August 2024 chemo starters

How did you get on @bluesatsuma ?

How is everyone doing?

Question: saw the oncologist today and he mentioned Hormonal treatment for the first time but we would discuss it further after mastectomy and radiotherapy. I’m curious but definitely dont want to look it up :face_with_peeking_eye:

Wishing everyone a good day xx

Hi @dhmb the hormone treatment will be the tablets to take for several years, if your bc was oestrogen receptive in particular (tamoxifen or letrozole often I believe).
Mine was oestrogen driven so that’s on the list for me too along with abemaciclib (?) and a CDK. inhibitor (?). I also stopped looking into it until I’m over the chemo and radio…!
I’m in the feeling sick and nauseous for a few days phase after 2nd ec on Friday :confused: - was asleep all yesterday afternoon and night too! Hopefully by the weekend I’ll be over it :crossed_fingers:t3:
How are you getting on with weekly paclitaxol? Hope it’s ok :two_hearts:

Hi @dhmb. Managed to get appointment moved to 2 hours later, which means I’ll have 2 appointments that day but doread out. Also had an appointment through for an echo cardiogram. Oncologist said i needed one every 3 months during chemo.

I feel like I live at the hospital. I’m about to leave to get prechemo bloods done. In November alone I have 9 different appointments!

X

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I can’t thank you enough @anne3 , pewww thought something more daunting then tablets … I’m a wuss i know …

Sorry to hear you felt that way, and yes EC did make me feel tired and ended up sleeping when I could. Also found that on the ocasion i didn’t sleep everything was worse physically and mentally. It reminded me of when i had my childern: sleep when you can what is let to do ends up being done anyways… hindsight is a wonderful thing right??? :sweat_smile:

@bluesatsuma … that does sound like a lot! And yes i do understand what you mean by living at the hospital… i go on Wednesdays for bloodworks and oncologist appointments when i have one and Fridays for treatment… it’s like the only people i see apart from my family :no_mouth:

Fingers, toes and everything crossed xx

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Hi

They started me on letrozole as I am ER positive. I had to stop it when chemo began but was told I would have it for 5 years
I am fine this week and delaying my chemo has turned out to be a blessing in disguise. Husband has now got a nasty kidney infection, so roles are reversed. Hoping his temperature drops, as gp has said go to A&E for IV antibiotics if it does not….had enough of that place recently :see_no_evil:

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Hipe you’re husband feels better soon @bigpickle and glad you’re feeling more yourself xx

@bigpickle I hope your husband feels much better soon. And I hope you’re back on the chemo schedule as soon as possible too. Xxx

Bloods done today. Hoping all is good so I can get number 4, and my first dose of the dreaded docetaxel, ticked off on friday.

My youngest has an inset day on Friday, so husband will have to bring him to hospital for my drop off and pick up. I don’t want him to see chemo ward as he is pretty anxious about it all. I’ll walk in and leave like a big girl on my own. Luckily, my hospital is on a university campus with an excellent dinosaur and geology museum on site for my husband to entertain him at while i get my poison. And i think they might get a cheeky nandos too.

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Hi, will certainly be thinking of you on Friday. Husband’s temperature has come right down to normal levels so looks as if treatment is having an effect.
My bloods are Saturday morning, in advance of Tuesday. Xx

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So glad he’s doing better @bigpickle. I’ll let you all know how I get on with docetaxel tomorrow. I didn’t sleep well last night, worrying about the massive number of sreroids I have to take from today. Taking my sister in law out shopping and for lunch, hoping to keep busy.

Hope everyone is well x

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Morning, can i come too @bluesatsuma :face_with_hand_over_mouth:??? Had a bit of a meltdown yesterday evening, dawunted on me how long way i still have to go… oh well … on step at a time and I’ll get there…

Wishing everyone a good day xx

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@dhmb I know how you feel. I don’t know why I’m so worried about docetaxel…thousands of people are fine on it. I’ve just taken my first 4 steroids, 4 more later…I’ll be exhausted before they even plug me into my drip tomorrow.

But @dhmb, don’t be down…you have already gone through so much and you have been resilient and brave. We are all around half way now. I have been on this bloody ride since last december and somehow still have a masectomy and radiotherapy and 10 years of tamoxifen to go. Somedays i feel so deflated and overwhelmed, but then I remember all you lovely ladies here on my screen and I feel less alone and more empowered. You can do it and you will be on the flipside sooner than you think! Xxx

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My oncologist said she gets only around one patient a month having a reaction to docetaxel. That made me feel better.

I hope you have a good reaction to it, I had it three times and can say I can no longer feel the lump, I hope the same happens for you. It’s toxic stuff but it does its stuff.

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@dhmb meltdowns are good for the soul! At least i think so as I’ve had a couple recently!! Its perfectly normal and I’m sure they are mentally therapeutic too. Embrace the meltdowns and celebrate the better days. Xx

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Thank you @bluesatsuma and @sievehead :people_hugging: I guess I needed to hear that​:kissing_heart: and yes you’re right we are all resilient and we will see this through even though there are some days that it doesn’t seem that way… for those days we have eachother :heart:

Feeling better today for sure got a lot to get done and actually feel up for the task :sweat_smile:

A tught squishy hug to all you brave and amazing people in this group that honestly we didn’t want to be in but couldn’t hapier for the company on this journey xx

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@dhmb so the meltdown worked its magic! You already feel better and are ready to tackle that to-do list. You are winning. Xx

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I’m in for my fourth round of docxe, carbo, herceptin. It’s all going well but the recovery days are taking longer. Two more to go after this then 3 weeks of radio and herceptin inject until next aug.
Just hoping when they scan again my reactive nodes have been swept up :crossed_fingers:

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Hey

I’m also on my fourth round of carboplatin and docetaxal and also phsego on Monday. I’m definitely taking longer to recover but Iv been called in to have a magnesium infusion today as that was very low. I’m hoping to feel a bit better after this.

I have to say I’m really struggling with the thought of another round I’m actually exhausted and feel the need for a break!

My family and friends talk l about being half way there and how good this is but I don’t feel the least bit of anything other than dread that Iv got to go through it all again three more times!

Iv got an ultrasound on Sunday to see if it’s shrunk, I’m really nervous about it as the last one did not show the true size of it!

I’m then Meeting the surgeon in November to discuss surgery once the chemo is finished. Feel like along way to go as phsego injections until August! Hopefully that will be the end of it xx

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@lilly123 and @songbird1 Sorry you’re feeling it takes longer to recover now you’re further on in your treatment. However also I’m grateful you said that as I’m definitely taking longer after no 6 of 8. The sickness/nausea lasted longer and I feel exhausted and quite weak. Slept loads, just couldn’t wake up the other day! Improving now though so hopefully I’ll have a good week before the next one! We’re getting there everyone but I’m so glad you’re all here too so I know it’s not just me! Thank you :two_hearts: xx

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Thanks all of you @sez @sievehead @dhmb @anne3 @lilly123 @songbird1. Xxx

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