August 2024 chemo starters

I think I’m going to still be x3 weekly but not sure what (if any) real difference is.

@dhmb I’ll be having my masectomy mid january too. Then radiotherapy.

If i still have an area of cancer in me, will they scan it to see if the chemo is reducing it? No-one has mentioned any scans. I’ve already had 3 ops to get lump out and lymph nodes, but the area they ‘forgot’ to remove remains. My chemo is neither neo adjuvant or adjuvant, it’s a bit of both. I wondered if I should ask to see if the chemo is reducing the area…or just have the masectomy regardless? Seeing surgeon on 11th of November for discussion about masectomy.

Hi @bluesatsuma , you have been through a lot … brave warrior as all of us in this group we really didn’t want to belong to… but hey ho… it is what it is… keep fighting lovely as we all will I’m sure :people_hugging:

Mid treatment scans were mentioned to me before treatment began, but so far no mention again, but not half way either… might mention it next week when I see my oncologist, maybe mention it to yours when you have the appointment on the 11th?

Sending hugs and wishing everyone a good day xx

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@dhmb
How are you finding the weekly Paclitaxol?
I move on to that at the beginning of November.
Xx

I find it much kinder to be honest, even though it has side effects that need to be managed, what i find hardest is the steroids withdrawal on Monday as i have treatment on Fridays. I keep reminding myself it’s a means to an end… that keeps me going.

Hugs xx

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@dhmb thats good to hear that your experience has been a bit easier on Paclitaxol despite some side effects. Ive struggled with the last couple of ECs so nice to hear maybe things will get better. Xx

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Fingers crossed, and toes and everything else for you :crossed_fingers:

Sending hugs xx

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@sievehead I started off with paclitaxol (although fortnightly) and would say I’ve been worse on ec! Have second one tomorrow and not looking forward to it now as after being fine, my wbc count is now low, I’m slightly anaemic and get out of breath doing things or walking! Eyes are sore too :confused: (nausea cleared up with different meds). Speaking to the oncologist this morning so see what she suggests! If you started on ec hopefully you’ll find it easier :crossed_fingers:t3::two_hearts:

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Nice productive day. Husband took day off and we took kids to school then drove out to Cannock Chase and walked 20km in the lovely autumn sun. Then had a gorgeous pub lunch. It was such a mood booster, so we’ve booked another one in for after half term.

Hope everyone is ok. I know a few of us are starting docetaxel this week (me next week), or have next chemo session coming up. Sending best wishes to all.


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That looks lovely. My next session is delayed by a week but onco has agreed to let me have one more EC instead of doxectaxel after I told them how nervous I was about it and how I felt I was managing the EC side effects well. I’ll then be stopping after 4 cycles so in a weeks time looks like Ill be done. Good luck to those with another cycle this week.

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Hi

LoveCannock chase. Hubby and I used to mountain bike over there a few years ago. Now it’s just taking the dog over there sometimes.
Bloods for me tomorrow :crossed_fingers:be interesting to see if the 2 filgrastim injections have still sustained my neutrophil count. Docetaxel next Tuesday, but seeing onco nurse tomorrow, which has only been arranged since I had to go to hospital last weekend. Wonder if anything has changed?

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Looks lovely @bluesatsuma these glimmer days are the best! Air seems fresher, colours more vibrant, energy levels higher and endorphins up. Carpe diem! Xx

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@bluesatsuma lovely pictures, great to be out and about in the countryside… and looked like just the right weather for it :blush: I’ve just had chemo no 6 so only two to go!! This time I have at least three anti sickness meds in my arsenal so :crossed_fingers:t3:I can manage the nausea better.
@songbird1 Love the glimmer days concept - have to say I’m behind the times and hadn’t come across it - but I had some glimmers today - met an old work colleague friend in the onc centre (she works there), wasn’t out of breath today, it was sunny and Autumnal, plans for Christmas seem to be falling into place…. it all helps! Carpe diem indeed! :two_hearts:

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Well done @anne3…nearly there!!

I just had covid and flu jab in picc line arm up near shoulder. Hoping for no side effects as I have to take eldest to view 3 sixth firm open days tomorrow and need to feel good for all the walking. Hoping that I did it at right time in chemo cycle too…I’m day 15 of 21. Think that should be ok for my white blood cells.

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Next weeks chemo delayed again.

Had line care and pre chemo bloods done first thing. They also scheduled a face to face appointment with a clinical nurse specialist for this afternoon. A bit annoyed in having to go back to hospital twice, but at least I knew my blood results would be available. Good news bloods were excellent…everything normal levels. Then she took my temperature…37.8, and heart rate high. To say I was devastated is an understatement. She spoke to my oncologist who said delay for a further week. I was wearing my wig, so took it off and she took temperature again. 37.4 in left ear and 37.9 in the other, which went up to 38.2 when I put my wig back on. For the future I shall not wear my wig for these appointments. I have just finished my course of antibiotics and I feel absolutely fine. I have been taking my temperature twice a day and it has not been above 37.2. A mystery and I am fed up.
Have a nice weekend everyone xx

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@bigpickle oh no so sorry to hear, what a pain. It must be so frustrating. Maybe try to enjoy some fun days or treats to keep your mind off it? Hope you at least continue to feel well :crossed_fingers:t3:-you’ll get there eventually! Take care :two_hearts:

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Sorry to hear that @bigpickle, we all just want to get through this as quickly as possible, I feel your pain but I guess we have to trust the process, even when it’s delayed. I hope you get your next round ASAP. Mean time like Anne says treats and things to take your mind off the wait. Hugs xx

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Oh no @bigpickle, so frustrating. I hope all gets moving soon. Those wigs and hats make my ears hot too! Hopefully you can do next cycle soon. X

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Hi Anne

Yes it is frustrating…temperature this morning 36.9…… think they are being so cautious .xx

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Hi songbird

I just want to get it over and done with, and now the last one is getting ever closer to Christmas when I had hoped there would be some normality. I don’t even feel ill :frowning:

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