Arm issues after nodes removal

Is it normal that your arm would still be in a non functioning mode after 12 weeks plus.

The top hurts I try exercises on your leaflet and others. 

I’m going backwards not forward. People think I’ve I’ve had a stroke or broke my arm when they see me. Cos I haven’t told many about the cancer.

I need my right arm working asap I don’t know what to do 

Had two physiotherapy sessions and more exercises. 

Dear Carine-Lou,

What a terrible time you’re having at the moment, pain is what we don’t want.

I think if this was me I would contact my Breast Cancer Nurse immediately and asked to see your consultant as this is pulling you down and make you very uncomfortable and miserable, which is not help in your recovery.

You been through enough and now you need to move forward. Wishing you well going forward with lots of health and happiness ahead.

big hugs Tili :rainbow: :rainbow:

Hi Carine-Lou 

Thank you for your post. 

Following breast and lymph node surgery many people experience pain, numbness and a burning sensation. This is a result of temporary damage to the minor nerves under the arm and scar area and it can be normal for the arm to hurt and not move as well as it used to.  This can last for some time and, as you mention, carrying out arm exercises and having physiotherapy should help you to regain arm and shoulder movement. Muscles seize up very quickly if they’re not used, so it’s important to do these exercises as part of your daily routine and hopefully the pain and arm movement should improve over time. 

As @Tili says we would always suggest you contact your breast care nurse or treatment team to discuss your symptoms.  They can talk through your arm movement, advise on pain relief and may be able to offer you a clinical review. 

You may also find the Breast Cancer Physio videos helpful. 

We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in including our Someone Like Me service where you can talk to someone who has had a similar experience. 

We are currently evaluating this service and would appreciate your feedback. Please click here to the survey. It should take approximately 10 minutes to complete.  

Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen to your concerns, talk things through and signpost you to more support and information. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001). 

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Best wishes 


Breast Care Nurse 

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