Hi Daisydi-
Sorry to hear your news, I know you were half expecting it, but it’s so very hard! I had the clearance yesterday morning & was home by the evening. I feel great! Achy but great.
The op was much quicker than the mastectomy and SNB, so less general anaesthic to work through - phew!
3rd excision sounds so hard, I really feel for you.
I’m really pleased I had a Mastectomy, especially as I’ll be going on to have chemo & radiotherapy. But your decision is just that, yours. Its so hard making these ‘choices’!
Sending love,
I’ll keep you posted, please do the same x
Thanks everyone for your support. Will keep you posted. xx
Hi Daisydi,
Have you got a date yet? xx
Hi Bluetit, how you doing? havent got a date yet but may find out tomorrow when I see surgeon again to sign consent forms. They were talking first week of Jan. My bcn did mention there was a list on NYE but wouldnt be fair on my support network as someone has to stay at my house to look after my animals. Am really not looking forward to it but we have agreed I am not ready emotionally for a mx yet so I will have the re reexcision as well as the anc. Will let you know when I know xx
Keep us posted, glad you’ve been able to make that decision for yourself.
I’m recovering well from my ANC, thank you.
I am finding I have to do my exercises really regularly or else I tighten up very quickly, much more so than after my mastectomy. Other than that I’m good! And no drain this time has really made things easier too.
Would you mind me asking about your diagnosis etc? Please don’t feel pressured to answer though!
Xx
Thank you for sharing x
Well done to your dog for making you aware - what a superstar!
I saw a dimple after showering in Sept & went to the GP the same day. I couldn’t feel anything. They weren’t too worried, but acknowledged it didn’t look right & agreed for breast clinic. I just knew though.
My tumour was so big, the results of each investigation said bigger and bigger which was frightening (dense boobs = difficult to see properly).
Ultrasound said 1.6cm
Mammo said 2.5cm
MRI said 5cm
Surgery has said 4.9cm plus a few satellite areas.
(I’ve also had a CT to look for secondaries - all clear!)
I’m same as you in that I’m grades 2, ER+, HER-.
In my kids minds though it’s “boobie cancer”, my youngest has even started walking round the house with one satsuma down her onesie, which I kind of love!
So much to learn!
I’ll be thinking of you tomorrow xx
My third op will be January 10th for full node clearance and rereexcision. At least I have a couple of weeks of normality. Bless your little girl Bluetit with her satsuma. How are you getting on?
Welcome Jackdaw, I hope you slept ok last night.
I have only just recently started wearing a bra again, so I’m afraid I can’t offer you any words of wisdom on the drain/bra dilemma. So tricky to get differing opinions. I wonder if you start a new thread if you’ll find someone more helpful than me xxx
Daidydi, sorry I’m only just replying now. I’m doing much better now, thank you. Movement is good (not full) & I’m getting more stamina. Have to admit I’m over aware of the word lymphedema which is in ‘capitals’ in my head. (I really must phone for advice/ information like Evie suggested). Things like the most low risk sleeping position & other practical things like that.
Anyway, enough rambling. Please let me know how the 10th goes for you xx
Hi I wore my sports bra over the top of my drains both times , at times I just kept lifting my bra to double check X hopefully this will help you X have a happy day , xx
I’m definitely getting more and more left handed at the moment! I just combed my daughter’s long hair & now I’m achy. Not surprising, it was knotty!! But yet again I’m on high alert. I’ll phone for advice when the kids have gone back to school. Urrrgghh. This will so impact on my job and it’s scaring me. I’ve got chemo and radio first, it’s such a hard slog but I can cope with that. It’s just the 'forever aspect of my arm which is distressing me.
xxx
I’m definitely not going to attempt to iron with my left hand… hahaha, that would be disastrous… top points for you trying though!
I’m a Community Physio - so a fair bit of driving & moving heavy people/equipment. Time will tell. I will take it day by day & get through treatment first.
xxxx
I am absolutely dreading my anc on 10th Jan. I am so worried about everything. I seem to move around a lot in the night. How will the drain stay safe, what if I get lymphodema, what if all my nodes are positive,what if the cancer has spread everywhere. I cant find anything positive to think about at the moment…
What a brilliant post Evie, you are amazing x
Thank you Evie. Think Im just having a bad day today, time of year! I am trying so much to be positive but every time I go back after surgery its bad news. Just wishing for some good luck this time x
Hi Daisydi- I’ve been wondering how you are feeling today/in general. I had my post op appt this afternoon (hence why I thought of you).
My original SNB showed 3/4 nodes positive. Today the surgeon said that one more node was found positive on ANC. So that’s a total of 4/11 nodes positive. I feel strangely happy to know that the ANC was worth doing. Next step chemo xx
Hi Bluetit thanks for thinking of me. Think thats good then isn’t it? I am having a bit of a tough time as my mind is playing games not letting me sleep and imagining all sorts of nasties. I feel that I have been waiting forever for this op and that if anything is in nodes it is spreading all over the place while I am waiting! Cant wait to get next week over with as I really need to know what is going on and yes I think it will be a good thing to know one way or the other. Hope you are feeling ok. I will let you know how I get on and please do the same. xx
Thanks Evie. It is nice to off load on here. Surely it can only be a good thing. Just had my letter from the hospital and I have to be there at 6.30am on Thurs. After the fiasco of last time and them forgetting to do my anc I asked to be first on the list and they have kept to their word! Positive thoughts …
How are you feeling Daisydi?
Hope your surgery went well today & that you were first on the list as planned xxx
Hiya, well I’m done and have a very large bottle and bag to carry around with me. Finding it all a bit painful but I am home. Just waiting for results now. Hope you’re ok. I third incision on my boob is really painful,much more than before. Just hope it was worth it …
I hope the pain is subsiding Daisydi & your results show the margins you need.
Will you be joining a chemo thread? - I will be hopping across there in a couple of weeks x