Greetings all,
Hope it went well Mary - steroids should still be working for you and se’s not kicking in yet?
Snoogle, sorry to hear your appointment wasnt so great. I do think you are right that emotional lows are due to symptoms rather than anything else. The more chemo you have, the more tired you feel and the more tired you feel, then the lows kick in. Why else do we buck up after a couple of weeks or even when the sun shines?
Anyway, today oncologist agreed only to prescribe me 3 as opposed to 5 marrow boosters. She really feels i should still have it and this is last chemo so agreed. Chemo next tuesday for me last one before rads.
I hope the cleaner works out for you, i really want a cleaner, house will get a going over probably monday when steroids kick in.
my little ‘housework’ tablets - only time i actually feel the urge to switch the hooover on.
all the best to everyone.
Linda
yes you’re right Linda - back home and fine, determined to drink lots etc…and have a sleeper tonight!! maryx
hi all, had to call the onc dept yesterday as drop off in steroids still too fast, have amended drop down plan and have to call them in half an hour to discuss.
Feeling very low again today. Hopefully it will pass over the next week.
Hope you are all enjoying the sunshine.
Snoogle
x
snoogle - what did they change yours to?
was it just stretching them out/ mary x
Hi girls,
You know what you say about steroids makes sense and i hadnt even considered it. I go from 8 a day to none and i thought it was boooster that totally floors me but could be come down from steroids as well. Still, as only one more to go for me, plus only have to endure 3 injections of booster, i think i can put up with it.
Sorry to hear you are feeling low Snoogle, It is so wretched this disease!!!
Hope you are able to enjoy the good weather at some point this weekend.
All the best to everyone.
Linda
just jabbed myself with first one - when would you say is best to do it - mind you they said regular gaps…mary x
Hi
Tried both, first in morning and about six at night, no real difference. Think next time i will do it just before i go to bed.
Linda
Hi All,
Hope everyone’s doing ok.Had my first Paclitaxel on Thursday and I can’t believe how ok I feel,yes,I’ve got a disgusting taste in my mouth and a bit of a jippy tummy with cramps but after each EC I stayed in my pyjamas for about 3 days,couldn’t eat,and felt generally terrible.
I don’t want to sound pessimistic but when is the bad stuff gonna kick in? I did have a very flushed face and neck all yesterday,is that normal? Bit scared of all this lovely sunshine too,have put factor 50 on my face,hope it does the trick.
Well I may as well do some housework whilst I feel so ok.
Take care everyone,
Love Helen xx
Hi Helen, Hi everyone
Glad to hear u are not having a lot of side effects. I would say days 4-9 are worse for me so sounds like you are going to be alright.
Amazing how we all react to this stuff differently, With FEC apart from mild nausea and taste issues, i didnt feel bad at all. This stuff have those few bad days, but minor se’s all the way through.
Trade name for stuff i have is docetaxol but presume they are the same. I will be having my last on Tuesday. I am glad i am only having 6 chemo cycles and not 8 as some people have. I will be having radiotherapy after that.
Hope everyone is enjoying the sunshine (with factor 600 of course LOL) Shock horror, didnt put any on my legs and they are very slightly brown. I only sat out for about half an hour, facing away from the sun.
I have to get my son packed for his trip to Newquay, looks like he is going to have good weather.
All the best
Linda
Hi Helen - hold in there you seem to be doing well and might get off lightly with next to nothing…will keep all crossed too! Linda - hope he has a great time and will be thinking of you too and the last one - wow…so far so good with me, day 4 post second dose and being optimistic - off out to meet some of the other shropshire girlies for lunch/coffee n cake…mary x
Hi All, Well pretty awful week. KittenKat in answer to your question the steroids were originally 8mg a day for three days then stopping. The onc decided to add some more to drop off, but this wasn’t enough. It was I think 2mg for 2 days then 1 mg for 2 days, but this had to be upped to 3mg for 2 days and 2mg for 1 day and 1mg for 1 day. Have finished them now, but will discuss with onc at next appointment for next cycle. Have had terrible constipation this time, not sure how much of that is down to the weather or needing to take more antisickness pills. This is the worst cycle I have had so far.
Hope you are enjoying the sunshine.
Snoogle
x
must admit I have been drinking like mad this cycle just because I noticed I hadn’t done as much with the last one so thought I’d try it just in case…mary x
Hi All,
Snoogle,sorry to hear you’re having such a rough time,hope tomorrow’s better for you.
Linda,last one Tuesday how great that must feel.Now my chemo’s every fortnight I think it’ll go really quickly,at least I hope so.
Hope you had a lovely lunch Mary,unfortunately the horrid taste in my mouth spoils my appetite at the mo,but just wait till I get those tastebuds back!
Don’t know if it was just a warm night last night or if it was me but kept having hot flushes so didn’t sleep too well,hope I fare better tonight,
Take care everyone,
Lots of love,
Helen xx
Hi everyone
off for dose 7 tomorrow. Hopefully I didn’t overdo it today at Race for Life. Walked with my best friends and my cousins and all of us had strong reasons for wanting to do the race. My girls ran it (14 year old finished in about 24 mins mins and the 10 year old in 27 mins) and they came back and crossed the line with me. We have run it 6 times in a row but this one meant the most. Bit worried that it may have blown my red bloods cells and steriods probably means a sleepless night. The hot flushes are back which also wakes me up a lot.
The really good news is that those extra few days meant my taste buds were just about back to normal. So at least I know that after the last dose it shouldn’t take too long to get back to eating properly again. Roll oon the end of June!
Snoogle…sorry to hear your news. Stay strong, easier said than done I know.
Hope you are all getting the chance to enjoy the weather whilst it lasts.
Julie xxx
uuugh sludgegob is abck today - thought it might have missed me this time but no such luck!! Isn’t it miserable when you fancy something tasty and nothing tastes right - do you get a white tongue too?? Never know what to drink either as its as bad!! Just gonna chill today me thinks…mary x
hi Mary Hi all,
AAARRRRGH Sludge gob, only good thing to come out of that is I dont eat as much for a few days and thus it has kept my (over)weight stable. Really feel hungry dont you but that coupled with a sore mouth means not much passes the lips.
I am on the first steriod day, took them about three hours ago and really want them to kick in. I feel absolutely shattered and i have things to do… Come on steroids, work yr magic…
Eldest son has gone to Newquay for week. Youngest at home as inset day. hubby also home with stomach bug, My youngest had it last week. That is worrying for me. Chemo tomorrow last thing i want is that as well. Hopefully the granocyte has given me super immune system and it will bypass me. I wont moan about it again, if thats the case… My taste buds are just about back to normal Julie, although the smell of garlic really makes me want to heave. Its roll on end of June for me too, as effects of Tax shud be over and onto rads.
sorry to hear about yr problems snoogle. I had mild constipation but onc has told me to take dulcoease or similar this time. It really makes my poor botty hurt to sit on.
Carry on enjoying the good weather everyone.
Off to Barts for last chemo tomorrow - hip hip…
Linda
linda - roll on end of june like you say - my last one is june 18th - just wish this was the last one but hey ho, I’ll get there, day 5 and tired but not ill so ok, don’t really know how I’ll go as the first tax was hopefully unusual so haven’t much to go by except I’m a lot better than I was the first tiem round…spelling/fingers gone to pot…mary x
…Yep Sludge Gob it is! I was given chlorhexidine gluconate mouthwash this time but it’s not made any difference.Had Nystatin before which was better,but I’ve had this coated tongue for weeks now,and you’re right,it does spoil the taste of things.
I’ve noticed my finger ends are abit numb today and my legs are achey.
Good luck with your chemo tomorrow Linda,
Hope today’s a better day for you,Snoogle,Movicol works for me.
Love Helen xx
yes my finger tips are achey too and I had boney aches after the third granucyte jab yesterday but took painkillers at bedtime and it seemed to ease off…have daughter home from exam now and is doing lunch bless her so I’ll be off reading again…mary x
Hello, Still feeling incredibly tired and still have the wonderful sludge gob, trapped wind and tingly fingertips. I think the hot weather made the constipation problems worse, but will discuss with the onc at my next appointment. The coated tongue seems to last longer each cycle, have my crown fitted on Thursday so that will probably be a fairly unpleasant experience. The children have an extra two days off school at the end of this week, so hoping I’ll be feeling somewhat better by then. My little one was invested at Beavers tonight, so sweet and so proud to have his scarf and woggle!
Best wishes to all,
Snoogle
x