@preferablywithfood hope your appointment goes well x
Hi everyone, and welcome to the best forum ever! I was an April 24 chemo starter. I had ECx3 and then Docetaxel X3. I cold capped which I found tough and it did extend the chemo day significantly especially with EC, but I kept most of my hair, it just thinned for which I was so grateful. I also had a PICC line. I was petrified of being sick, but wasn’t once. When they give you anti sickness medication take it regularly, don’t wait to feel sick as it’s harder to then control. I had surgery in August and then radiotherapy in October. I was very fortunate and loved a relatively “normal” life during chemo, and I want to encourage you ladies not to expect to feel ill. My view was I was well but every 3 weeks they kept trying to poison me and I was going to fight it! I kept running during chemo- though my oncologist told me I wouldn’t be able to! That was red rag to a bull!! I walked everyday which really helps bone and muscle pain. And fresh air does wonders for your mindset. If you have to have filgrastin injections during chemo- helps stimulate white blood cells, to reduce risk of infection, then these do cause bone and muscle pain- I found giving them just before bed, with ibuprofen half hour before and daily clarityn really helped. I also wore compression socks during chemo and 24/7 for a week and continually overnight, and really helped with neuropathy. You’ve all got this ladies, you’ll have highs and lows but we’re all here to support each other xx
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Hi
I’m wondering if anyone has had problems with feeling faint and dizzy after EC and cold capping?
I had my first EC last Friday. Felt fine for the first couple of days, but since then can hardly walk anywhere without feeling like i will faint. Have a sort of numb feeling on the back of my head. No high temperature or anything like that.
Just wondered if anyone has had a similar experience?
Take care all x
@murphysmum are you drinking enough, particularly in this warmer weather? If I was dehydrated I felt dizzy xx
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Hi
I think i am, thanks
Im having a couple of litres of water per day.
Not eating a lot because of the dizzy feeling.
Maybe it’s related.
Will ring the 24 hour line as it just seems wrong to be like this.
Thanks again x
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Hey peoples. Lovely to see new names on this little group.
I had my first EC today. I was lucky with cold cap and actually found it pleasant. No sideffects yet apart from nausea (even after taking everything).
Yesterday i did a pre chemo run and ive just tried my first chemo run. I anticipate feeling tired on day 3…
Re work ive provisionally planned some remote working with reduced hours cos id really miss it. But im also open to that not working.
Sending you all good wishes for the days ahead and courage for what is to come.
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It did thanks. Every now and again reality snacks me in the face and it did today when I saw a lady who had lost her hair and heard someone ringing the bell.
More fun times - when I was biopsied I was HER negative but learned today that I was now HER +. So my tumour was bigger, in more nodes, more aggressive and now HER+.
I’ll be doing 4 EC and 4 Docetaxel, but don’t have a start date yet. I might just sneak into this thread or I may be joining the September starters.
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@preferablywithfood, I’m so sorry to hear that, I didn’t even realise you could go from HER2- to HER2+. Does it change the rest of your treatment plan?
I had a similar experience yesterday with the reality hitting home, I spent the whole day feeling sick and anxious. Feel a bit better today.
I don’t have my start date yet, but I have my first bloods and ecg on 18th, so hopefully will start the following week xx