Oh well after what I can describe a afternoon of hell I am back to report. Unlike the others I don’t have happy news, not bad news yet but not happy either.
The doctor had to do a biopsy because they couldn’t work out exactly what my lump is from the ultrasound. They think it probably ok, but can’t be sure.
To make matters worse the doctor had a needle stick injury when doing my biopsy. She got hysterical and asked me if I had any serious illness’s like HIV and Hepatitis. I was pretty upset as it was having to have the procedure, but her carrying on like that really added to the whole thing being a nightmare. She told me I had to have a blood test to make sure I was clear of anything for her sake. So not only was I being put through a biopsy to see if I had cancer, I was also told to have a blood test to see if I have HIV! I was pretty upset when I came out, and my other half said you do not need to have any blood tests. I don’t think I have HIV, but I had blood transfusions a few years ago when my son was born as I was very ill, and to be honest I would rather not know and do not need the added anxiety. My blood contaminated hers not the other way so I am not at risk. I had very bad depression after my son was born due to what had happened, and I was going to have a HIV test because of the blood transfusions. My Physciatric nurse, said I should not have it as it would make me more ill with anxiety. I don’t want to put myself through all that for someone elses negligence as I know quite well with everything else, waiting for results like that will push me over the edge, and I am literally clinging on at it is.
Oh dear - so sorry to hear that things did not go smoothly for you. It’s bad enuff having to go through the various tests and waiting for results etc without an added worry like this hanging over you. I would not worry about HIV from a blood transfusion given to you by the NHS.
Thanks Lilac, I am not worried about having HIV it’s just mentally I did not want to put myself through the anxiety of waiting for test results for something else. I used to have a bit of a phobia about HIV and when I had my depression I got totally and irrationaly paranoid about it, and I did not want to put myself in the situation of starting old phobias again, just to put someone elses mind at ease through no fault of my own. My husband knows the anxiety I went through in the past regarding it and he was really angry that I was being subjected to that again on top of waiting for the biopsy results. I could actually feel myself starting to have a panick attack when she started asking me if I might have HIV etc. It was not fair to put me through that during a biopsy for cancer.
I am sorry for your ordeal (((hugs)))) i think it was totally unprofessional for the dr to react in that way! I would of refused the blood test if it was me because she was the one who injured herself!!! its her responsibility to get the tests done and take measures to reduce infection risks ( if there was one there in the first place!!)
I hope you get your results soon and don’t have to wait too long.
OMGness what a palava. I agree with Hayley surely she should be the one to have the tests. Still you got that step over with now, did they say when your results will be ready?
Good luck with your results x
Yvonne xx
Hi there ladies, I didnt have the blood test, my hubby told them no as he could see I was getting really anxious. The doctor filled out the blood form and told me not asked me to go and have a blood test. I am not saying it to be mean to her, but without going into details of past anxieties, having a test like that would cause me alot of problems mentally.
I will get my biopsy results next Wednesday at 3pm. Hubby was going on a course which was residential. He has cancelled it to come with me. Another six days of worrying!
Thanks again for your support, it was good to hear that Tracy had good news at her appointment.
xx
a message for jules from marias sister, maria wanted to make sure that you got on all right today at your appointment.
margaret
Sorry to hear that it was such a grueling afternoon, hopefully you’ll feel better when you get your results.
Sorry you had to have blood tests too but those doctors and nurses have to be so careful, not just for their own sakes but to make sure they don’t put patients at risk. It does seem reactionary but I’m glad we take it seriously even if it seems heartless to us sometimes (I was always checking they’d used that gel stuff every time they came near me).
But sorry you had to deal with that on top of everything else.
Angie
I didnt have the blood test because I have issues to do with something really horrible that happened to me along time I ago, I dont want to go into details, but having unwanted blood tests would have caused me severe anxiety.
I will know next weds the results of my biopsy and just have to keep positivel
hi Jules
Sorry you had such a bad time
Thanks for your good wishes and i will be thinking of you
I really do wish you all the best and hopefully by next weds you can move on from the terrible time you have had.
Take care
Traceyxxx
hey Jules
Sorry to hear about your experiences today - it must have been extremely harrowing, having gone through what you have already I completely understand how you are feeling - I would be feeling angry and let down. However when you feel you can cope perhaps you will have the blood tests - It does sound that she reacted badly and prob is sitting at home right now feeling really bad about what she did to you but also rather worried about the implications.
All of us on this forum are here because we want to voice our fear although we know that they are irrational (because we are highly inteligent - spelling doesnt need intelligence)
The doctor is still like one of us - just scared and worried about the very small chance that something might go wrong -
You have been through so much as have all the women on this web and I hope that in time you do have the blood test - imagine if you were in her position - waiting for a result but in her case her result is in your hands.
Love
Jane xxx
I don’t want to go into details but something happened to me a few years ago, and I dont want to go into details about it, but for me to have a test like that would probably push me right over the edge and bring back my depression on. My physchiatric nurse told me that I should not have any kind of test like that because of the implications to my mental health. I might sound selfish to people on here, but as it is I have been referred again to that team because of how badly I am coping with everything that has happened, my mums cancer, my daughter being ill and now this, I really have to put my own mental well being first. I am sorry if that sounds selfish but I do not want to end up having a break down and ending up in hospital. I have my reasons, I just do not want to put them on here. I think to say her fate is in my hands is also a bit unfair. I am not saying this to be awkward. I have my reasons.
Sorry to hear about your upset today.It sounds like doc over reacted a bit and should not have took it out on you.
Good luck with results
Mary
xl
Thanks Maryfrod, the whole thing was pretty horrible. Brought back alot of demons and phobias, but I have to think positive thoughts till wednesday.
xx
Evening Jules,
It is hard at One Stop when you think it’s going to be all over and then it isn’t. Did you have fine needle aspiration (small needle no local anaesthetic) or core biopsy ( larger needle, thing that sounds like a staple gun and with local and a few paper stitches and shed loads of bruising)? I do hope that your team can tell you what’s what next week.
i had my appointment today too ---- still waiting for a final result, but at least I do know without a doubt that I do have BC - still not sure if it’s invasive or not. 5 weeks in now!! Can’t be much longer, can it!
keep up the positive thinking.
Don’t think about the blood test - it just makes it simpler for the dr if you have it - she will still need to have test herself both now and in 3 months time, then she’ll get the all clear. Lilacbushes is right - all NHS blood is from home sources and is screened. The only problem is with other blood products like factor8 which need importing, and you wouldn’t have had that.
POSITIVE THOUGHTS!
Td xx
Hi there I had both of them the fine needle first and then the thing that sounds like a gun, the gun thing wouldnt go off the frist time, so it was when she pulled it out to quickly that she jabbed herself. She had to get another gun thingy and it worked the second time. I had a gauze thing put on and paper stitches and was told not to lift anything heavy or remove it for four days. Neither of them hurt to be honest, the gun thing made me jump.
I feel for you waiting, I think you should change your name to waiting-very-patiently! I will keep my fingers crossed for you that you can get some results soon and start getting better.
xx
ps you said did i have one or the other, why did I have both, should I be worried?
Thanks xxx
Just so you know, I had a reaction to my dressing and had to take it off the next day. Consequently, the stitches fell off too, but it all healed nicely - I didn’t have a problem with lifting etc. Good job as my youngest is only 3!
Glad you sound calmer. The core biopsy should give you some definite results. It’s lucky that you had it on the smae day.
Sleep well!
Td x
That should’ve read same day!
No, you shouldn’t be worried. You have a good service at your unit. Your results should be all avilable next wek. Do something nice this week end!
Hope your Mum’s well!
Love Td x
Thanks for asking about my mum, she is doing ok, she goes back to the Marsden in two weeks time to see if her tumour has shrunk any more. I hope so or it will be the masectomy and I would hate to see her go through that. She is so bloody brave, you ask her about her cancer and she says oh that, I had forgotten about it, it’s fine, now how are you and my grandaughter!
I am going to be positive well try!
I must admit when I hear about lady’s like you having cancer with young children, it breaks my heart, its so not fair! I do hope you get better soon and can enjoy your time with your little one, they grow to fast.
xxx
Hi Jules
Sorry you had a rough time at one stop clinic, but it does sound like you have had a good check though which is what you want. I had and know quite a few people who had both a needle and biopsy done on same day to, Dont worry it does not mean the worse,try not to worry about that as well, its quite the norm in some centres.
Take care
Keep us up to date on your mum and yourself of course,
Dawn X