Good luck with chemo today Dorabel x
Wow that was certainly quite a sleep Gigi, and I notice you were up early this morning so obviously feeling more with it now and hopefully not feeling so low.
I went to Skomer Island yesterday with my husband to see the Puffins. We had some really up close views of them and they really are cute! I can’t believe after talking about it for years we have actually done it! We had a lovely day and although the thought of cancer and chemo are never far away I felt almost normal.
I have had a busy weekend going to dinner at friends on Friday and Saturday, Puffins on Sunday and today my husband is off so we are getting a few jobs done. It all helps the time pass more quickly.
This week is going to be a busy one too. I have a friend coming up to stay midweek but also have a few appts.
I have an ultrasound tom so they will hopefully give me instant feedback about whether the tumours have shrunk. I am excitied about this because I think it has even though I haven’t felt it. However I’m also nervous because what if after 3 rounds of chemo nothing has happened? I also want to know what they can see going on with the nodes as I know at least one is infected. I hope it’s not bad news.
I have also received an appt for a CT scan to check for spread but that appt is for Friday same day as chemo so I’ve rescheduled for the following Wednesday. I am nervous about that but I also think that I’ll have had 4 rounds of chemo by then will anything show up?!
How are everyone’s brows and lashes doing? I still have mine but wonder if they will go this cycle. Interestingly I felt my legs this morning and they felt a bit spikey and some people say their hair started to grow back when on Taxol/docetaxol. My hair is still falling out everyday and I joke with my family that soon I will just have 3 strands left but I still get away with it for now.
I hope chemo went well for you today Dorbel, let us know when you’re up to it. I hope everyone else is doing ok. X
Sorry didn’t mean to call you Dorbel, Dorabel! ?
Hi everyone.
Gygi it must be hard to deal with an active job aswell as deal with the tiredness and fog of chemo. last time round i did work but i had an office job and an employer that allowed me to work the hours i could. I liked the normality of it and it kept me going. Only you can tell what is best for you but i hope you can find a balance that works.
Sounds like a busy time for you Michelle. It never leaves our minds for long does it and the worried intrude on everyday life. Every result seems a big thing and can effect positivity and moods. All the best.
My mouth wash does say not to drink tea or coffee for an hour as it can stain your teeth and i did hear that it the mouthwash can weaken the enamel.
Hope you all have a good week and the wild life opportunities continue.
Thanks Jencat and Christine i did wonder if it is the mouthwash. Hopefully it is just a stain that can be removed when this is all over.
How are you doing Jencat? Are you done with Rafa yet? Is that the end of treatment for you? I hope everything is good with you and you are keeping well x
My typing is rubbish! Rads not Rafa!
Morning all good to know about the mouthwash going to read my one’s leaflet and avoid drinks near it. I am off work today & tomorrow. On antibiotics so staying home to make sure I rest. Will go back Thursday. Puffin trip sounds great Michelle. Good luck with the ultrasound. Going to try get back to sleep x
Thanks for your kind wishes, Michelle & Gygi. Chemo went as usual but I had problems with the take-home medication. The domperimone I’d agreed with the oncologist was missing. I rang the 24 hour hotline and got put on hold, bit of havering about whether I could get the pills from the hospital, put on hold then told to go to my GP. Rang GP & was told they didn’t do prescriptions over the phone. Eventually phoned by GP duty doctor who said domperimone prescription ok. Still waiting for this to arrive at the chemist’s so it’s lucky I have a few left over from last time. What would be a simple problem to solve had me weepy and shaking. Discovered a second anti-sickness medication was also missing. Don’t know if this was intentional or an oversight. Feeling sick.
I hope all goes well with the CT scan on Friday, Michelle. It’s horrible waiting for results, hoping for the best. My fingers are crossed that the tumours will have shrunk + no spread. Re hair loss, I’ve still got a patchy stubble on my head (after shaving). But I have got eyebrows & eyelashes though probably not for long.
I was told at chemist’s that OTC mouthwash can cause staining & wonder if it’s the same with the stuff they give us at the hospital. I use salt water instead unless my mouth is very sore. Glad I know now about avoiding tea & coffee too soon.
Hope it’s all going ok for everyone - not much fun but getting through.
Poor you Dorabel, that’s so awful for you! Hope it all gets sorted soon.Thinking of you x
Dorabel glad it got sorted. Your cement mixer metaphor hit home! These antibiotics are taking over my life lol. Have to have 4 a day 1hour before or 2 hours after food. Have had to set an alarm on my phone!!! Home again today. Think I need it but keen to go to work tomorrow. Hope you feel ok today Dorabel.Hope you had positive news Michelle x
Gigi I’m sure the rest is doing you good but I completely understand you wanting to get back to work, a bit of normality. Hope you get back tomorrow.
Dorabella, I have never seen an opera and hadn’t heard of that one, but lovely name and great choice of handle! Maybe that’s ‘another’ thing I should get on and do see an opera! What a nightmare for you with the meds. Glad it is sorted out and hope you feel better and better. I get the feeling feeble and agree it is part of this whole mess we find ourselves in. I was saying this week I feel so vulnerable which is something I would never have said about myself before and it doesn’t feel good.
Having said that today is not a vulnerable day but a feeling super strong day as I had my ultrasound yesterday and my tumours hive shrunk considerably and the cancer has been stoped in its tracks! I could not have hoped for better news. I also had a long chat about how many lymph nodes looked infected and it appears only one so I am far less nervous about the ct scan next week now. Oh the Relief!
Bring on cycle 4 on Friday!
That’s fantastic news Michelle! Congratulations x
That’s wonderful to hear Michele, so delighted for you! .
I had an ultrasound on Monday and was told the cancer is fragmenting but the same size so good news after 2 chemo cycles. It’s being discussed tomorrow though so will try to find out more on Friday.
Great News Michelle. Must be so good hearing that horrid chemo is working.
Sounds like it’s all heading in the right direction Linda, really pleased for you!
Thanks everyone! Now preparing myself for tom, back in the steroids. After tomi will be over the hump on the homeward straight and wondering what will be left of the tumours after another 3 chemo’s!
Pleased for you too Linda, hope you find out more after the meeting. The doc doing my ultrasound gave me all the new dimensions of the tumours but I was so pleased I forgot them as soon as I left the room!
How was your holiday Fiona? Hope you had a relaxing, fun time and got to see lots of cute Puffins!
Keep well everyone x
Hope it’s good news tomorrow Linda. Sounds like the tumour is responding to chemo as hoped.
Home straight - I like the sound of that, Michelle. For me, this 3rd chemo has been the worst yet but it’s receding now. Think I’ll do some online retail therapy for dark nail varnish in preparation for the docetaxel I’ll be getting for chemo 4. I’m going to ask for a list of the stuff that’s supposed to be in my carry-out bag so I can check before I leave the hospital.
I’m sure the doc will give you the dimensions of you tumour again. Great news that it’s shrunk.
We had a wonderful time, thanks Michelle. The weather was really great and Shetland was beautiful. It was fantastic seeing all the puffins in the cliffs and on Noss, which is a nature reserve, it was like being in a David Attenborough programme! I was a bit tired for the first day but as went into week 2 felt fine again and now going into week 3 we’re enjoying the unexpected sunshine in Glasgow… Hope it stays nice for our drive back to London on Tuesday and everyone is enjoying the lovely weather !
I’m trying not to think about starting on the new regime for now… It will come soon enough and me worrying about it won’t change how I respond to the Taxol!
Hope you are all having a good day x
Hi everyone how are we all today? I’m feeling very proud of myself just walked the dog. Also went out for the first time in 2018! Was back home by 9pm but it was lovely. I went to the cinema and saw On Chesil Beach. Also had a takeaway Indian last night: first since February. Energy levels up. Going to enjoy the weekend and next week before I start Docetaxel and Herceptin on the 18th. Then we will see how we go. Don’t know why I’m using the Royal we. Take care Gigi x