Anyone with Phyllodes??

Hello Everyone. I’m new here so bear with me.
I’m posting this here as I am unsure whether my tumour is benign or malignant. I am scheduled to have a lumpectomy on 25th June and will have to wait for the pathology reports afterwards to find out the news.
I am annoyed with the hospital as they have given me virtually no information on my condition. Anything I have found out about it has been through my own research. Believe me I will be letting them know what I think about that!
So far I have been down to earth and realistic about it all, no point worrying until there’s something to worry about? But today the potential seriousness and the eternity of waiting seems to have got to me and I’m feeling a bit wobbly :frowning:
As well as worrying about the eventual pathology results, I’m also concerned about the lumpectomy and what I will look like afterwards.
I would really like to make contact with someone who is/has been in this situation.
Thanks for reading
Trish

I am going the exact same thing . Thursday past I have just had bilateral wide local excision with extra margins and haveeven told I have to Wait 2 weeks for results. How did you get on?

Hi trish
yes I have been treated for phlloydes
It was first thought to be a fibredenoma i had a lumpectoy no problems and healed within a couple of weeks with just a small neat scar unfortunatley when i went for the results of the lumpectomy it shocked even the surgeon as it was actually a cysto sarcoma phlloydes and was highly malignant and i had a emergency mx in november 2011 and so far so good long may it continue
If you need any info just ask if i can help i will
lizzy