Hi GeriF. I know what you mean. I hadn’t been out since Wednesday only due to circumstances not choice, except to hang washing out etc, and still got sepsis so who knows. No one in my family is ill either. Just one of those opportune bugs taking advantage of the disappearance of our army of fighter cells. Cheeky little blighters!!! Xx
Hi Tina, all went ok but the cap is such a palava! They asked me how i was feeling & if i felt ok. I’ve lost loads of hair which is very disappointing but my hair was very thick to start. Will perservere with it. Feel good today … no sickness at all, just abit tired. Hope that continues. Good luck for tomorrow… Will be thinking of you xx
Hi Flower, hope you’re feeling ok today xx
Hi Geri
i am ok thanks…just tired but not sure if chemo or two days of waking up too early Last time kicked in day 3. No nausea. No chubby cheeks or pink face with steriods this time either so that is good. 1/3 of the way! Xx
hi
Glad you’re ok geri and flower. 1/3 through!
Did you have the same nurse geri? Was your infection mentioned?x
Must say im considerably more nervous this chemo eve than my 1st! Think its the knowing what’s ahead plus the dread of sepsis again plus being a bit down about shedding like a dog plus that cap! Oh well…ill be a third through though. Xx
That’s great Flower. I think it helps we know what to expect this time. I have my next 2 chemo dates - 21 june & 12 july and counting ahead this will be done end of Aug!
Tina, i know what you mean as i felt slightly anxious too. Didn’t have the same nurse but they ask you about what SE you experienced after 1st cycle. They knew about my admission as it was in my notes but just asked how i’d been feeling. I have to go to Brierley Hill health centre the day before each chemo to have my hickman line flushed & my bloods taken so i knew they were ok. I wouldn’t worry too much about further infection … we just have to put it down to being unlucky. Have a chat with them tomorrow about your feelings. I’m down about my hair too. I am horrified at how much i’ve lost & wonder whether it’s working to be honest but i’ll keep going. My hair is now all thin & fuzzy & i hate it. But it’s not forever! What time is your appt? Xx
Hi geri
Its 10.30 but im going to phone up about 9.30 to see if they’re running behind…no way am i having a 2hr wait again! Did you wear a hairband to cover your forehead and how long were you there?
Im getting a habit of running my fingers through my hair to look at all the hairs that shed…must stop it!! X
Hi Tina. How long did you have to stay in for? The oncologist was supposed to come and see me today as I’m still on assessment to ward due to oncology being full. The oncology nurse came this morning as usual and said I’m still down for urgent transfer and they’re hoping the doctors will chuck some out. Also that consultant would definitely be coming. Neither have happened although they’ve just tried to transfer me to another ward and I refused cos supposed to be in side room. They hasn’t considered that or read the notes which said transfer to oncology
Hiya bettyboo. I went in with temp etc on the morning 9.30 and was told after bloods came back i was to be admitted…at 12.30. Then i waited until about2pm to be taken to aeu and was in a very loud busy ward behind a curtain that had an “infected” poster stuck on it on a trolley with the promise of a bed. Listening all night to a poor lady with dementia shouting out that she was giving birth! That bed didn’t appear until 12pm the next afternoon with the promise i could go home if my temperature behaved in the next 6 hours. It did but i wasn’t discharged until 10.40pm. Nightmare.
Hope you’re being looked after xx
Hi GeriF,
I really admire you, for being able to persist with the Cold Cap.
Although considering it initially, I ditched the idea, as I just cannot stand the cold in any shape or form. The energy required to cope with it - would be just too much and I need it for other things. Also the aspect of additional time required - did not appeal, as I have a very busy work schedule.
I am so lucky, that I can carry off the Sinead O’Connor look so well. When not in a business environment, seeing new and existing customers - I show it off to its fullest extent, lol! Otherwise - the wig fits well over my very short hair. Still waiting…after chemo one…starting to thin on both sides just above the temples, so at a guess, it will not be long now. Not sure how I shall handle the patchy look though - wish I could have it shaved, properly shaved, when that happens. So will ask the chemo team, whether I could get that done. I realise it is risky - but still - I am vain! I can cope with a bald head - as it is a complete ‘look’.
xxx
Hi all
Just back from number2! 1/3 through. My sheddings driving me crazy too. Love to know when it stops. Ive only got to touch it and i lose a hamsters worth! Please say that caps going to be worth it! Nurse left it on extra 15minutes today after itd finished…said it can help…although i did have lots of ice on after…so attractive! Thank god for caps x
Hi Sue H-S, i’ve seen your pics & you really do rock the shaved look. When i think of each chemo session the thing that puts me off the most is the cold cap and, your right, it does take alot of energy not to mention the constant hoovering! At the start everyone said i’d lose hardly anything so seeing small patches has shocked me. But i don’t want this to overtake my thoughts & energy so when i return to work next week i’ll be wearing my wig. Xx
Hi Tina, glad it went ok. Did you find the cap more manageable this time? X
Tina - Gery
You are heroes - and I keep my fingers crossed for the both of you, that all of that effort pays off.
xxx
hi
Yes it was a little more manageable geri…the headband helped and i also put gauze underneath on my temples…for some reason thats where it always feels most uncomfortable for me. She left it on an extra 15minutes too when it was turned off because she said itd help slow the loss down. We’ll see… I just showered the conditioner off and it came out by the handful! Please please slow down!
Sue thanks but im just wanting to be “normal” looking for my little girl and for me…dont want people to know just by looking at me what im going through…plus a fair bit of vanity if im honest.xx
Hi again geri
Or anyone else whos had mri and bonescans… Do we get those results at our 1st meeting with the oncologist? If there was anything important shown up would we of been contacted before that?xx
Thanks sue
Yes ill call them tomorrow. There was no mention of them in my notes today. Just something of a niggle in my mind id like putting to rest hopefully .
Gosh i need a holiday! Will book 1 after chemo n before rads x
Hi Tina, sounds as though you had a much better experience which is great. I’ve been told the results will be discussed with the onc. My appt is 10th june. The waiting for results is agonising! X
My appointments 10th too 3.15 x