Morning
Hope Fran & Georgie have been ok overnight and you have both been tucked up in your own beds!
Day 8 -First night for me where I wasn’t wandering at 3 am …hurray!
Did feel the need to sort out my freezer at 6.30am though-what is that all about?
hope you ladies have a good day today
A xx
Hi Ladies,
Yes you were all right about last night in that I should have called in about my temp and today I am packing an emergency bag ready to take with me if it should happen again.
I think I just panicked about the consequences and possible false alarm - sadly our local hospital is always full and… I will go if there is a next time. Glad you are home Fran. Did they give you antibiotics?
Morning ladies,
Been quiet but been following your posts and your trials. Its hard isnt it.
Been sleeping very bad which has compounded the exhaustion. Think that first night really knocked me out and set the scene for the week. I’ve arranged to see the oncologist next week to see what we can change next time.
At the moment I am suffereing from somach cramps at points through the day. I’ve left a message with the onc nurse to call me but wondered if you had any tips? Nausea has lessened massively, its the tummy ache now, like bad period cramps. Loose bowels but not diarrhoea (god! Am I really sharing this ?)
Hope everyones day is an improving one ??
Hi Multitasker
Sounds like we are suffering from the similar side effects. Lack of sleep is making me weepy and the gut issues are horrible. I’ve realised that my worst gut problems are caused by filgrastim injections. I get A frequent and uncomfortable urge to “go” and loose stool. TMI! ? It starts the day after my first injections, which is five days post chemo, just as the chemo side effects are tailing off. I understand the need for the filgrastim, but dread having to take it. The bone ache this time was awful.
Sending best wishes for sleep and a settled tum.
Jacq x
Hi Jacqui those symptoms sound really familiar. Sudden urge to go and need to get there quickly! Take codeine for the bone ache. My GP recommended taking it before the pain started!
Georgie, you are naughty! Don’t you think that ‘they’ have invested all this money in treating you and do not want to see that wasted by you not looking after yourself and following advice to call them if your temp rises? Having said that I know exactly where you are coming from. It is in our nature not to make a fuss, but now you need to be selfish and look after yourself!!
I went to see MamaMia2 with my daughter yesterday. It is a great feel good film, but take your tissues because the christening scene will make you cry!!
Have a nice cool day. Look after yourselves Kxx
Woo hoo. First solo trip out today post chemo. Went to Tesco (yes I know you are all jealous). I managed to put makeup on and everything, didn’t get lost, got everything on the list and even remembered a few things we needed that hadn’t made it to the list. Ready for a nap now though ???
All tests came back ‘normal’ last night so was discharged home, antibiotics not required altho they have referred me to an ambulatory clinic, just waiting for them to contact me with details, like i don’t have enough bloomin commitments thanks to the BCC!
1st chemo was 1st Aug so I was expecting to feel more like myself by now but everyday seems to bring something new trying to drag me down, today it’s sore throat, mouth ulcers and a pounding heart if I try and do anything, will this never end??? Actually sod that, I’m out for a meal with friends tomorrow and expecting a good old laugh, the SEs can do one for an evening lol
Early night tonight, clean bedding on the bed, can’t wait haha, it’s the little things…
Georgie how’s yr temp today?
Fran x
Hi ladies. I hope you are all coping ok with the side effect. Take it easy and relax when you need to. Don’t overdo it on your first cycle.
Sleeping can be tricky especially if you still have steroids racing round your system. It should call down after a few days. Get those afternoon naps in to keep you going.
X
Temp is more controlled thanks Fran…
I have been taking more notice today. And I will go if necessary.
Have sore throat and mouth too and the nausea isn’t really going away. Can’t imagine eating a normal meal.
My GP is supposed to be calling tomorrow - just want them to be aware and responsive to any needs I have that the hospital won’t cover. They say GP should provide sleeping stuff (which I was on before since diagnosis) but GP says not to call them for things. It’s all very political. I had called GP on Monday for advice but they said that the earliest a doctor could even speak to me was tomorrow… there’s something wrong!
Just wondering as well, what do people use for thermometers? I bought a digital one you put in your ear, but am thinking I might get a no contact one you just zap yourself with? My ears are a bit sore using the ear one all the time, and the readings differ from one ear to the other?..
Hi Ladies
Fran - I’m on day 11 & it’s being my best day since chemo - so things will improve for you soon
GG - I bought a digital in ear thermometer but I’ve not used it that much so it hasn’t made my ear sore - I bought it because it had the best reviews ?
SB - my first trip out was Morrison’s - exciting lives we are now living!
AMB - I’m just starting to lose a few extra hairs & my scalp is very itchy!
Sleep well all
Jude x
Hi Ladies, been reading your threads about your first FEC and it really brings it all back to me (even though I am only 3 down as yet). My first FEC I got a sore throat and mouth, ONCs said to use Corsdyl mouthwash (watered down if need be as its quite strong) or cooled boiled salt water, the salt water really helped, do it every time you eat. I also use Biotene mouthwash (from Boots) which is especially for chemo (and other conditions), its moistens your mouth and is not too harsh. Biotene also do a toothpaste too. I found I didn’t get the sore throat on my next cycles of FEC, and never got ulcers, just the dry white tongue with lack of taste and a sort of burning feeling, like I’d drunk/eaten something too hot. Over the days it does lessen and by day 11-12 things were coming back to normal. As for sickness, I had the as and when sickness tablets to take and did take them as I needed, I found eating crackers helped stave the sickness. Sleeplessness is often teh steroids, make sure you don’t take any after midday (advised to take them morning and lunch) as this helps with the sleep. That does pass too as you come off of them. Be prepared for an emotional rolllercoaster as you come off them though, thats happened to a few of us but again a couple of days later is goes away. As for tummys and toilets problems, I did get constipation and was advised to take sennokot before bed, it helped, then had a bout of diarrohea but that passed to (exuse the pun!) you can take something for that if its really bad, but see if you can ride it out for a little bit as you may end up getting really constipated. Keep drinking lots and eat prunes for breakfast and lots of fruit. I also take Manuka honey in the morning, its supposed to help with antibacterial properties etc. Not sure if it works but worth a try. Also if you can stomach it, I have been advised to drink carrot juice, beetroot juice and apple juice. Have to day I cant bear beetroot juice but mix carrot and apple together and its quite nice, helps with vitamins and those bloods cells… worth a try too.
I may have mentioned some of this on an earlier thread so please excuse me… chemo head does exist!! Take care, rest up when you need, but do try to have a little stroll, even if its round the garden as I found this really does help, you can go stir crazy with this thing!
Kip xx
Hi Ladies,
So after temp rocketed to 38.4 last night I took the advice and came to Acute Assessment Unit.
On fluids, I think IV antibiotics and am awaiting the next set of results to see what is next. Now I’m actually in hospital I feel safer, but I do wonder to myself why I am putting myself through all of this.
Georgie x
Kip - Thanks for the advice - it’s good to hear from someone a little further into this.
Georgie gee - hope you are fixed up soon
S x
Well done Georgie! Sorry to have nagged but you have put my mind at rest. I do hope they are looking after you well. Take it easy. Much love Kxxx
Hello ladies
Can I interest any of you in a game to help us combat chemo brain??? It’s on this forum in the coffee lounge /chat and games section and is called word association again. I’ve been trying to play but it only gets s very occasional other visitor and it’s not much fun playing against yourself
I think this link might take you to it
forum.breastcancercare.org.uk/t5/Chat-and-games/WORD-ASSOCIATION-AGAIN/td-p/159964
Hope to see you over there: Let’s get that gray matter pumping ???
Sue xx
Hi Georgie
Sorry to hear your news but you are in the best place
Hope you are feeling better soon
Jude x
Sending you a hug Georgie - hope you feel better soon .
Hi Georgie. Sorry you ended up being admitted but I’m glad you are being looked after! Hope you get home soon. Kx
Hi Georgie
You poor thing, hope you start to feel better soon & get back to your own bed
Thinking of you
Jude x
Morning ladies
Hope you are all ok and coping, particularly Georgie-hope you get home soon!
Day 10 here -still some bowel ‘issues’, sleeping better, appetite and taste returning. Very dizzy and off balance and overwhelmingly fatigued today. Hit me like a brick wall in fact.
Hoping next week life can return to normal for at least a few days…fingers crossed.
Hair is feeling thin and delicate but still there for now!! Dare not blow dry in case it all flies off.
onwards and upwards
thinking of you all
Amanda x