August 2025 chemo starters

Hi @cat101, best wishes for when you start. It is a tough journey that we are on, but with support we can get through. I bought some Polybalm to use on nails to try to protect, and dry mouth mouthwash and pastilles just in case, as the metallic, slightly nauseous taste in mouth isnt pleasant. Best to ask your healthcare team for laxatives, just in case. As the anti-sickness tablets and steroids can cause constipation. I got Laxido from them and taking a sachet each day. I suffered quite badly from nauseous feeling straight after treatment and day 1, but it is still there. It seems that is common unfortunately. Take care xx

1 Like

Thank you for your tips @pg92 I have got some polybalm. Just need to get my gel nails off and cut them down and ill start using it. Hope it helps as im very worried about my nails falling off! Im going to be on EC-T so i know its a possibility.

Hi @emma-jayne, hope you are doing better now, and the immodium is helping. I tend to suffer the opposite, and with the anti-sickness pills and steroids, it was heightened.
The nauseous feeling, dry mouth and metallic taste is still there, but eating a small amount on a regular basis. Hoping it’ll get easier in coming days. The back pain caused by the white cell booster injection, given day 1 was pretty bad. Struggled to sleep, but it has eased a lot. Bad for about 1.5 days. I feel I have more energy today, but resting in between too. Take care xx

@cat101, hi yes im on EC-T too, 4 x EC and 12 x Pacitexel, although I may request it to be shortened, as 6 months of treatment is pretty tough to face.
Hoping the Polybalm will help, I’m using it morning and night, but I know it could be later before any potential benefits xx

1 Like

Hi pg92 thank you I do have a bit more energy today hope it’s here to stay. Have you tried gingin sweets for the nausea? They really help, you can get them on Amazon. I did the bicarb in water for when my mouth was sore, it seemed to pass fairly quick thankfully. I hope your back is better now too. I’m so glad to have found this forum, makes it easier to deal with. X

Good luck tomorrow @dianne3! I’m starting tomorrow too…I’m feeling so down today. I think it’s the overwhelm, and the uncertainty of what it will be like. I’m 42 and have three small children (age 10, 7, and 3) I just don’t know how I’m going to protect them from this. My family is wonderful so I have lots of support, but…I don’t know, it just feels a lot :disappointed: I feel like I should be more positive and grateful that there is a treatment (and I am both of those things sometimes) but other times I just feel the weight of it all…

@nutmeg5326 so sorry you are feeling down but fully understand it. It must be so difficult with young children as I guess you want to protect them from it as well as having time for yourself to absorb all of this. My daughter is 30 but I still go into protective mode when we talk about it. I’ve been to a little party for a friend today so that has kept me busy, going to pack a bag in a bit with some things for tomorrow, my session should start at 10.30. it is very overwhelming and scary but I try to think of all the people who have done this and come out the other side, we can cross the first session off after tomorrow. Good luck and let me know how you get on xxx

@pg92 Thanks for the advice and good to know you got through it, will certainly ask for a surgical cap. I want tomorrow to come quickly but equally I don’t, will try and get an early night so I’m fresh in the morning, take care for now :sun_with_face:

1 Like

Hi @emma-jayne, yes I agree the forum makes a difference, because even though I have family and friend support, I feel alone, as I am the one going through this and the symptoms. Sharing with others in the same boat, and the hints and tips can but help. Thank you for the advice on sweets, I’ll look them up, as the nausea feeling persists. I bought Salivix Plus pastilles on Amazon, but for dry mouth, in case needed overnight, but not tried them yet xx

Thank you :pray: I’m feeling a bit better now…it’s such a rollercoaster! I keep telling myself that 1000s of people go through this every day, surely I can too. And to be grateful that all the experts seem so confident that this can be treated. I think having the first cycle will be a relief so at least I have a sense of what to expect. I just can’t imagine it now and it’s hard to control all the “what ifs” and sad thoughts. I’m also at 10:30! Sending :heart: and :crossed_fingers:to you xx

2 Likes

@dianne3 good luck for tomorrow, hope it all goes well. I’ve got my new patient chat and look around the unit in the morning xx

1 Like

@nutmeg5326 good luck for tomorrow. It is a lot to worry about when you have small children - I don’t start until the 26th so can’t offer any advice except children are resilient and seem to deal with these things better than we do, but I understand you worrying xx

Thank you so much…you are right that they are resilient. I know they will learn what cancer is from me so that calmer I am about it the calmer they will be. It just feels like an added pressure. I just hope I deal with the side effects okay, for their sake as well as mine xx

1 Like