disease. my BS thinks some people are just prone to it… cording in right has returned since chemo and both arms have thrombosed veins too and thrombosed lymphatics on left… so basically my hands and arms are totally knackered.
im having my rads at the WGH in edinburgh which is where i had them the first time too… not too worried about the actual rads themselves just the fact im probably gonna feel even more knackered lol.
karen im also feeling like a big bloater but still been stuffing my face with choc and drinking baileys.
hope you have a good weekend with your friends, im sure they wont mind what you look like bit stick abit of slap on and im sure youll be feeling a bit better.
Love Lxx
Hi Lulu & everyone
Lulu - you poor thing - this cording business is a real pain in the a… oops armpit!!
My BCN has advised exercises little and often and I have been giving it a good massage which is okay when I am indoors but if it suddenly catches when I am out I dread to think what people think when they see me with my hand shoved under my armpit/along boob, massaging - I guess i look like i’m having a good old grope!! lol. Certainly my BS and BCN never explained cording to me when I was post op … hmmmm, I guess its better not knowing half of what could occur as we could go crazy with worry:)
All joking aside how badly affected are you hand/arm wise? Fortunately I do not seem to have any problems with them at the mo - your post however has got me exercising my right arm more regularly. What with ‘knackered’ armpit and arm, blue tit, a dent in what remains of my boob the size of the grand canyon (or so it seems when I look down at it) I think Santa should be able to locate me this Xmas Lol Keep smiling everyone - hope all’s well with you Wendy, Vicky, Laura xxxxx Leigh
I didn’t even know i had cording done until i was talking to someone about the surgery (another patient) and they told me why my arm was pulling everytime i was lifting it!!! My arm, had cording on the right, has virtually full movement right now, i had some physio done by a friend and that really helped, will be going to the physio at the hospital just before the end of rads to make sure it is okay. I have been told also to keep doing exercises whilst having the rads and the arm and shoulders to stiffen through the treatment. I have worken this morning feeling really down, feeling ugly and fat and didn’t sleep well as daughter not well - house looks a mess, i wish their was such things as cancer fairies that come and tidy the house when your family cant be bothered to help and forget that you are also sick!!! Sorry for the rant!!! Lulu, you have been through it my love and yet sound so positive, hope you have a good weekend. Not good at remembering names love to you all, have a good Sunday!! Karen xx
hey biggles
maybe we should meet so we can wallow together - me too not having good morning - Mothers grrrrrr… i’ve been up most of the nite too, will follow your advice re exercises thru rads, though at the moment I’m wondering why I’m bothering to fight this.
Dont worry about the house, just concentrate on you and your little girl.
Sorry for my rant - just needed a sound off - Apols to all xx
I think we all need to make a pact for not apologising when we rant what do you think!!! I think we are entitled to it…dont know about anybody else but i dont rant really except on here, keep trying to be the positive, i am okay with it all with my family so they dont get the true reality of how i am feeling as i think it would worry them a bit - is anyone else like that!
I think was down today because of the rads, two have been fine but just want it to end i know i have had worse its that thought of three weeks of stuff and what ifs going through me head, i think it is the mental stuff i am having problems with…Still feel as big as a house, but have to take responsibility myself and start acting like i am the one in control and not this disease, i am going to have a better week and do my excercises plus my Wii Fit everyday - girls i want you to hold me to it - if i am strong in my head i can be strong in my body too!! Karen xx
Come on, Karen. You can do it!
Ann x
I start 5 weeks of rads on 11 January at Glasgow, anyone else going there?