Hi everyone
My day was today… because of this forum i was well and truly prepared so thank you to you all.
I’m not feeling too bad I think! I actually don’t know how I feel but know I don’t feel right… feeling a little heady or fuzzy, very strange sensation… but overall I am doing OK. Brought a pharmacy home with me to get me through the next few weeks… the nurses were amazing and my whole experience was a very positive one.
Big hugs to us all going through the same, and thank you all 
Xx
Hi all fellow August chemo starters,
I have been quiet as I have yet another infection, following mascecetomy. Went to start chemo but no picc line so as my veins are bad they delayed starting it for a week. A quick moan and lots of tears with fear picc line put in. Had my first cycle of gem/carbo, so different from some of you on Tuesday. Felt really nausous but unlike some of you have eaten food, small but often and with great effort. Steroids kept me awake and today I am so tired. A real effort to sit in the garden and have a green tea. Dazed, feel like a bad hangover without any fun. Also lots of randomn tears so hormones must be feeling it today. Back on Tuesday for next one.
Advice has been so useful so thank you. I have 11 chemo hits left, 5 cycles left.
Big hugs to you all
Arnie x
Hello to everyone
I’m sorry I think I am going to have a moan today… I had my first FECT on Thursday all going well however now on the steroids which I finish today… I’m not sleeping very well as im so tired, I’m constipated too which my stomach is hurting so much I’m trying peppermint tea and all bran to see if that works.
I had the marina coil taken out as advised but now I’m having to deal with periods, my emotions are all over the place and very very tearful. Its driving me mad as I usually just get on with it and no doubt driving my family mad. Sorry for moaning guys.
I start the immune boost injections tomorrow so I’m so hoping that will help my moods and emotions and give me the lift, goodness I’m crying as I write this…
Hope everyone is holding up and hugs to you all
Julie xx
Julie - Just to reiterate what Belle said about the Ondansetron causing constipation. Constipation is awful! On my first cycle I had to get the emergency GP out to the house to give me an enema. For the second cycle I kept on top of the constipation by taking Fybogel and Lactulose and switching my ondansetron for cyclizine. My pattern on my TC chemo regime seems to be constipation for the first week followed by loose stools the following two weeks, it can be hard trying to find a balance.
Re: periods, pfft! I thought they were supposed to stop during chemo? After chemo one I got my period a few days early, it was heavier than usual and lasted longer as well. Thought that mine be my last one, NO, woke up this morning to another period a few days late this time.
Blueash - Again, what Belle said about omeprazole or other Proton Pump Inhibitor.
Please don’t apologise for moaning ladies, I had a moan on the July starters thread the other day. It can be strangely comforting to know that you’re not alone in suffering horrible side effects from chemo. We’re all here to support each other.
Best Wishes
Hazel. x
Hi Haz25a. I’m starting chemo tomorrow on the same chemo as you and having 4 cycles. I’m not cold capping either, how have you found it? I’m having my first herceptin the day after xx
Thank you for letting me know how you get on. Just want to get the 1st one over with so I know what I’m dealing with. It’s all the unknown isn’t it. I will let you know how I get on xxx
Hi Arnie you are right, am back home after first TC chemo, all went well am back tomorrow for first herceptin injection but after that will have it on chemo day. I feel fine but feels a bit strange waiting to feel not so good and not knowing when it will happen. Does everyone feel like this? xxx
Hiya everyone,
Where do I start!..thank you for all the tips on constipation oh my goodness I never want to experience the severe pain and torture again, I truly believe I am scarred by this constipation ordeal… although I now have all bran for breakfast followed by prunes and prunes all the way… (Thank you Belle) I contacted the hospital and I was given laxido. Feeling sore but so much better if you know what I mean. Last night I felt absolutely great getting over the above ordeal and then this morning I couldn’t move a muscle my actual skin on my bones hurt to the touch not sure if it has anything to do with the injections I have to give myself but one positive I slept like a baby. Feeling better as the day goes on but just so tired.
My hugs and thoughts are with every one of you going through this ordeal…we are walking through this together helping each other with every step… thank you for being there!
Julie xx
Hi there everyone
Had my first of 6 Fec T H on Monday.
All went ok was not as bad as I imagined.
Unfortunately 4 hours later I was grey, very sick and had to use the help line number they gave me.
They were very helpfull, and called me back to say I should go to my local A+E. I was taken through straight away. I have been kept in for 2 nights to have iv fluids and antisickness drugs. Hoping to get home today as I do feel allot more settled now.
Not what I expected so quickly, but good to know they are there to help fast.
Hope you are all doing ok.
I do read all the posts, as they can be very helpfull.
Hugs V x
Hi everyone, I am now on day 5 after 1st chemo, yesterday was my worse as sick meds finished and felt so bad achey and then weepy etc etc, but then read through my med sheet and it said I could take one of them as and when, yeh, but I still had a terrible sleepless night, so hoping for better tonight, had one of them tired nothing days today feeling just a bit wiped out, everything is just too much effort, Am having so many negative thoughts, shall I throw in the towel, as having chemo is my choice as as my lumpectomy and lympth are clear, but my oncotype dx test puts me intermediate risk for recurrence, it is something I will have to give thought to, but I am hoping I will be able to percervere ! Deb
Well that’s my first herceptin done, no reactions thankfully but a long 6 hours observation. All done now and feeling good so far after 1st chemo yesterday - long may it continue although fully aware it probably won’t xx
Hello Everyone. I’m just posting because I’ve got this overwhelming fear and I haven’t even started chemo yet. I just need to write it and get it out of my head and on the screen.
The Diagnosis, lumpectomy and positive lymph node diagnosis were all ok for me to deal with but I am about to start chemo on Monday and for the last two weeks I’ve been just on edge and eating a lot of chocolate which prob doesn’t help.
Chemo totally and absolutely terrifies me and reading everyone’s experiences helps so much to normalise things. I’ll post my experience as I go through too in the hope that it does the same for someone else. I’m scared of losing my mind, my hair, my body shape, my job, my oh my oh my… I will have to see if any of that happens…
I was going to start FEC but I did the trial and I’m less high risk so
I will be having AC. Is that something anyone else is having?
I wish everyone well and lots of love xxx
Hi Maggie Dot. I started chemo last Tuesday I am on the TC regime together with Herceptin. The actual chemo isn’t anything to worry about and so far the only problems I’ve had is my bones hurt, heartburn and constipation. It’s early days for me but we are all fighters after getting this diagnosis so it doesn’t stand a chance. I also had lumpectomy with no node involvement xxx
Thank you Seaview 69… just two more sleeps! Or non sleeps. Ive just seen that you posted b4 your first chemo too about it all being the unknown and i agree… that’s exactly right. I think that’s what causes the imagination to run riot! many thanks for replying Xxx
Hi Maggie Dot how are you getting on after your chemo, have been thinking about you? I’m now on Day 8 and feeling good apart from a bout of ? Which isn’t great. I hope you are ok xxx
Hi Seaview 69 and everyone.
I had my first Fec last monday, se seem to be settling down . Started taking Laxido drinks yesterday which is now helping with constipation pains. Yey. I was taking senokot every night before, but I think it made me feel worse with the stomach cramps.so sticking with Laxido from now on.
My hair is still here but scalp a bit itchy. I am just trying to decide when to go for the chop. I have always had long hair so it is going to be quite a change to get used to. Have just ordered more scarves from amazon.
Hugs V x
Hi all , great to read everyones experiences really helps i have my 2nd fec on thursday but can anyone advise what they have been taking for heartburn ? its not something i have had so severely before , thanks xx
Hi Tracey fizz
I have been using Gaviscon tablets . But if you are having alot of bother I would call my GP for advice on something stronger.
X
Hi,
Just popped into the thread.
I was given Lansoprazole. Works a treat for me. Perhaps ask for it?
Hugs
Sue x
Hi everyone
12 days post chemo and for the last couple of days I feel as though I am back to my normal self just about. Suffered terribly with constipation the first few days and then aches and pains in my bones for a day or two. I am also taking laxido and finding that it really helps just wish I had had it before the horrific experience…not nice!
I am also using Belle’s tips for constipation so lots of prunes through the day and all bran for breakfast as well as lots and lots of water and fruit
The injection I had to self inject are GCSF bone marrow and white cell I believe, sat I had awful pains in my lower back and groin which impacted on my mobility I found out after calling the bleep number that this is a side effect. My next chemo is 1st Sept and feel I am even more prepared now having experienced one session and all gaining all your tips and support but saying that every day has been different and I’m sure next session will be too.
I hope you are doing well and I am sending you lots and lots of (((hugs))).