Hi, is anyone taking Ibandronic Acid instead of Zometa infusions. What can I expect, have been taking them for a month and so far so good, I think. Am taking Amrimedex H.T. and now waiting for head hair to grow back in full, eyebrows and eyelashes have started to come out this week, maybe its to do with the weather!!
This time round, chemo (Paclitaxol) has affected my Rhuematoid Athritis; is there anyone in the same boat? Have just restarted to RA meds but the pain which I forgotten about is so great …
Any tips please.
Stay strong
Hi Salsa Babe
i have been taking Ibandronic Acid tablets since my secondary diagnosis (2006) and can’t say I have had really serious side effects more an inconvenience with the waiting 30 mins to eat and staying upright for an hour (no going back to bed with a cup of tea!) I have noticed though that during chemo (I am currently in middle of Abraxane x 6) it does tend to make the indigestion worse although an Omprazole usually does the trick.
Sorry cant help with the RA link.
good luck and hope the meds help with the pain.
Smartie x
Hi Smartie
Thank you for your reply. WoW you had secondary in 2006, has it come back again hence the chemo? I feel a bit better now that you have said that, its been a month now that I am on Ibandronic Acid and like you say that the 30 min is hard to get use to as I am taking Arimedex hormone therapy, so I take IA and wait 30 mins (beofre lying down) usually take a bath and then once out take Arimedex with food and move around for 30 to 1hr mins so by that time, don’t really want to go back to bed hee hee … still trying to get into a regular routine especially as I am hoping to go back to work. I finished paclitaxol Feb 15 and now just waiting for hair and eyebrows/eyelashes to come back, and they are coming back just in time for summer!!! I was free for 8 years and what I thought was a trapped nerve in my leg came as a SHOCK that it wasn’t. Still trying to get use to it, can’t believe it is a year since I got diagnosed Jan 24 funny how the time just flies. Apart from the arhtritis giving me grieve I guess I am not doing too badly. Just trying to build up confidence and get myself back out there, as usually I am a temp secretary so haven’t had to worry about employer but now worry about getting back on the ladder as I want a perm job. Hope you have had a good weekend, sun shinning at the minute hee hee take care lorra hugs coming at you… if you need to chat drop me a line
Hi Salsa Babe,
I have been on ibandronic acid for over a year and had no side effect at all. The inconvenience of being up for one hour really outweighs the three weekly trip to the hospital for pamidronate infusion given with herceptin. This used to mean 1/2 days wasted. Now I have my herceptin at home, done and dusted in 90 minutes. no trip to the hospital, no car parking nightmare, no waiting etc etc.
Hi Vercors
Thank you for your reply. Its reassuring to learn that you have been taking I.A. for over a year without any problems. I hope that will be the same for me. Lol I understabd about the inconvenience of being up one hour, but its hard when you haven’t got to get up and must just to take a tablet, guess if I was working it would be a breeze!!! Now just waiting to loose the weight that I suddenly put on towards the end of chemo and get my arthritis back on track then I should be good to go. Hope you are doing well, Are you back at work? Where did your secondary turn up?
It sounds like you are in CONTROL!!!
Take care
I’m another ‘acid’ lady - since August 11 when secs dx. Altho the routine of bone pills half hour later other pills and eat then oral Cap does my head I’d much rather thaht than have anyone try for my vein every 3 weeks! I have no effects from the bone pills at all - just ignore them really as one of the zillions I take - just the ones that stop me having my earloy morning tea!! Don’t work either so no reason to wake / get up!
Nina
Hi Nina (acid lady) I like it hee hee
Yes I agree with you, I will put up with bone pill half an hour early and move around as my veins are messed up with infusions and so had to have a picc line for rest of chemo and am so glad that I can have the pill form, I am just getting myself back as it has only been about 6 weeks since I had the picc line removed. I note you say you don’t work, is that because you are too poorly, how are you doing? I had just finished a long temp assignment back in Oct 2011 and have not worked since but am hoping to. 2011 sounds so long ago!! I am trying to push myself forward but some days are harder than others and also my arthritis is playing up and guess I will not be working till that is sorted out, I am finding it hard to type today and thats what I do for a living. Phew a wave has just come over me, you take care and I will look for you online.
From one Acid Lady to another Acid Lady
Big Hug x
My acid friend!! I used to be a computer programmer, and I worked at home due to depression giving me people problems. Thisw was fine with my then employer Scottish Widows until I got my primary dx in Mar 09 and was signed off - as one is,… When I got signed back, I heard nowt for 2 weeks then they decided they had no work I could do at home - stale mate. Union got involved, big arguments, finally made redundant in May 11. This arguing took a lot out of me, I then got pain in back and went off down the mets route. To be honest I’d find it hard to get work from home and tho I felt terrible about not working initially, with my DLA and small pensions I’m at the state wheere all my tax allowanc eis used up so I’d get taxed on al I earned, so I’d have to get my old salary to make it worth while doing so, and I’m not going to get that so here I am retired at 54!
Nina x
Hi Nina, could do with an acid trip do you remember back in the day it was a c i d 
lol lol
What a bummer re: work. You sound like you have it sussed. Retire at 54 well done you. I am 55 and can’t though funny, got dx last January and paid off my mortgage this January!! I should be over the moon right? No, long story won’t even go there… but an achievement all the same.
I am a legal secretary and I am hoping to go back to work though I think my age will be against me unless I buy some uplifting bras (tits still in tact, only had a lumpectomy 8 years ago) and wear shorter skirts and act a little dim I may just pass!!!
I am hoping once I get the arthritis back on track and not side effects with BC drugs to back my life, I do miss my salsa dancing. Right now I am bored its unreal. my concentration span has gone out the window and watch a lot of telly which I can do from my bed as I have twinges and so a lot of bed rest.
How do you spend your day, are you active.
Keep in touch
Salsa.babe
Hi Salsa babe,
Not sure I can use the word in control. Just saw my onc today and I am still stable.
I actually never stopped working. On primary diagnosis I worked through chemo one week off, one week working from home and one week in the office.
It allowed me to keep my head busy and try not think too much. I was also lucky that the side effects were not extreme and that my employer is extremely flexible.
Just stocked on my acids for a few months… take care everyone.
Hi Vercors
How are you today? Today I am trying to set some goals and here goes:
-
Facial Chemical Peel - skin looks haggard - just waiting to discuss with Onc if I can do this.
-
Learn to swim properly and not mess about in the water
-
Loose some weight, I saw that you have joined the thread about losing weight some of the messages are funny and inspiring, I need to get some control and surely I can control the weight,yes 
Hows that going?
-
Daily walks down the hill that I live on.
Sun is trying to come out here…
Take care EVERYONE
I am well Salsa babe. Really busy at WorkL
i went swimming this morning. I try to go swimming once a week. I Findmit so relaxing. Drop the kids off to school, do my 40 lengths and home just back to start work at 9.00. It means two hours after ibandronic acid…
I am stuck with my weight loss, but as I am not really trying, I can’t complain. I am back to pre tamoxifen weight which is good. Another 2 or 3 kgs off would be ideal.
time for a rest.
Hi Smartie, Broomsticklady and vercours
I haven’t posted for a while. I was just wondering how you are all getting on. So far so good but the joint pains not sure from arthritis or side effects of new medication ie Ibandronic Acid and Aremidex hasn’t been easy and this week my Rhuematologist gave me a steriod injection in my shoulder and butt. She could see from test that my arthritis was very active because I had to stop it whilst having chemo. That said and today is Friday, I almost feel like a new woman, it was easier getting out of bed, off the loo and out of the bath and doing buttons and zips a litle more comfortable. She said it should last two months whilst I build up my meds for the arthritis back into my system. I sure hope so. The it will be interesting to see if I have any side effects from the cancer drugs.
Hope you are all doing well and for me in London today, we had glorious sunshine yipppeee
Have a good weekend
Regards
PS: I may even go salsa in the next couple of week lol lol drugs willing hee hee