Unfortunately I had the terrible news today that my brain met has begun to regrow in the same spot. They will operate in the next couple of weeks. I am devestated and so so scared.
Louise
Louise I am so so sorry to read this. I can’t believe that only last week you were saying you hadn’t had a recurrence so far - but lived in fear of it. This wretched disease is so sneaky and vile. I do hope the op will be successful again for you - and a speedy recovery. Sending lots of hugs on the airwaves.
Dawn
xx
Louise, I am so sorry. You were trying to be positive for others, bless you, and now this.
Will be thinking of you and praying for you over the next few weeks.
Best wishes,
Jax
Hi Louise, just saw your post and cannot believe it. You must be absolutely gutted. I can understand how scared you are at the prospect of more neuro surgery but presumably they think it is a good option.
Will keep everything crossed for a smooth surgery and quick recovery. Please let us know how you are getting on when you feel up to it.
Sending lots of love
Paula X
HI all
I am waiting to have an MRI scan on my head this week and then an appointment with the Ocular Oncology team in Liverpool next Monday.
It all started with difficulty in focusing on things with my left eye, like there is a smudge on the lens. I saw my optician on 15th September and he referred me to the Hospital. Saw the Consultant on 4th October and now to Liverpool on the 18th. The consultant can see a ‘lesion’ blocking the light getting to my retina. My eye aches and seems to be ‘closing up’ in comparison to my other. So, not a happy ‘teddy’ at the moment!
I have not seen anyone mention much about the symptoms of brain mets. Can anyone tell me if they have had a similar experience or know anyone who has had problems with tumour/s in their eyes?
As you will appreciate, my ‘brave face’ is taking a bit of a bashing at the moment! But I have taken comfort from the good news stories on here and hope that I will be able to become one of them.
Sue x
Hi Susie
I thought I’d let you know that my next door neighbour had exactly the same (and was referred to Liverpool, from Clatterbridge! as they have the specialism for eyes apparently.)
Now I know he is a man and prostate cancer is different to BC, but the point I want to get across is that it was NOT a symptom of brain mets, but a metastasis, apparently rare, in it’s own right.
He had his successfully treated with radiotherapy and is now ‘cured’ as far as the eyes go, but does still have bone mets!
Possibly this is the case for you too, I am really wishing that you can be a good news story too! Try to keep up your brave face and hope it’s back to normal asap
Nicola xx
Yes I too know 3 women who have had mets to their eyes…it’s not common but it’s definitely an area you can find bc mets. And they had eye not brain mets. Take Care Sue…x
HI Belinda and Nicola
Thanks for the information that has made me feel a lot better, I had started to make the assumption that it must be in my brain as well! So, I will plaster the brave face back on and try not to eat too much chocolate before Monday!
You are stars****************
Sue x
Hi Sue
Sorry to hear about your eye but I see you’ve had some really positive feedback from Belinda and Nicky. I hope your eye is easily treated (well, I say easily but you know what I mean!). Good Luck on Monday, fingers crossed for you.
Nicky xx
Hi Nicky and everyone
As you can see by the time I am posting I am having ‘one of those nights!’ My good friend Nicky died yesterday after eight years of treatment for secondaries. She leaves behind a loving husband, 10 year old son and a lot of friends who will miss her dreadfully. She had radiotherapy for brain mets mid 2009 and has been an inspiration to me since my primary diagnosis in 2007. This awful disease has finally overwhelmed her.
So here I am, not able to sleep, but not able to cry either.
I am trying to make sure I do something ‘nice’ every day. I will just try and keep it up and try not look too far ahead.
Hugs to you all
Sue x
Hi SusieV and everyone,
I have recently been diagnosed w mets in my liver/stomach after having treatment for bone mets for 6 months and I too have pain behind my right eye, it gets very watery and tired and I want to close it after a spell of reading or watching tv. I pointed it out to my consultant on Tuesday and I am now waiting for a scan of my head. So I wil be following your thread to see what happens nxt and will let you know how I get on too. Take care and good luck! Beatrice.x
Hi Susie
Sorry to barge in on this thread but I just wnated to offer you some reassurance. In a past life I worked in ocular oncology. The team at Clatterbridge are renowned for their excellence and although I can’t comment on any treatment they might offer you (my previous knowledge will be way out of date) I can reassure you that the eye (retina) is a known site for breast metastases and it is totally unrelated to brain mets. Just because you have an eye metastases (if that’s what it is) then it doesn’t mean it would be in your brain as well.
Hope this helps and good luck with it all xxxxxx
Thank you, thank you, thank you, eal69eal that is just the sort of information I need to hear at the moment.
I have had my MRI scan yesterday and now have a CD of my brains/head in my handbag! I will let you know what happens. I have a hectic social weekend organised - I am going to have fun.
Thanks again
Sue xx
Hi all
Just wanted to say that I am home after my brain op on Tuesday and feeling fairly good. still have big bandage all around head but no seroids soslept like a baby last night. will have rads in about a month. Thinking of you Sue as I know it is very frightening.
Louise
Hi all,
Just wanted to know from anyone who has had rads for brain mets. I’m due to have 5 focused sessions to the base of my brain and wanted to know what side effects people have experienced.
Louise
Hi Louise - I’ve read some of your postings before. I don’t usually butt in on the secondaries threads as I’ve only had primary bc. My niece recently had whole brain rads though. She sailed through the treatment initially, but a few weeks after the end of the rads she has been suffering from tiredness, dizziness and some visual disturbances. She recently started another chemo tablet for her liver so she was putting the extreme tiredness down to those but her onc said it was probably a delayed reaction from the rads. It does cause some inflammation in the brain initially hence the symptoms. You may not experience the same SE’s of course. Good luck with the treatment.
alex
xx
Evening all
Well, a successful day I think. Yes, it is a breast cancer met in my eye but I am told that it should ‘melt’ away successfully with some radiotherapy. I have started another thread with just this information on it in case it is useful to others. Thanks for all your help and support on this thread.
Meanwhile, I await the analysis of my head MRI scan that was done last week, it was not needed today so I have that to ‘look forward to’!!!
Best wishes to you all and Val, have a fab time in France!
Sue V
Hi Sue,
I held my breath this morning as I saw your post and I don’t know whether to be pleased for you or not. You put it so well in your post before you went about how you knew that there would be no happy ending. I know it takes some time to get your head around it but I wish you all the strength you need to go through the treatment.
Thinking of you
Louise
Hi Sue
I read your other post as well and although I’m really sorry to hear you have to deal with this latest mets I am glad that it seems to be a fairly straightforward and quick treatment. I also had never heard of mets to the eye so it is another thing to be aware of. I did have an opticians appointment last week and must admit I was holding my breath when he peered for a very long time into my eyes - not romantically LOL
Take care and I hope the MRI results are as clear as day 
Nicky xx
Hi SusieV,
Just been reading your new thread re mets in the eye; my MRI scan is on Thursday so with your post and from what my onc said I am not quite as worried; he too says they are “easily” zapped w radiotherapy and I am fairly sure, even without a scan,(self diagnosis!) that we are dealing w mets in my case too.Just another thing to deal with in a long (endless?) line of matters to be tackled…
Wil let you know how it goes 'though may not have the result ‘till I go for my chemo in two weeks’ time.Keep you chin up- I and lots of others are thinking of you. With lotsaluv. Beatrice.xx