Also pretty severe nerve pain that I was not expecting. Wondering if you or anyone experienced that.
What is the pain like? I was sore around the site of the incision, I had the little pillow the hospital gave me under my arm for a few weeks, but numb everywhere else. The surgeon did tell me that there was a chance he could disturb my nerves, but I donāt think I experienced any obvious symptoms of that.
Just some sharp intermittent migrating pain; up and down with that, along with the numbness. Not as bad as initially when I wrote but still very limiting; hoping it will go away with time.
Hi Marie,
Iām in week 3 doe ALDN recovery. Has been a slow recovery on my arm and armpit but slowly getting better.
I had 7 positive nodes out of 36 removed, some micro, some macro but all somewhat small. This in addition to the 3 sentinal nodes that were affected, thus requiring the surgery.
Now they want me to do chemo and I am trying to sort out that option. Did you get chemo? I forget; did you have lobular or ductal?
Thanks,
Kerry
Hi Kerry, mine was ductal. After surgery, I had chemo and radiation, followed by monthly Lucrin injections (since I was pre-menopausal) and then Letrozole plus Abemaciclib. I also had my first Zometa injection last October. Itās definitely a lot to manage! Thereās no way to know for sure if the chemo was effective, since I had surgery first, but Iām told itās all part of the preventive measures and to treat any micrometastases / cancer cells that may have been left behind and not detected by PET scan. I really hope that something worked, chemo or the drugs and I want to make sure I have no regrets.
So far, the side effects are manageable, and my quality of life hasnāt been drastically affected. As long as it stays like this, Iāll continue being a good soldier and taking my pills!
Good luck with whatever you choose, and donāt look back.
Hi Marie,
Thanks for replying to me. The chemo is supposed to be effective against ductal but not lobular (or less so for lobular). The more I dig in the more anxious I am becoming. Have another opinion scheduled for Tuesday and infusion scheduled for Friday. I donāt know. Thanks for your feedback. Iām also dreading the Letrozole, etc. so itās good to hear itās not impairing you life quality.