Good luck for tomorrow Cecelia -please do keep in touch and let me know how things are going and what happens tomorrow.
My swelling seems to be almost back to size it was before draining - pants!
Rebz xx
Good luck for tomorrow Cecelia -please do keep in touch and let me know how things are going and what happens tomorrow.
My swelling seems to be almost back to size it was before draining - pants!
Rebz xx
Hi Rebz
I know, mine was, but it’s down today and was offered more draining at the hospital but I said I’ll see how it goes by Friday. i don’t want to get it done too often.
Anyway back from the hospital and good news in that it hasn’t spread to my lymph nodes, ER and PR+, not HER2+, so radiotherapy and hormone therapy to go. Have posted more info on the other link so please have a look and see how it compares to you… One thing on there I’m worried about. Hope you are faring well, please let me know how you are doing.
Cecelia. x
Hi, Rebz, Cecelia and Mousy
Hope your all feeling well. I know your all preparing for your rads so I just thought I’d say hello and let you know I completed my rads on Monday, 15 plus 3 boosters. Don’t know where your having your rads I attended Mount Vernon and the staff were lovely. I did have a few days where I had to wait anything up to an hour, this is usually because one of the machines has broken down and they have to shift patients around. There’s plenty of mags to read even one’s dated from 10yrs ago. My daughter was keen to enter a competition for a holiday until she checked the closing date and it said July 1997. If you haven’t started using the aqueous cream already I would recommend you start applying it at least twice a day now to prepare the skin for rads, it also helps smooth the scars.
Good luck.
Love Caz x
Hi CazBeds and all
Caz I joined Cecelia’s other thread entitled ‘Terrified’ as we were having the same conversation on two threads so please do join us there if you like and thank you so much for your advice. I’m also at Mount Vernon for my rad which will start in January. I will definitely take your advice about moisturising as since chemo my skin has become very dry anyway. My mastectomy scar and under my arm is very stiff and sore and tight - the exercises probably help a bit but it’s really unpleasant.
Caz have you finished now at Mount Vernon? Are you having any further treatment? I’m also being treated at Barnet General (which is where I’ll have my herceptin every 3 weeks).
Rebz xxx
Hi Rebz
How long ago did you have your op, I’m sure I saw it on another thread but can’t find it. I’m nine weeks post op for masectomy and snb tomorrow. Still having a lot of trouble with pins and needles down arm and shoulder. Been doing the exercises everyday but doesn’t seem to be improving. Also started rads this week and have gone very pink already, radiologist said oh oh I was one of those ladies, still wondering what she means, slapping cream on at every opportunity as all clothes touching it stings feels like reallly bad sunburn. Anyone else suffering with this stiff sore arm thing?
Heather
Hello Heather
My op was two weeks ago. I don’t have any pins and needles like you do but from the underneath of my arm from elbow to under armpit feels like it’s been burnt and anything touching it hurts. Under my armpit is a seroma (swelling) which makes the soreness worse and I can’t put my arm down properly. Across my chest the scar area is so tight it feels like something is pulling and almost feels like a spasm is going on sometimes - it’s so strange. I’m doing the exercises and I’m sure that will help and when I go to the hospital tomorrow I will ask whether the disolvable stitches are making the pulling worse and also if I can moisturise and massage the area as I’m sure that will help. I’m so worried about rads now as if you are suffering from a sore arm from that - I wonder what my sore arm will be like seeing as it’s already so bad! Do you know I’m feeling like I’m moaning more now after the operation than with the chemo! Yikes.
Rebz xx
Hi Rebz, yes I’ve finished my last rad was on Monday. I have a follow up app at the L & D to check skin condition then nothing till mammogram in Oct 08. Tamoxifen for 5yrs, ok so far no side effects.
Hope you ladies are feeling a bit more comfortable, I’m still slapping on the cream. Hosp gave me some gel for the area under the breast which had split a little during last few sessions, this helped a bit but when I ran out I asked my GP for something and he gave me Flamazine cream which is meant for burns and seems to be working ok.
Good luck and do keep up with the exercises as you need to put your arms above your head during the planning session and rad treatments.
Big hugs to you all.
Caz x
Hi Caz congrats on finishing rads - what a relief.
I had my steri strips taken off today by breast care nurse - was a weird feeling and didn’t want to look at area but I did by mistake and actually it looks fine. It has competely healed and is very neat. I think the area feels a little better although is still very sore as I have been really pushing myself with the exercises today and started some new ones. I’m quite supple anyway so I don’t think I’ll have any problems with rads. I’ll also keep moisturising like you have suggested.
Hugs to you too and to the others
Rebz xx
Hi all,
Haven’t been on the site for a while. Have been getting stressed about Christmas instead… (probably not alone on that one)
My arm has been pretty much fine for a while now, although the last few days it’s been a little achy just when I stick my arm out, like to do a turning right hand signal. It feels like it’s a little sore on the upper inside arm muscle. Other than that it’s fine unless I try to reach up for something from a high shelf.
Good news is I’ve had my post op appointment and they found absolutely nothing in the bits and bobs they took out, though couldn’t tell me if they noticed signs of anything previously in the nodes. Text from lab was a bit brief on that. Great response to chemo, they say, means improvement in odds by about 50pc…
They said that if I particularly didn’t want to do rads they’d be fine with that, but I might as well have it to be on the safe side. I have marking up on 17/1 and zapping through to 3/3. They tried to give me 8:54… What a laugh… With one 5yo to deliver to school no earlier than 8:30 plus one 2yo to go to nursery 2-3 days a week… Told them to think again and now have much more practical times between 10:15 and 10:40…
I made them give me the percentages which, adjusting for the 50pc, seem to indicate I have 84pc chance of being around in 10 years, and 78pc chance of no relapse… Not quite as good as I’d hoped but not too bad. Now, how does one arrange to fall within the right section of that statistic???
mousy