There were a few days I was overwhelmed with the whole experience and sobbed, along with the regular wee cry’s in the shower telling myself it was hard but it was just a chapter to get through.
I had peripheral neuropathy during chemo, not unmanageable but discomfort with numbness in finger tips and toes. I’m 6 weeks beyond my last treatment and I have a little still present mostly in my toes, pretty sure it goes away rather than I just don’t notice it sometimes. Hoping it will leave entirely as I get further away from treatment.
I guess emotions for all of us with be up and down for a while, as we come to realisation with it all. I find it difficult because a lot of the time I feel fine, not back to normal, but still well, and so facing the prospect of further treatment, including surgery is daunting.
Thank you for the reply on the neuropathy, although I very much hope like you that the nerves will recover and it’ll disappear. I’ll let my medical team know, although I’m sure dosage on my final two chemo will be altered x
I’m on Day 3 of letrozole and so far no issues- I am on a 3 monthly jab Leuprorelin which hasn’t really affected me, other than “running slightly warm” but I’ve never been one to feel the cold so am not sure how much is the meds and how much is just me being me. The oncologist said letrozole shouldn’t affect me either as the jab doesn’t, so fingers crossed she’s telling the truth!
But today I collected my abemaciclib and am going to be brave and start that tomorrow . I’m almost as scared as I was before starting chemo - my oncologist has said that it’s much easier than chemo, but the list of and type of side effects seem just as bad, which scares me because I feel like I’m so much better than I was 2 months ago and I really don’t want to go back to feeling like that . Even though I know it wasn’t too bad overall, I know it did get me down. I have anti diarrhoea tablets and anti sickness to take as needed, and blood tests fortnightly to start with. I’m going away for a week on Saturday and really want to get back to work on the 23rd, but am worried it will knock me back again and I won’t enjoy my holiday or will be too exhausted for work . And I know my health is what matters and I mustn’t run before I can walk but I really just want some normality back and am so fed up and teary . Which I know is normal - I will stay positive and take each day as it comes, and I know my family and work will be supportive, but it’s just another niggling worry I really don’t want and I’m so fed up of feeling like a burden on everyone .
On a more positive note, the return of the 6 Nations this weekend (I love rugby - grew up in Gloucester, which is definitely a rugby city - we don’t talk about their football team ) and when I look back to how far I’ve come since the last 6 Nations I’m very proud and can’t wait to see where I’ll be by the 2027 tournament . I’m also looking forward to the winter olympics and am glad I’m still off work to enjoy them
Sorry about the rant - I just had to get it off my chest, and I know you all understand. Hugs to you all, I hope you’re all more “up” than “down” (which I am normally!) xx
just getting caught up, it’s so good seeing everyone reaching different milestones in all of the different treatment paths we’re all on now post chemo! I start radiotherapy next week, and I’ve felt reassured by some of what I’ve read in here regarding radiotherapy so I don’t feel overly worried about it so thank you all for sharing your stories
I’m right there with some of you around the emotions, I’ve been quite up and down this past few weeks & I think it’s all sort of caught up with me. However, thankfully the ups are really high so help balance out the lows. I’m just being kind to myself and accepting whatever emotions show up - we’ve all been through so much, so we deserve to give ourselves that space to feel whatever! I have had worries flair up though, I have health anxiety anyway and even though I’ve been told there’s no cancer my anxiety around health is still high so going to reach out to my team to ask to be referred for therapy.
Other than that, I have been trying to slowly ease myself back into life while taking into account the post chemo fatigue and not overstretching myself! Anyone else feeling the fatigue hard??
Glad to hear some people lashes have started coming back! I’ve been using UK lash and it’s working wonders helping growth so would recommend that for anyone interested.
I have another of my younger women support groups tomorrow so looking forward to that. It’s delivered in this local breast cancer charity that does lots of wellbeing treatments for women, so I’ve signed up for a sound bath next week and they also have a spinal flow treatment I’m going to sign up for once I’m finished chemo. They also do oncology massages and boy do I need a massage badly but that may need to wait for a while as not sure how the breast will feel after radio it’s such a great charity, so I’m feeling lucky. Does anyone else have anything like that near them?
I hope you’re all doing well, and have some nice plans for the weekend! Sending love
Morning ladies, lovely wet Saturday here!. I’ve been low key sorry. Totally with you on the emotional front this week. I’ve been trying to clear my parents house ready for sale and that combined with this has been a lot. I did a whole day Thursday and then was in bed by 7 aching with a temperature. My right arm right by the mastectomy scar is aching so much. I wasn’t even lifting with that side. It feels like a heavy armband if that makes sense. I’ve been told that it could be scar tissue setting in. The problem is I start radiotherapy Thursday and my movement is decreasing instead of increasing. Has anyone else had this?
I had peripheral neuropathy with one of my chemos but it didn’t last long thankfully. I would wake in the night to my thumb twitching on its own. It did settle before my next session and the team weren’t concerned.
Love the idea of a sound bath. I’m off to Maggie’s on Tuesday so will see what they do.
I’ll m with on the rugby front, If I’m forced to rest then at least there’s that and the winter Olympics on.
No worries at all @sunshine-smile I’ve not been on for a while either. I’ve been sent a form for my cousin to complete about the genetic testing and we aren’t even in touch (many years now) so I don’t know what to tell them there. Hopefully it won’t make a difference as she lives in France anyway and was treated there.
Happy belated birthday @schwartzwald did you celebrate at all?
. I’m almost as scared as I was before starting chemo - my oncologist has said that it’s much easier than chemo, but the list of and type of side effects seem just as bad, which scares me because I feel like I’m so much better than I was 2 months ago and I really don’t want to go back to feeling like that 
. Even though I know it wasn’t too bad overall, I know it did get me down. I have anti diarrhoea tablets and anti sickness to take as needed, and blood tests fortnightly to start with. I’m going away for a week on Saturday and really want to get back to work on the 23rd, but am worried it will knock me back again and I won’t enjoy my holiday or will be too exhausted for work 
. And I know my health is what matters and I mustn’t run before I can walk but I really just want some normality back and am so fed up and teary 
. Which I know is normal - I will stay positive and take each day as it comes, and I know my family and work will be supportive, but it’s just another niggling worry I really don’t want and I’m so fed up of feeling like a burden on everyone 
) and when I look back to how far I’ve come since the last 6 Nations I’m very proud and can’t wait to see where I’ll be by the 2027 tournament 
. I’m also looking forward to the winter olympics and am glad I’m still off work to enjoy them 
it’s such a great charity, so I’m feeling lucky. Does anyone else have anything like that near them?