As you may have seen in my previous posts i was diagnosed with invasive lobular breast cancer last week and told would be having the lump removed (depending on MRI results) then 3 weeks of radiotherapy and 5 years of hormone treatment as it was ER positive.
When i went back this Friday to go through what will happen during the operation the consultant just happened to mention he had not had the report back from biopsy to tell him if it is HER2 POSITIVE or HER2 NEGATIVE. If it is positive i will also need chemotherapy !!!
This was never mentioned previously and has sent me into a tailspin. I was coping with being told i had cancer and needed surgery and radiotherapy but cannot cope with the thought of chemotherapy at all.
Has anyone else with lobular cancer been HER2 POSITIVE ?
I can’t answer your question but just wanted to come on and say that chemotherapy isn’t as bad as you’re thinking. I think tv and films make it out to be horrendous! I’ve had two cycles of chemo and it really wasn’t that bad. First cycle I had no side effects at all, was worried they hadn’t actually given me the right drugs to starry with! Second cycle, I had a couple of days feeling a bit sick but now am feeling absolutely fine and awaiting my third cycle on 3rd Dec. I’ve also used the cold cap and at the moment have hardly lost any hair too
So if you do have to go down that route, please don’t panic xxx
Hi Deedee, I can only echo what KF791 said, chemo, for most of us, is nothing like it’s portrayed on the television. Unfortunately you will not get a full treatment plan in the early stages, chemo wasn’t mentioned to me either but the results of the pathology suggested it would be beneficial and for that I’m so grateful for our wonderful NHS, gold standard cancer care. Herceptin has to be given with chemo, it’s part of the licence for use and if you are HER2 + you will definitely need herceptin. I would say sit tight and think of the chemo positives - realise that may sound mad but I went from being terrified of chemo to being relieved I was going to have it, knowing everything possible was being thrown at the critter. Take care and let is know how you get on.CC x
As the ladies have said, the chances are that the chemo you will be on will make you lose your hair.
If where you have your chemo has the option of cold capping give it a try. It’s hard work to start with but if you can cope there is a chance you will not lose all of your hair.
I wasn’t going to try the cold cap as I didn’t think I would be too fussed about losing my hair, but thought I might regret not at least trying it. But I have my next chemo on the 3rd and tbh I kinda want my hair to start falling out loads so I can give up the cold cap (i find it quite painful and you are in the hospital a few hours longer)! But I should be happy that I’ve kept most of my hair!
