Hi everyone
I had my first T yesterday… yay! I had it at last. Only 75%, with only 50% steroids…
They gave me chlorphenamine, also known as piriton, to take up to 3 times a day. I called to ask them which symptoms it helped with… nurse I spoke to didn’t know, but will get back to me.
So so far no achey legs or fatigue as it is only day 2, but my eyes are hurting a bit and I have a flushed face which is getting a bit hot and itchy…
any clues Ladies?
Thank you so much xxx
Georgie xx
Thanks Jo,
Got same advice from hotline so spot on!!
Georgie xx
Hi Lovely Ladies,
On Friday I started Herceptin and had my second T (Paclitaxol), so far I haven’t suffered with SEs other than a slightly flushed face, some mild aches and pains and general tiredness……phew!
Georgie – glad you started T, hope you stay on track now.
Jude – have you started on bisphosphonates yet? How are you getting on?
Hope everyone is doing well and SEs not causing too many issues - take care!
Cat x
Hi Cat
Well done, you are doing really well on this latest treatment with no heavy side effects. Long may it continue!
I’ve had my blood tests today & although my Hb is a little low at 9.8? May account for being a little more breathless than normal? I’m ok for herceptin & chemo (reduced dosage) tomorrow
I don’t think I’ll be starting the bisphosphonates until after the chemo - I’ve an appointment with the oncologist 27/11, so may know more then. When do you start yours?
Hope everyone else is doing ok - love to all
Take care
Jude x
Hi Jude,
My next appt with Oncologist is 31st October so will learn more about the Bisphosphanstes then.
Hope tomorrow goes well!
Take care all
Cat x
Thanks Cat - sleep well x
Hi Ladies
Had herceptin & t chemo (st 75% of original dosage) today & all went well - at the moment feeling fine.
Neuts are up to a massive 6.97 but hb at little low at 9.8 - try to increase with diet
So in theory I should cruise this cycle!
Just injections & bone pain to come ?
Hope you are ok
Jude x
Hello all
Question for you. I’m between my 4th and 5th cycles of EC and over the last week or so I’ve noticed that the hair on my head appears to be coming back. Has anyone else noticed this? Just wondering if it’s a blip or if I can expect it to continue?
Thanks in anticipation
Sue xx
Thanks Jo - sounds like you are doing ok on this cycle so far - let’s hope it stays that way!
Sorry Sue - my regime is 3 x EC & 3 x T ( just had 2nd T) but no hair growth fur me 
. However a lady on the same treatment & cycle as me said yesterday that her hair was starting to grow although not very evenly. Hope your hair is coming back!
Take care
Jude x
Hi Jo
My eyelashes have lost the fight! I can’t even wear mascara anymore - sad days!
Eyebrows have thinned a lot but still hanging in there - at the minute!
Jude x
Hi Jude and Jo, glad to hear treatment going well ?
Hi Sue, I had 3 x FEC and I’ve had 2 of 7 T but no sign of my hair coming back yet. Another lady on similar regime as me said her hair started to grow back a few weeks in to T so sounds like we are all going to be bit different. Good luck! ?
My eyelashes and eyebrows are just about hanging in there but lost about 60-70% so far…hoping not to lose any more!
Does anyone else have a sore nose? Mine started to get sore over last few days, had a light nose bleed too. Any suggestions?
Take care all ?
Xxx
Hello Cat
Is your nose dry inside?? I had a problem last winter / early spring with dryness and bleeding and put it down to being indoors lots with heating on. The pharmacist agreed and recommended a water based nasal spray and this worked a treat.
Re hair it does sound as if we will all be different. I’ve managed to hang onto other hairs (legs, armpits, eyebrows and lashes) though everything has thinned out considerably and it wouldn’t surprise me if I lost it all. At the point at which I shaved my head I still had some hairs but not much so I’ve now got about a centimetre or so of spiky stuff and then what my OH describes as ‘patchy bum fluff’ over the rest of my head !!!
Hi Ladies,
So here I sit again in Acute Assessment Unit of hospital.
Was admitted yesterday after raging sore throat accompanying oral thrush. Temp was up to 38.2 so couldn’t keep grinnng and bearing it… joint pain terrible still.
I am wondering what to do about my future chemo. 75% of the dose I needed has still impacted with the sepsis again, and next was supposed to be 50% if this happened.
Have a chat with my oncologist coming up next week. She has said that it’s a case of weighing up which course of action is less life threatening.
So so many thoughts whizzing around.
All the the best to everyone.
Georgie xx
Hi Cat
I had a very runny nose last cycle & had 4 quite heavy nosebleeds - 3 of them when I was in hospital for the 2 days. No-one seemed that concerned as my platelets were ok - do you know your platelet count?
Georgie - you poor thing - it’s no fun but you are in the best place - presumably you’ll be pumped full if antibiotics. It’s a shame that this latest problem has occurred on the reduced dosage, you might have to drop to 50% next time - on the plus side I suppose you know it is working! Hope you start to feel better soon
Take care all
Jude x
Hi Jude & Sue,
Thanks for the advice. My nose is very dry inside and runny at same time! I was at the hospital today for my blood test and nurse said my platelet counts were fine which is good.
Hi Georgie,
Oh no! So sorry to hear that, you are really going through the mill! Maybe reducing to 50% will do the trick. Either way I hope you get it sorted and you get home very soon.
Take care all ?
Cat
Xxx
Good news on your platelet count Cat - I just remembered that one of the nurses had said as you lose your nasal hair as well, it does make your nose dry, sore & runny!
My eyes have started running a little as well in the last day or so, presumably because of the lack of eyelashes! What joy! x
Hi Ladies
Hope you are ok all - Georgie, hope you are home!
Quick update on my latest T cycle - was doing really well up to yesterday when I started with the runs (sorry too much info!) & this continued into this morning, had to resort to Imodium. Just starting to feel ok now but dreadfully tired. Good news is not too much bone pain this time - just a bit of backache.
Take care
Jude x
Hi Jude, I also had the runs on each T cycle. Constipation for the first week the boom!!! Imodium helped, and Macrogol with the other. T also left me very fatigued. Good for very little, so take it easy and conserve your energy!! Kx
Hi Lovely Ladies,
I had my 3rd weekly T (Paclitaxol) on Friday and feeling okay so far…just 6 more to go!
Jude, Jo, Ktk, Whilst we’re all sharing ? I have been suffering with constipation too ?..not had the other end of spectrum yet.
Also just to let you know I asked nurse about my sore nose and she suggested using cotton bud to apply Vaseline.
Georgie, hope you’re feeling better now.
Take care everyone,
Cat xxx
Hi Jo & K
I have to say the tiredness is quite overwhelming - my oncologist says it’s cumulative so the last cycle could be heavy! I’m still suffering with the runs but hopefully it will start to ease soon
Take care all
Jude x