@bramble1 good to know, thank you. I’ve had a bit of a stressy afternoon, with my temperature creeping up to 38 so said to hubby should probably go and get checked out. Getting bits together and waiting for him to get home and temp has come down again, so going to hold off and just recheck temp every hour. My leg pains have eased off since putting my compression socks back on so that’s good. I was worried it was some sort of delayed reaction, but as long as temp stays down I think I’ll be okay 
xx
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@sunshine-smile how are you doing today? Hope you’re feeling better and that your temperature stayed down.
Just heard I’m good to go for Dose 2 tomorrow, and I’ll be referred to radiographer after next dose (but I don’t know if that’s tomorrow’s dose or the next one?!) and oncologist anticipates my radiotherapy will start at the end of December. I had anticipated early January but maybe they don’t hold things like that off for bank holidays (I’m in Scotland so was thinking of the Hogmanay/New Year break possibly delaying things). I guess I’ll find out soon enough anyway.
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Hi @bramble1 I’m doing good today, probably feel the best I’ve felt for a long time, which is very strange being day 3! A bit of achy legs this morning and temp stayed down and was back to usual this morning. I’ve had about 7 hours sleep in two days but had an early brekkie and got my steroids in a bit earlier, hopefully that helps for tonight. A little worried about the effects of the injections starting later, but otherwise all good!
Glad you’re all good for tomorrow. Yes I’m due to start radiotherapy end of December too (at the moment). She said ideally 3 weeks after chemo finishes, but would give me 4 if I really wanted it. I won’t go on the bank holidays so it works out a bit longer than the 3 weeks. I think I’ll be starting my Zoladex next round of chemo too, just as getting to the end of one thing, there’s more to get used to! Hope all goes okay tomorrow xx
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Sorry for my silence.
Have read all the posts. I love the moans as much as the positive ones. It’s great to have a space where we can moan and offload safely without silly replies. I feel if i really listed all of my sideffects, frustraions, worries, pains and so on to folk who asked I’d feel weird (though i should say i have awesome friends who do want to know a lot). This group is where we can AND everyone just gets it 
I had annual leave and 2 lots of house guests over half term so lots and lots of cooking and board games and extra kids and general chaos. Also art sessions with my sister. Helping my kids with alevel and gcse revision has also kept me busy.
Ive just had my 4th paclitaxel yesterday . Steroids reduced a bit. So far no neuropathy. I haven’t tried the compression stockings or cooling gloves yet. My white cells climbed up a little this week which was exciting 
.
Ive got a tiny bit of new grey hair i think but its hard to be sure…
@bramble1 i loved your hair post. Brilliant.
At the weekend a very close friend did liken me to one of Roald Dahl’s witches though!!!
Exercise is still happening but some more joint pains. Have decided to try more trail and less road to see if that helps.
Radiotherapy for me is 2 weeks after paclitaxel. Just before christmas and again just after.
@sunshine-smile did your temp settle?
@toad and @louise15 commiserations on the needles
@toad glad you got away . New forrest sounds lovely.
@preferablywithfood pleased you have a plan re the anaemia. Here is to a bit more energy and feeling better
@dianne3 impressed re work and really pleased re socialising etc. It’s these little things that perk us up isn’t it?
@sunshine-smile the treatment plan you have sounds gruelling. Woohoo re cooking on a chemo day. Rash sounds steroid related to me.
@louise15 with you on the toenails over winter comments!! Ive lost one too so far…might be chemo or running or stubbing it or all three?
@bramble1 I’ve had something like shin splints too. And in the accillies. Hope it settles.
@nutmeg5326 totally agree with missing normal life and one’s normal self. It’s grim. I miss hair. I miss my normal work.
@bellbert did you get nab paclitaxel?
@pg92 How’s the fatigue?
@pollypox loved the protein comments.
Love and strength to you all.
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Good morning So pleased to hear that you haven’t had an neuropathy on Paclitaxel, that is brilliant. No, I haven’t had a reply to my email asking if I can switch to Nab-Paclitaxel, so I currently have an allergy test patch on my arm, testing for a reaction to castor oil, in case I don’t hear back and have to have the Paclitaxel. I take the patch off tomorrow, so will hopefully know then. I am due Paclitaxel/Nab-Paclitaxel on Monday 10th November. I have completed my 3 x EC chemo’s, so halfway done with chemo Jane
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Hi @outdoorsy that must have been lovely to have two weeks doing lots of fun things. Great news about the neuropathy too. I’m still wearing my compression socks during the day as they just seem to make my legs feel a bit better. The compression gloves really made my fingers sore so I’m not sure I’ll try those again. Oh the hair, one day I look like I’ve lost a load and then the next day it looks like there is more - I really have no idea what is going on, but I’ve managed to keep some fluffy bits on top throughout - so far anyway.
Yes my temperature did settle thankfully and has been fine since. I have a call with the oncologist next week so I’ll mention it to her, but hopefully just a blip. The rash settled as well so yes I think it is steroid related - maybe the intensity of the IV steroids made it a bit worse initially.
I’m day 4 today and still feeling okay. The lack of nausea is just wonderful. Since last night I’ve had what feels like the worst period pains - I’ve already had 2 periods since starting chemo so I’m dreading getting another one, but it definitely feels like something is coming!
Hope everyone is doing okay 
xx
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Hi all
I had my second paclitaxel this morning. Had to take my steroid overdoses (10 tablets x2) at 9pm and 3am 
(9am appointment) so didn’t get much sleep after the 3am dose, but have managed to keep going all day so will hopefully just pass out tonight. All went smoothly, and apart from tingly toes walking out of the hospital (I had that last time too, might just be my feet fell asleep in my trainers 
) I’m feeling fine.
Got home to a letter referring me to the radiotherapy man for the afternoon of the 10th which is my daughter’s 21st birthday 
when we have planned to do an escape room and then have a meal out. So I phoned to see if I could change it, he normally only does Monday afternoons once a fortnight but has kindly said he’d see me in the morning at 10am instead. She won’t mind that as she’ll probably still be in bed so it won’t disrupt any birthday-ing.
I also got back to a letter calling me for jury service 
so that won’t be happening! I’ve emailed and attached copies of letters from oncology so hopefully that will keep them off my back for a few months. Honestly, I get no post for weeks and then 2 hassley letters on a chemo day. What are the chances?!
Hope you’re all doing ok. Big hugs to everyone xx
PS 2 doses to go 
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Hi @outdoorsy, glad you’ve had a packed couole of weeks. I too am enjoying my “normal” days at present before starting weekly Paclitaxel later next week. Fatigue was worse with the final EC, and took longer to get over, my digestive tract is still a bit all over the place. Stomach has not settled at all. But these are mild side effects compared to what it could be, so I am grateful.
Am reading the posts in prep for next week. Glad we have this forum to share, help and support each other through it all. Love & best wishes to all xx
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@louise15, so sorry to hear about the needle thing… you’re not alone, I’m the same! 
I have a port fitted, which makes it a bit easier, bit still unpleasant. I have to turn away, and deep breaths to try and relax. I did pass out during my MRI. Try and think of pleasant things!
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Hi ladies, been offline for a bit but catching up slowly. I’m on day 5 after my Phesgo/Dox/Carbo session. One more to go yey, feels like a huge step. I’m due to attend hosp on Thursday I assume for a talk about my pending mastectomy but not sure and they couldn’t tell me by phone, just that the letter wouldn’t reach me in time. Brain is on 100 while managing side effects. Lots of different feelings going on now. Sending hugs to you all.
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@emma-jayne sending love.
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Yay! One more to go, that’s amazing. I’ve got my penultimate session tomorrow, with my last one at the end of November. Good luck for your appointment on Thursday, I hope it goes well. I hope everyone else is getting on OK and managing as best they can. We’re all getting there, slowly but surely.
I’m a bit anxious for my next session tomorrow. I had a bad time after my last Docetaxel/Phesgo and ended up in A&E on day 6. The nurse came to do my picc line care and I just cried, I felt so awful. My obs were done and my temperature was high, I had a high heart rate and low blood pressure. Called the hot line and they said to come in. I had the intravenous antibiotics, bloods taken, chest xray and a thorough check by the doctor. Thankfully, everything came back OK. My oncologist thinks it was my body reacting to the new medication. I did have 24 steroids over 3 days and then nothing, so I don’t think I reacted well to the big crash! I’ve asked this time, if they can taper off the steroids slowly, so let’s see if this helps.
Thinking of you all and sending hugs xx
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@outdoorsy thanks so much
@amandas09 thank you. Oh wow 24 steroids that’s so much. Glad they looked after you in a and e. Our bodies are going through so much with this continuous fight, but fight we will. Hope tomorrow goes well and the days following are easier.
Sending love 
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Thank you so much
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I’ve just realised I’m half way through 
I’ve done 10 weeks and I now only have 10 more weeks to go……hellllllllllll yeaaaaaaah!!!
It’s not been a fun 10 weeks, in fact it’s sucked rancid donkey balls 
But I survived and really can see the light at the end of the tunnel (possibly helped by still being a little stoned from the meds I had today 
)
Loads of love and hugs to everyone
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Haha love this, Toad! A chink of tunnel light indeed.
I also hope the remaining ten suckers will be slightly less rancid than the first batch 🫏 
xx
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love the rancid 🫏 balls
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Hi aug 25 peoples.
I know this is a chat 4 us but i wondered if i could cheekily pass this link on.
My son (17) has decided to raise £ for the little Princess trust (kids chemo wigs). He will donate his hair next week.
Please ignore or not as needed.
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Morning ladies, how is everyone? Loved the donkey balls @toad made me laugh. Went to the hospital yesterday for my appointment and it was to discuss surgery, so looks like they will do a mastectomy within 6 weeks of my last dox/carb/Phesgo end of this month. No immediate reconstruction as they need to see what the results are from removal to determine if I need to continue Herceptin. 3 weeks of radiotherapy was also discussed in my last clinic appointment so I know that’s potentially on the cards too. Just have to wait now for my pre op appointment and then the actual appointment. Daunting really but keen to get it done and gone if that makes sense.
Quick question, has anyone had pounding heart? If I just get up to the bathroom atm it’s pounding so I’m just resting now.
How did your session go @amandas09?
Hi @outdoorsy thanks for the link will have a look at that. So lovely your sob has done that. My youngest son had long hair until he was about 6. Was so strange looking at him with short hair for such a long time. I bet you find the same?
Sending love and hugs 
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I’m glad your appointment went well, lots of information to take in. Like you say it’s daunting but will be good to get it done and another step on the road to recovery 
My session on Wednesday went well, thank you. No real issues at the moment, although still on the steroids until Sunday, due to the additional ones I requested. I guess I’ll see what next week brings with side effects, just as long as I don’t end up in A&E again!
I haven’t had a pounding heart, but I do suffer with breathlessness, especially when on steroids, as I find I retain fluid. Have you had the pounding before? Maybe give the helpline a call if it persists to be on the safe side.
I hope everyone is getting on as best they can. Sending hugs to all xx
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