Hi All
Just wanted to share with you my new comfie wear around the house and bed wig. The hair is attached to a fabric hair band, I got it through the post today and am happy to use as an alternative to my scarves.
I have a slightly more glam wig for out and about, which is not so comfortable. But I do like to have alternatives to suit my mood.
Hello ladies,
I’m New to the forum, so apologies if I don’t get it quite right.
I’m on my third dose of t- not sure what it stands for. I was allergic to two rounds of fec so they had to stop giving me it. My bladder has been going crazy ever since- I’m up in the night at least three times, and that’s not normal for me! Does anyone else have the same problem? I’m not experiencing any pain, just an absolute need for the loo!
Hi Lowie
And big welcome to the August starters. ?
Sorry to hear you have had to have your fec part stopped. How many did you get? And have they now decided to start you on the T part?
I had my 3rd fec on Mo day there. I have not had problems with my bladder but through advice on this forum, I have drunk at least 2 pints of water the day before and 2 days after chemo to flush the toxins out my bladder/ kidneys. So I do run to the loo more during that time but no infection as yet?
I had my fec delayed for my second dose. I also had it reduced by 15% for second and third because my white blood cells took a bit longer to recover.
I also will be starting on the T part for my next round, so it feels like starting all over with what to expect side effects wise.
Please keep posting, it’s a good place to find out information / support / laughs from others going through the same.
Hi august ladies after being in hospital for a couple of days with an infection last cycle i seem to have been reletively ok this one just very lathargic , i did have anti biotics after my steroids stopped so i think that really helped. So after a delayed fec i am now starting on the T part on weds and herceptin thursday , to say im dreading it is an understatement . Hope everyone doesnt have too many problems x
Hi Blueash
I suppose you must feel a sort of relief number 4 is not going ahead after the way you have been feeling recently. Was it 4 you were initially going to have?
I hAve had x3 fec so far at a reduced dose and will be starting the T next round with herceptin. x3. If all goes to plan.
Funny how our chemos are all so different from Types and how regular we have it. But I have been told it could all change and that it happens all the time.
Keep intouch and let us all know how you are doing, even if it is for a good rant.
Vxxx
Hi
If your blood counts are that low- it might be an idea, when talking to your bc nurse - to ask for a blood transfusion to help it come back up?
Hugs
Sue xx
Hope everyone holding up well, goodness we are all a brave strong bunch…
Well I had my first T on 13th October, I can honestly say I have never experienced so much pain and upset… first couple of days not too bad but by the Sunday I was in so much pain I couldn’t even walk, I was having to crawl along everywhere or literally be helped and supported. By the Monday I could take no more I was literally in and out of conciousness and I was taken to hospital were they monitored me and eventually placed me on morphine and more to take home. On the FEC I found after 4 or 5 days I was back to my old self but this time it has been 9 days of torture. I and my family were so scared, I didn’t think it was going to end… so many low points and many tears…
The aches and pains, numb sore feet and hands, itchy skin, sore mouth feeling spaced out and terrible taste in my mouth, I now know I got off very lightly with the FEC. I understand we all react differently but I was not truly prepared at all but I will be for the 3rd November.
I still have most of the above but no where near as severe thank goodness and very manageable now.
I want to send hugs and love to us all who are having to endure this and yes we are very strong and brave.
Gosh , Julie,
You have had a really tough time of it. How awful. My oncologist said some describe it as being hit by a bus , but it will only last a week!! Easy for her to say.
I was also told if my se were really bad I could be put on a weekly dose.
I am having mine on Monday first thing with herseption. I am to be in the chemo unit for 6 hours incase of a reaction. Lunch is on them ?.
Are they puting anything in place for your next one to ease the reactions? Do you have any advice on how to get through this?
Sending you lots of hugs and sympathy
Vx ???
Hi Julie, Tracey and Seesee,
We are all in the same boat , and ohh it’s so bad. The pain excruciating everywhere , sweating , swollen neck front even at back. puffed up face. Sore ears , throat. It is quite scary for me and my family to see. I just don’t recognise myself.
It started on wednesday . I had gp out on Friday and got some solpadol and oramorph . It hardly touches the pain. Not sure what else there is that could help. Not been out of bed yet. Don’t think I can take much more of the pain.
Do you think it will be the same for next rounds?
Feeling sorry for myself today. it is so hard.
Love and strength to you lovely ladies
Vxxx
I’ve popped over from the June thread, I always have a read of the other threads & after seeing all your posts I am crying for you all ?.
I have been exactly where you all are with T & what a horrible place to be…but you can do it. I, like you, have never been so ill in my life and it’s bloody frightening. I had my dose reduced for the 2nd & 3rd T and it wasn’t as bad as the 1st. So I’m sure once onc knows how bad you are the dose will probably be reduced as this seems to be the norm.
Remember why you are doing this and be strong…you are all wonderful.
Hi all you brilliant ladies ??I’ve got one more fec to do and then it’s the T treatment …I’m pretty scared to be honest but then I think my first fec was horrendous but I got through it so I need to hold my head high grim and bare and deal with it …half way there ladies we can stand up to this little hindrance ???xx
Hi everyone
Thanks for the posts of support for us right now. IT does help to know we will get through this. ?
Well I kept drifting in and out of sleep yesterday and then in early hours started to have severe stomach cramps and thought I was going to pass out on the loo. I called the 24hr help line and have now been admitted with an infection. Don’t know where the infection is.
So glad I called them now. Because at the time I just wanted to curl up in my bed and did not want to face the journey to a&e .
I was taking the Claritin. But unfortunately I don’t think my luck was in this round.
I will be looking out to see how we all get on in next few days. Hopefully that’s the worst over.?
Hugs to us all?xxxx
I had my first T on Wednesday. I ache all over; my arm from the problem that required the PICC line is sore; my neck and ears ache; I have no appetite and my mouth feels awful. Doing anything other than sitting or sleeping is too much for me. Don’t remember feeling this bad for a very long time ?
I have just been reading the August threads for the first time and I am quite shocked and dismayed by it all. I am getting cycle 3 FEC tomorrow and was delighted to be able to say I am now half way through this.
Now I am realising that it is just going to get even worse. I have had bad nausea problems and have been extremely tired.
Are you all having such a rough time on the T cycles? Has anyone advice on how to prepare for the first one please? I see the advice on taking Claritin - is that for people who have hayfever problems normally? I don’t.
Hi Aine + benno,
I also read other months posts to catch any tips I can , please dont panic too much, we are half way and that seemed like it would be a marathon but afew weeks ago ? I had 3 fec and my first t and h was on Monday there. All I can say to you is what my oncologist said at the start, everyone reacts differently. Same as the fec part. Some better than others.
And if you were to to feel bad , you have to keep your team fully informed to let them get you through as best as possible, without waiting around.
I did have my fec reduced by second dose. And kept miles better on 2 and 3. I don’t know yet what they will suggest for the last 2 T but I am sure they will tweek something to make it more manageable for next time.
xx