Poor you @bigpickle. I hope they get you sorted this time and take good care of you. Bloody one thing after another. Sending you a big hug. Xxx
In other newsâŠmy nose is so runny. If I lean forward, its like water flowing. This is todayâs new annoying side effect. I did hear on Liz OâRiordanâs podcast, that its due to having no nose hairs.
@bluesatsuma something else to make you feel less than 100% . My nausea has thankfully abated but I now seem to have a bad back . (that emoji needs updating as my hair is nothing like that but it would be too scary if accurate!).
Itâs not what you need @anne3 sometimes sore backs happen because of stress and tension we hold. Iâve had a bad back for years and coming up to the first chemo treatment I could barely stand. I was got booked in for a scan and they confirmed (if thatâs possible) that the cancer hadnât moved to my bones but that I had a couple more reactive lymph nodes, suggesting it could have just been from mastectomy and should all be swept up with chemo and radiotherapy - fingers crossed!.
Bizarrely my back pain stopped as chemo started. I hope your pain passes or they give you a mid way scan to quash any concerns. Xx
@anne3 hope the aches and pains end soon. I ached a lot yesterday and had a bath in epsom salts. Not only did i manage 6 hours sleep, but the aching back and hips went.
@songbird1 i donât think my runny nose smells of chemo, but it is bright orange. Gross.
Ugh
Back home again. Temperature seems more stable, heart rate still a little erratic, but now got antibiotics which werenât available yesterday as the pharmacy had closed when I was discharged. Fingers crossed it doesnât happen again. Surprisingly I havenât had any bone ache from the second filgrastim injection I had yesterday.
Just took my temperature. Itâs 37.5. Iâm going to take it again after Iâve done kids tea as I donât want to create anymore drama. Bet itâs to do with my very runny nose. X
Fingers crossed xx
37.4 Iâm going to hang on.
Hi @nimble82 welcome to the group. Iâm at exactly the same point as you. I had a mastectomy with DIEP reconstruction back in May. I was ER/PR +, her2-. Iâm on a 2 weekly schedule, I finished 4 x EC, I started the first of 4 x Paclitaxel on Thursday, am on day 3 and the bone/joint aches everyone has mentioned has started today. Mainly shooting down my legs. I feel elated that I have completed 5 out of 8, only 3 more to get through. We can do this, we have come so far.
Hi everyone, been quiet on here as had COVID last week.
I know a few of us are on a similar regime. Due to have my first doxectaxel on Friday (still very nervous about it) but also realised I havenât been given any of the pre meds youâve all been talking about and my oncologist appt isnât till Thursday!
Hi Beckya
Hope you are over Covid ?
I was supposed to have my first docetaxel today, but because of my high temperature and the need for antibiotics, it has been rescheduled for Tuesday 22. I plan to take the steroids on Monday now. As you are seeing your oncologist on Thursday, perhaps they will give them to you then, to start straight away, and build them up before Friday?
Just about, testing negative but symptoms definitely lingering.
Sorry to hear you are delayed but glad youâve got your antibiotics. I have a feeling my wbc wonât come back very favourable pre chemo and they will want to delay anyway!
Hi @beckya and @bigpickle. Hope the first docetaxel goes well for you both. Iâm having my first one on 25th do right behind you, nervous too.
@beckya I think the pre meds ive been given can be taken in one go on the morning, but Iâd ring ahead of your appointment on Thursday to double check. Hope youâre feeling better now.
Half way now! X
Hi @beckya Think all hospitals might do things differently but Iâve never had any pre meds to take at home for either paclitaxel or ec. Always get a dose of steroid and antihistamine plus paracetamol into my cannula or via tablets when I arrive and just before the chemo. Hope all goes well for you and covid does a runner too
Well I did it, managed to not lose all hair before my niece and nephew went home to Australia (they leave tomorrow). Yes Iâm down to about 15-20% left but Iâm considering it a win cos with my hat on it wasnât obvious and I donât think I scared them.
Now bring on the clippers and letâs see if I can get a wig on this melon.
Looks like Iâm going to be put on Nab-paclitaxel to replace the docetaxel. Is anyone else on it? Iâm assuming same poison, slightly different name? (The side effects look identical to the docetaxel).
Iâm on weekly paclitaxel⊠Friday will be 3rd paclitaxelâŠ
Saw my breast surgeon today and aparently the wound is healing contrary to what he thought as chemotherapy hasnât been stoped. Mastectomy will be mid-end of January followed by radiotherapy⊠one step at a time and Iâll get through it
Wishing everyone a restful evening xx