Hey ladies
Apologies it’s been all go! I had MRI after much chasing and got results week later! Tumour was 2cm and they said they still believed nodes to be clear! I had WLE week later and sentinel node biopsy (that was 2 weeks ago) my arms this time has been painful and my scar keeps bleeding! Each week I’m being drained of 50ml! Tomorrow is my results day to see whether clear margins and clear nodes so bricking it a little as I’m convinced my node is infected! It will obv depend on results on what happens I.e whether I need further surgery or whether I go onto chemo!
After doing some research I’m also going to ask for the oncotype test to see whether chemo will be of a benefit so that may delay things but I think if my nodes are positive then I’ll not bother and move straight to chemo!
Why is there so many decisions to make and why do we always have to wait for what seems forever
Keeping positive Unicorngirlmummy and Jill have you heard re PIP as I’ve just applied and due to chemo brain from 1st time around I’ve forgotten to attach any letter etc! Haven’t heard anything myself but been told the interview is awful ?
Hi girls, hope your all well. My surgery is booked for the 4th July and I’m bricking it, but kids are away with their dad so timing is good. After much tooing and froing im going for a single mastectomy with expander recon. I was getting the double but surgeon suggested not having recon till next year but I just can’t do it. It might be fickle but I need boobs. If all heals well I’ll get the right boob done later in year. I want to be recovered next year and put all this behind me, not be having more surgery and be off work again. Chemo is all finished and I’m not too bad but oncologist doesn’t want me going back to work in case I pick up an infection and have to put surgery back.
I have my PIP interview next Tuesday and they coming to my house. Don’t know whether to do the housework or leave it so they see how I normally live. My fingers are so bad with the neuropathy everything is a struggle! I’m dreading it tho, I’m such an emotional wreck just now I’m scared I blub my way through it!
I’m just glad the school hols start in a fortnight so we can chill and I don’t have to get up early. Just back from my daughters end of year show and yip, I cried. Can only imagine what I’ll be like next week when she leaves Primary school for good. Is anyone else an emotional wreck?
So today has not gone as planned Its spread to lymph nodes ? so now got to have PETCT and bone scan to see if anywhere else and terminal or whether it’s still curable!! Will see oncologist on 2nd July as gonna have chemo first before they remove all nodes as grade has been upped from grade 2 to grade 3 as it’s
More aggressive than first thought so no need to have oncotype test now x more anxious waiting and heads thinking all sorts ?
So sorry you got bad news Warcol - fingers crossed for your scans ???.
Yes I got awarded PIP -the whole process is pretty unpleasant but Im very glad to receive it as I lost my job due to all the physical and mental health fallout .Snoozy -don’t Hoover your house and blub away - they really are judging you on what they see and you need them to see you on a bad day .
Evening ladies, how is everyone?
Did you get awarded the pip Susan?
That’s awful to have to wait so long for your results warcol ?
So yes, mine is back for a 4th time! It came back 6 weeks after surgery. My surgeon can’t operate so I’ve been referred to another hospital to see if a surgeon there can operate. If not, then a referral to one of the London hospitals.
I daren’t cry or I might not stop! But yes, it makes you very emotional!
Hope everyone is ok xx
Good luck for surgery tomorrow Susan, I hope you’re feeling ok. Let us know how you get on xx
Hey girls. Aw Unicorngirlmummy I’m so sorry. Why can’t they operate. I hope they manage to find a solution. Big hugs and thinking about you.
Haven’t found out if I got PIP yet, could take up to another 4 weeks. I hope to god I do tho as been signed off for another 3 months. The interview wasn’t as bad as I thought, don’t know if that’s a good thing or not tho.
I’m bricking it for tomo, I am such a woos. I just hate the anaesthetic and worried what I’ll be like when I come round, and how I react to what’s left of my boob.
Why us, it’s just no fair.
Hope everyone else is good and enjoying the sun despite everything we’re going through. Big hugs to you all xxx
How did your surgery go Susan? Hope you’re feeling ok?
I hope your results were good warcol ? xx
Hi girls, op went well, still a bit nippy. I was in hospital for 5 days but actually quite enjoyed my stay, I was the youngest one there but quite enjoyed the company of the old dears in there. I got sent home with my drain which was horrible as I didn’t like moving about with it in. Got it out yesterday but I’m still leaking, my wee girl is helping me change the soggy dressings. Hate the feel of my boob with the deflated implant, can’t wait till they start pumping me up. Still got my nipple too. At the moment it looks like Sloth from the Goonies ?.
I got PIP but not actually sure what I’m getting as money in my bank but not had a letter yet. It’s not a huge amount if it’s backdated so assuming I didn’t get full amount. Still think cancer sufferers should get full amount regardless!
Anyway how is everyone else doing?xx
Warcol good luck with chemo, I did the same, ate all the food I knew I went off with chemo 1st round. What chemo are you having? I know everyone is different but I found it a little bit easier going 2nd time round, don’t know if it’s cos I knew what to expect or if it’s because I was so determined not to let it break me again. Maybe it was because I still hadn’t fully recovered from the last lot so I’m still so tired all the time I didn’t notice a difference lol. Big hugs to you anyway - you go girl xx
Hello snoozysuz
I have been 2 years clear since my last lot but agree I know what to expect now! I had FEC-T first time round but this time as I’ve gone from triple neg to triple positive I will be having TCHP which is Taxol, Carboplatin, Herceptin and Perjeta
Started well and just about to start the first lot- I’m being told I’ll be here for at least another 6.5 hours after being here since 9 this morning so my bag I’ve bought of goodies should feed the ward ?
Aw Warcol it’s a long day isn’t it, my 1st one was 8 hours, I had tax, carbo and Herceptin, get Herceptin jags every 3 weeks now till Jan so still not free of trips to the chemo ward, luckily I’ve made a few friends on the way so it’s nice to catch up.
I got my letter from PIP today, I got the standard rate but didn’t get mobility. Apparently I’m capable of walking 50m! I’m not even going to argue, but looking at the points I got I just made it. Pity my interview wasn’t just after surgery instead of the week before.
Hope your side effects aren’t too rough but rough enough for PIP!xx
Gin, vodka everything you can add to the line lol! First few days I’ve been done but OMG I’ve been hit by a bus today! Also had face to face pip assessment yesterday and how soul destroying! Think the weekend will be a bed weekend x hope everyone else is doing well xx
I had PIP assessment it is totally soul destroying I agree -they make you feel so pathetic don’t they and some of the questions are just ridiculous -I was absolutely exhausted afterwards .
I now have a repeat performance with the ESA health assessment next week .
Well chemo bus has well and truly hit me! OH is useless so I’ve had to drag myself out of bed just to feed myself! Gonna be a long day 
Hey girls. Lovely to hear from you Delly, hope you are well. How you feeling now Colista?
Unicorngirlmummy how’s it going with you?
I was back seeing surgeon yesterday and he’s happy with the way I’m healing, although drained a lot of liquid from wound and l look a lot more deflated now. Back on 27th Aug to start pumping me up. Surgeon wants to wait a good while before doing the right breast due to rads last year so thinking maybe end of the year. Good news is pathology came back clear so I’m cancer free again and I don’t need rads this time. Can go back to work in a few weeks too, although I’m dreading it, but that’s another story.
Big hugs to everyone xx
Good news snoozy! Take it easy going back to work - make sure your not overdoing it x
I thought I was feeling better but alas I’ve not left the toilet today! Just wish I could eat something and it stays inside xx
I don’t know what was worse with chemo, the constipation or the opposite. You take the medication and it just sends you the other way.
Or is it sickness you’re talking about. If the anti sickness tablets they have you aren’t working ask for something else. There are loads they can try you with. I was so lucky as I didn’t suffer from sickness. Good job as I couldn’t get up from sitting on the toilet and the bath is too far away ?
Seriously though hope you start to feel better soon Colista xx