Oh @emma-jayne massive hug from me, I lost my Dad in 2020 (not covid, he had Parkinson’s and Dementia and just became very frail, it was just bad timing mid pandemic), but still have my Mum. But having lost Dad and knowing how that threw me, I can’t imagine dealing with BC on top of that and then losing Mum all within a year. No wonder your head is all over the place! I’ve not used my Maggie’s, but a lady was raving about them when I was having my radiotherapy. I’d definitely give them a try to start with, if they can’t help with everything they will at least listen and understand, and will hopefully have contacts elsewhere too. And I’m sure they do family support (I pointed that out to my husband and daughter quite early on) so can at least point you in the direction of help for the boys if they don’t have anybody there.
I can’t help with the “foob” I’m afraid, I just had a lumpectomy so am a bit lopsided but nothing obvious luckily. My consultant did say I could have reconstruction if I wanted but I’m quite happy with how I am and feel I’ve had enough poking and prodding. But that’s me at 53, I might have felt a bit different 20 years ago so it’s nice he gave me the option.
Anyway I didn’t want to read and run, just wanted to send a big hug, and let you know I do sort of understand, even if it’s not the all happening at once nightmare 
. Look after yourself, we’re here if you need us xx
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Thanks so much. That must have been so hard in the pandemic too with all those restrictions. I ‘m glad you have your mum still. Makes such a difference. I’m still texting her like she’s around and my neices have said that they’re doing the same. I’ve got her phone so will periodically charge it but not read the messages. I will go to Maggies, I’ve not dones so as yet, still waiting to have mums ashes before I do anything further. I’m going back to work tomorrow because I don’t know what to do with myself. I don’t know if that’s a good idea or not but there we go. Did your family ever take it up or have they just worked through it themselves? So hard to know what to do. But my youngest, any time I cough he’s looking at me and checking I’m ok (which doesn’t help I have a cold atm). So I’m treading carefully there.
Had my phesgo injection last week so that’s another one ticked off. Last one is October. so not that many to go.
I totally get what you say about reconstruction. I’m flat on the one side now and I think I’m dealing with it ok, same as you I’m 48 now and never really been a boob person, they’ve always been tucked away!. I have found another company online that do what looks like a soft moulded one so may try that.
Hope you’re all doing ok xx
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Hi, yes the pandemic didn’t make life easy, but Dad was a very quiet man and I think he’d probably have preferred the small family funeral we were able to have, rather than a big funeral and wake - he and I would always sit on the edge of big gatherings and watch rather than take part, while my Mum and sister were the centre of everything! So I think if he could have chosen a send-off, he’d have gone with what we were able to give him 
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How did work go today? Hopefully you were able to concentrate and didn’t have any awkward people to deal with 
My husband and daughter didn’t use Maggie’s in the end. My daughter is 21 now (20 when all this started), and has a couple of lovely girl friends who she’s been friends with since she was about 4, plus her boyfriend of 4 years so between them they gave her a strong support network. Luckily she’s still at home and working while she tries to figure out what to do with her life(!), so she was able to see me and not just rely on phone calls or video calls which would have been the case if she’d been away at uni. My husband’s work was very supportive and a good friend from his school days had been through similar with his wife a few years earlier so he had someone who understood to talk to. So I think we’ve all got through it ok, it all certainly feels pretty normal now all things considered. Even with me still being on abemaciclib and regular bloods and phone calls, life seems to be “normal” so I take that as a win 
Hope you find something comfortable to “tuck away” and help you feel more balanced - mine have always been tucked away too, certainly helps with the slight lopsidedness 
Hugs to you - I really hope today went ok xx
Hi everyone, just thought I would check in and it has been good to read your posts on how you have been getting on, can’t believe we are six months into the year already. Is anyone on Anastrazol for ER+ BC? The joint pain I am getting is so bad, getting up after sitting for a while is so difficult and pain in my knees when walking is getting worse. I am seeing Oncology on Friday so going to discuss other options, scared to change though in case it is worse. Would be good to hear any experiences and how you have managed them with supplements or other means. I am also on Herceptin injections which will continue to December don’t know if this is making the side effects of the Anastrazole worse. On the bright side though I have now retired so no longer have the work noise in my head which has helped mentally xx
Hi all, just been reading through the posts. Very sorry to hear some of the news. Losing a parent is devastating. I lost my dad many years ago in 1995. I was 36 and was a single mum to three sons, and I felt like they had lost the best male influence they could have had. I lost my mum in 2016, she had been diagnosed with PSP, a form of Parkinsons. It was a blow even though I was in my 50s by then.
I’m on Letrozole, 1 a day for the next 8 years, and find the stiffness in my joints really bad first thing in the morning and at night. My feet are really bad and so are my hands, but I’m persevering as I’m hoping its only temporary. I did have a word with a GP about it but he said they probably won’t change it until about the 6 month mark if im still having problems. I have a mammogram booked for next week, my first yearly one following all the horridness of the last year.
I joined a Helen Rollason charity group and have some massages and coffee mornings booked. It will be good to chat face to face with people who understand exactly how I feel.
I hope you are all doing well. Sending best wishes and hugs xx
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