April 2017 Radiotherapy

Thank you ladies for your replies. Isn’t it interesting how we all get different advice. I can’t use E45 unfortunately as having used it for years for eczema my skin started reacting badly to it a few years ago. I do have aloe vera gel which I’m contemplating taking to put on straight afterwards. I’m 10 weeks post chemo, Guys Hospital are really busy I think, hence the delay and the start just before Easter. I’m going to ask for the dressings you mention OldDawn to have just in case but suspect I won’t get them unless I have a problem. My appointment isn’t until 5.05pm tomorrow so I do hope they aren’t running late!!

Jacquie x

Hi All had an ok day but really shattered tonight.Had my 9th session today and so only 6 more to go for myself and Pippa. My boob is really  red and hot tonight . They are going to try to get a breast care nurse to check it when I go in for my treatment tomorrow. They think I could possibly have an infection. hopefully will be ok. always worry incase the cancer might come back as there is a lump there but they have said that is probably scar tissue.

 I have very fair skin so might be just the radiotherapy burning me. The cream they gave me to use at the hosp is QV cream but wandering if it doesnt suit me .Might ask if I should try something else. I had also been using some Aloe Vera gel but stopped this incase that didnt suit me . dont know what to do for the best really. Hopefully I will get some helpful advice tomorrow. I have also started getting some twinges of pain but got told this was normal at this stage.Im really pleased to be having a 4day break in my treatment over Easter as it will give my skin a much needed rest and give it time to settle down .

hope your  first treatment goes ok tomorrow Jacquie.

Yes Im drinking loads of water LadyBowler which I know id good to do but Im up all night on and off having to go to the loo… ha ha …take care everyone XX

Those with r1 and r2 creams what are they? Could you post a picture of the ingredients please. I was shattered today but think it’s because I didn’t sleep much last night. Tonorrows appointment is early so i just get off to bed! Seems I have 4 day weeks not 5 due to bank holidays and machine services so hoping skin will make the most of the rest. Xx

Hi Snail. Haven’t worked out how to post a picture so here goes on ingredients.
R1 - Purified water, Triethanolamine, Milk Protein, Carbomer, Acrylates/C10-30 alkyl acylate crosspolymer, Edetate disodium, Glycerin, Phenoxyethanol, Ethylhexlglycerin. R1 is free from fragrance, parabens, benzene and contains no antioxidants or metals
R2 - Purified water, Octocrylene, C12-15 Alkyl Benzoate, milk protein, Caprylyl methicone, Octinoxate, Avobenzone, Corn starch, Glycerin stereate, Glycerin stereate citrate, Glycerin Stereate SE, Ceteareth-20 & cetearyl alcohol, Sodium Hydroxide, Ammonium acryloyldimethyltaurate/VP polymer, Phenooxyethanol, Ethylhexylglycerin, Edetate disodium
R2 free from fragrance etc as for R1, also provides UVA and UVB protection to reduce the risk of reaction to sunlight following treatment

R1 is for use in a thick layer straight after treatment and R2 is four times a day. Have used twice and it’s lovely. Easy to apply not sticky and absorbs quickly.

Hope that helps!! Xx

That’s brilliant thank you. A lot of the ingredients are the same as spam other creams that I can get without going to go. Xx

Hi everyone

i had my first session on Monday. They did the scans and gave me two tattoos. I’m really unhappy about them, particularly the one in my cleavage. Can I get them removed? I’m also getting very nervous and not sure I want to go through with it. For some unknown reason I’ve been really teary  today so not sure if it is all catching up with me. 

Has anyone ever declined rads? Thanks. 

ladies

 

Just a thought have you all applied for your nhs prescription exemption certificates.  If you are having hormone tablets, ie tamoxifen etc.,as part of your treatment plan you will be exempt from paying whilst you are undergoing this, and it covers you for ANY prescription that your GP gives you,

 

 

Helena xx

Morning Ladies, 

Hope everyone is doing ok.  

Dawn is it the last one today?  

I popped into Sainsbury’s on the way home yesterday and managed to buy some seamless bra tops (croptops) they had 25% off too so only cost £4.50 each.  Lovely n soft for after treatment and fit my slightly larger boobies (allbeit diffent sizes).  All other tops I’ve tried flatten me ?.  Just in case you were looking around for anything.  

Xxx

 

Hi Everyone. 

Thank you for your kind words. I feel quite silly as being teary is so out of character. The slightest thing sets me off. I was at the dentist yesterday. She was running late, so I told them it wasn’t acceptable (particularly as I heard her chatting), then left. So not me! 

 

Rooty, JoJo. I think you’re right. I was perfectly well, no lump or anything. Then within a month I have had more tests than ever, an operation (and the dreaded cording), now this. The oncologist told me I was very calm. I think I was until I got to The Christie. I will go through with it, albeit unwillingly, but I know I have to give myself every possible chance of survival. 

 

Ladybowler, thank you for your kind words and advice. Today is another day. 

 

Kerri x

hi Kerri,
Just to add to what everyone else has said, I was told rads reduces the recurrance rate by about 60%, so well worth doing & a ‘no brainer’ as far as I was concerned.
ann x

OldDawn

 

Not sure what time your last rad, YES last rad :slight_smile: :slight_smile: is today but I am out later this afternoon for the evening so I am ringing them there bells for you now.  Hope you are going to be celebrating this evening

 

Helena xxxxx bell.jpg

Hope you don’t mind me popping in ladies to wish you all the best with your treatment. Hang on in there it’ll soon be done and dusted and LadyB will be ringing those bells for you.

Don’t forget to moisturize, drink lots of water and rest when you need to. Be kind to yourself, we’ve been through a lot, but will come back stronger and even more fabulous than before!

Love to all.xx

Hello Ladies
Just want to say a big thank you to you all. These posts are a huge help to me and it is comforting to hear you are all going through similar emotions & experiences. I am nearly half way through my rads with 11 more sessions to go. Wierdly it hasn’t phased me at all and other than being tired I have no other issues. What I am struggling with is my mind! I still have quite a large hard lump which I gather is scar tissue. I am petrified there is cancer left behind and every twinge I feel in my back or anywhere in my body, I start worrying. I have always been fairly robust but need to work on my head & paranoia. I guess this will just be part of the course.
Wishing you all well in your treatment. Keep smiling & it’s ok to have a wobble. I’m sure we all do.
Fiona xx

Yipee a four day break from rads!!! xxx

Hi everyone

thanks for picking me up last night. I felt really low,  but better today. I think the meds might have something to do with it, as the mood swings have only been happening for about 10 days and I’m two weeks in on Anastrozole. 

There is no way that I won’t go through with my rads. Even if I cry all through it! I would have been happy to have chemo too, if it helps. But I’ve been told it’s not necessary. 

Night everyone. 

 

Kerri x

 

Happy Easter everyone, and sorry for not posting lately, and thank you all for your words of support, congratulations on finishing yesterday, and the bells Lady B! I would have been a lot harder to get through it without you.

 

As usual, things didn’t go smoothly yesterday. My appointment was supposed to be at 11.50, but they telephoned at 9.00 to say the machine had broken down again, so could I make 3.30 in the afternoon, and could I phone an hour before to check everything was OK? I phoned just as we were about to set off, and thankfully the 3.30 appointment went ahead.

 

So no more rads, but I still have to follow the same skincare regime for the next 6 weeks. They said that as long as I do that, I shouldn’t have any problems, although I should take it easy as the fatigue can get worse afterwards. It looks like I will be returning the gels and cream to the pharmacy unopened, so at least they won’t be wasted.

 

FiT - It is more than OK to have a wobble in our situation, everyone does. It is also hard not to panic when you feel a lump, even though you know it probably isn’t anything sinister. LadyB is right though, I think most of us have some scar tissue left over from the surgery which feels like a lump. I suggest that next time you see one of the consultants, get them to check it over, to put your mind at rest.

 

Kezzar - sorry I was not there to support you last night and glad that the others have been able to help. You are not alone - I felt much the same at the same stage. I nearly pulled out of radiotherapy at the last minute. I got myself into a state about side effects, skin reactions, whether I was having the best form of treatment, and whether I really needed the boosters. I was also frustrated about not being allowed to go back to work until after radiotherapy. I am glad I went ahead with it now though, because it hasn’t been anything like as bad as I feared. So far skin effects have been minimal and fatigue isn’t too severe either at the moment. I know what you mean about the tattoos though. The middle one looks just like a huge blackhead in the middle of my chest!

 

JoJo - yes it was my last one yesterday, and it will soon be your turn for the bells too. I think the Sainsbury’s crop tops are definitely the most comfortable ones I have come across so far. I wear one over a cotton vest to go out instead of a bra - this was a brilliant idea of Corinna’s. The only really comfortable, soft cotton bra I have found is a Sumpuously Soft cotton rich one from M&S, but I only managed to get one in my size, and they seem to have discontinued them so I can’t get any more!

 

Corinna - hope the Easter break will give you chance to recover, as well as doing other ‘normal’ stuff.

 

Rooty - I think the tears and rants are part of the process of coming to terms with each new treatment. Once you start you find it isn’t so bad. Follow the advice on moisturising and drinking, ask for help at the first sign of trouble, and you should be OK.

 

Jacquie and Snail - hope you have a good weekend. As you’ve only just started you should be fine as long as you keep slapping the R2D2 cream on.

 

Have a great Easter break everyone, and hope those of you still having  a treatment will come through it without any problems. I will try and drop in from time to time to see how you are getting on.

Hi ladies just to say I hope you all have a good weekend, and thanks for being here. I have my third session on Easter Monday. I’m already pink and hoping this isn’t a bad sign. I have my R creams and am using religiously so fingers crossed.

Hi ladies, 

 

Sorry, I haven’t looked in or posted for a while.  Denial I think.  When I’m not in the car on the way to rads, having rads, in the car on the way back from rads, replying to everybody asking how rads are going, I don’t really want to think or talk about them much! I’m sure you all get it! 

 

However, the thought of four days off has cheered me up a bit and made me check in.  

 

I’m nine down and six to go! Bit pink and sore, specially under my arm and my nipple. Slapping on the cream! Bit of a dry cough and a bit nauseous the last couple of days.  They think I haven’t drunk enough, so I’m trying to up my water intake. 

 

Fortunately, rads have gone better this week, with the same team doing them most of the time, so set up hasn’t been so difficult.  That’s meant I’ve been calmer and found the breath holding easier.

 

i took my A team some Easter eggs on Thursday and they seemed really surprised and touched. 

 

Anyway, I’m really glad for those who have finished or are coming to the end of rads, and hope you’ve not had too many side effects.  For those, like me, who have got a few to go, we can do this! We are warriors! Maybe weary ones, but we are Warriors nonetheless! Lol!

 

Have a lovely Easter weekend everybody.  Blessings! Xxxxx

 

Hi all

 

 

  • I finished my radiotherapy about 10 days ago and so far no serious side effects.  I have very fair skin and have used Aloe Vera gel at least 3 times a day, sometimes 4 times, and am pink with a red nip and am experiencing tiredness sooner than I used to but otherwise ok.  For anyone concerned about this treatment I hope it reassures you and echoes other comments that the majority of people don’t have serious side effects.
  • I would like to share with you also that Macmillan run some pamper sessions where store beauticians volunteer their time, and cosmetic industry donate products for a goody bag, I am booked on one at my hospital where I had my radiotherapy next month.  It might be worth looking into as it will lift your spirits.  I am also booked on a Macmillan walk in a local park with a coffee and a natter afterwards.  Also my physio told me about 8 free sessions at a local sports centre for light circuit training type activity to get moving.  I have been referred by her for that too.
  • There are lots of other support services and activities out there for anyone who could benefit especially if you are struggling.  This site is also a great source of relevant information and support.

Do you think rads make you nauseous? I had 3 sessions this week and feel a bit off my food and sicky. Rads to right hand side. I’m a bit worried in case it’s the tamoxifen affecting my liver.