Hi Michelle I have no temperature just a massive lump in my throat and keep having to lie down. Just keeping up the mouthwash and salt water rinses. I don’t think there is anything to do but wait it out. Getting me a bit fed up now as I was looking forward to the weekend but it’s not all the time so trying! And eating all the ice lollies in the house
Oh you poor thing, as if we don’t have enough to contend with. Get rest and let your family look after you xx
You must be joking no one looks after me lol. Not that bad just waiting for my daughter to go out and leave me in peace. Am I moany? Sorry
Thanks ladies if it’s still the same Tuesday will ring. It’s not even stopping me from eating just feels uncomfortable. It’s exactly the same as the first time just lasting longer. I was hoping I’d feel great this weekend. Never mind. Was reading all your posts but trying not to comment as didn’t want to moan. On a brighter note my hair is bearing up and I’ve gone for the hairband look. Trying to colour coordinate too. I love suburban turbans but at school I will attract a lot of attention so I did a little research and found really wide silk and bamboo hairbands for £5.99 on jasmine silk. Daughters gone and partners away so finally got the house to myself for a few hours well cat and dog here. Decluttering a bit and then ice lollies in the garden. Thank you hope I’m the one feeling the worst today coz it isn’t that bad! ?
Glad you’ve got plans to ring if your throat’s not better. Moany can be useful to those suddenly on planet cancer. It was helpful to me to know that I wasn’t the only one having difficulties swallowing. This forum is great when I don’t want to burden friends who haven’t been through this.
I agree it’s easier to moan here than to family and sometimes there’s nothing like a good moan to make you feel better! X
Thanks guys I will continue to moan as needed. X Is it me or is it too hot! Lol Hope it stays like this half term I might book us a couple of days at the coast!
Good morning ladies, I hope today will be a good one for all and that those feeling the effects of the treatment more acutely this time will find they are starting to ease.
I’m so pleased we have here to share our concerns and moans and that this group set up ensures we see we’re often experiencing these things on a similar time line.
It sure was hot yesterday and I varied between loving it and wanting to swim in the ponds with the dog! I managed to stay on the sides tho…
Thanks for the food information, I really wasn’t every aware at all of some of that.
I read an interesting article in the guardian this morning that ties in well with what my onoc nurses have been keen to ensure I know, about how efficient exercise is easing the effects of chemo. I know we mentioned it earlier in this group but hope you don’t mind if I share?*
that studies in Australia have started to show that If exercise could be made into a pill, it would prescribed to every cancer patient in the world, according to researchers in Australia. The advice comes in a statement from the Clinical Oncology Society of Australia, which has launched a push to promote the benefits of patients keeping active. The lead author, Prof Prue Cormie from the Australian Catholic University, said the advice was based on “indisputable” evidence. “We know now that people who exercise regularly experience fewer and less severe treatment side-effects; cancer-related fatigue, mental distress, quality of life.”…
My onco nurse had actually told me that in the days when im just exhausted by the fatigue , even 5 deep squats on those days can be the difference to the experience next day, it doesn’t have to be a 5m walk or 1hr pilates every day which made me feel much better!
I appreciate that it is Each to their own journey but thought it might be of interest to share xx
Enjoy your day, I hope it’s a sunny as the one we’re waking up to in London 
?
Morning, me again… Sorry for the pre 9am barrage of comment but i wanted to ask if anyone else is experiencing shaking in their hands? It happened a few times yesterday evening and as I was making breakfast this morning my right hand started shaking quite strongly again. It stops shaking when I stop what I’m doing then my hand/arm feels a bit tired… Ive looked up and it is a known side effect but usually later in treatment. Thanks as ever. Fiona x
Good Morning
i haven’t had the shakes in my arm but i have had the odd shake in my leg. i hadn’t associated it with the chemo but it could be. there are a lot of odd one offs i have that i wonder about. i have noticed the odd drunk feeling a few days after chemo when i go for a walk and i feel i am not walking in a straight line. only lasts a few seconds and then back to normal until the following week.
i hadn’t been told about the exercise thing but it does make sense. i have always been active and the last few months i have had less time and energy to get to the gym but i do still walk everywhere. it does make me feel more invigorated even if i do need a rest/nap later in the day. It feels easier to do something in the morning and see how the body reacts to it later.
i have had problems sleeping but a lot of the time it relates to problems with my nose. I have slight bleeds that seem to clog it up a bit and even though the oncologist has told me to use vaseline on a cotton bud to keep the membranes in the nose from breaking it worries me. I need to blow my nose like a lady apparently not an elephant :) Has anyone else had anything similar? Lack of sleep over something so silly makes me very grouchy. Headache this morning not helping either. My day to moan i think…
Thanks for posting that article Fiona, it is right up my street! My Masters was in nutrition and physical activity. It’s not new to learn exercise gives mental health benefits but that it can actually improve side effects of treatment is amazing, a measurable physical benefit. I was surprised to find this was the first research led push for exercise to be included as part of treatment. I bet the study itself makes very interesting reading.
Glad you resisted jumping in the pond with the dog, not sure how the white bloods would cope with that!
X
Thanks Christine, it’s odd how we are impacted in similar but different ways but somehow reassuring in a strange way!
And please, moan away… I’m Sorry you’ve had a rubbish sleep, it really does seem to impact the whole day but maybe a nap in the afternoon might help? . I haven’t been having nose problems but have been using antihistamine spray because of hay-fever so maybe that’s helping.
I tend to wake with a headache on many days and have 2 paracetamol and a big drink of water and then go slow for 45 mins . The nurse suggested that it seems to be helping me anyway. I hope your day gets better Christine and maybe have this as a very slow day x
Michele, I pm’d you the full link if you’re interested, it has further research detail .
X
I forgot to mention I have had bits of blood in my nose when I blow, I asked my nurse and apparently that I normal.
I have also felt that my hands were a little shaky at time, not very noticeable, as if I’m a bit nervous.
There does seem to be a million little things that make up side effects doesn’t there?!
Hope everyone enjoyed the sunshine, my garden is looking less weedy and has some new flowers planted so hopefully i’ll be able to enjoy a beautiful display this summer. Another day ticked off! X
Morning everyone just to wish you a good day. My throat is better just sore lips now. Off to work and really looking forward to it but hope to get home early to chill on my favourite spot in the swing seat with an ice lolly. Have a good day x
That’s great news, Gigi… have a super day and enjoy that swing in the sun this afternoon x
Hi! How is everyone doing? I’ll be entering week 3 on Friday and feeling ok now so hopefully that should continue. Im finding all of this to be as much of a mental game as a physical one. Trying to keep myself occupied and distracted from thinking about it all, ticking the days off my many calendar counters. I’m sure it’s the same for all of us, it never really leaves my thoughts as much as I am positive, upbeat and strong! My lastest brainwave to distract myself is the cinema. Yesterday I took myself off for a mid afternoon showing of The Greatest Showman. I was surprised when the lad on the desk said there were 12 people there, however when I walked in I could only see 3 others, admittedly it was dark! At the age of 47 it was the first time I have ever been to the cinema on my own and I have to say it was enjoyable and almost felt naughty to be there when everyone else is working! I’m planning to see the Guernsey Literary and Potato Peel Pie Society next week, perhaps I could start a new career as a film critic?! Today I’ve had the electrician here all day. That’s another thing about having this it’s spurred me and my husband on to do all those jobs around the house we have been putting off. One of the jobs for the electrician was to fix two outdoor lights that haven’t worked for about 3 years. It was pretty embarrassing when he changed the bulb they worked straight away!
Well that’s all from me, another couple of days ticked off. Hope everyone is good x
Hi everyone thank you Fiona never made it to my lovely seat last night. We got the call at work and are currently in the middle of an Ofsted inspection. However am there tonight with my ever so delicious raspberry magnum. Fatigued but not defeated! Inspection continues tomorrow and then that’s my working week done! Good you are getting all those jobs done Michelle. My partner works shifts and he gets up at 4.45 for next two weeks so I get up with him and did a washing load and hung it out before work. All dry! Oh and I decided to cut my hair into a shorter bob and he laughed at me coz I couldn’t reach the back. Anyway he had a go and today I had so many complements! Didn’t spend a penny! Have a nice evening!
Strangely on the same page as Michelle. Today we had shutters put up on the windows in the lounge that have been on order since before i was diagnosed. all fitted and looks lovely now. a few more things need to be done to the house too.
Messaging a friend and she mentioned the importance of goals and i need to think beyond the treatment and i think that is a very good idea. set a plan for a holiday even if i can’t book it at present.
5th Taxol due friday so counting it down. I felt great after the last treatment but then crashed on the Monday completely. I have heard the tiredness gets worse and hoping it doesn’t get bad too quickly. Itchy arms the last day or so too.
Hope everyone is keeping well.
It does feel good to get those jobs done around the house doesnt it Christine? And I’m with you all the way on planning a holiday for post treatment. I’ve already been thinking of places to go but as treatment goes on my holiday plans get more exotic and last for longer!
How many chemo cycles are you having Christine? X
The plan is for 12 weeks of taxol but then i am due to have a mastectomy and diep reconstruction which will be a long recovery period…
I too have been looking for an exotic break and my wish is to go on a cruise which includes the amazon river. It takes plave in January next year so we will wait and see.