I just wanted to give a little support to Lolly as it seems, like a lot of other newer posters, she feels unable to say how she feels now for fear of others jumping on her comments,and thats sad.
I also dont post a lot here now since my dx 2 years ago for exactly the same reason.
Its very hard to strike a balance here between opening up about feelings and fears that we cant say to anyone else, but because of the nature of the site and the emotions that surround BC, I guess whatever we say will upset someone.
It would be great if we could maybe try just for a minute to put ourselves in the others position and realise where they may be coming from instead of jumping in with a ‘no,you are wrong because…’ and then it usually descends into a ‘my experience is worse because…’
I can relate to what Lolly says, I was considered young, early forties when I was diagnosed,with a teenage son, so I can only imagine how Lolly must be feeling with young children, but the difference is, I do try to put myself in her position and see where shes coming from, whilst others will only ever think of themselves and how they feel. I too harbour feelings of unfairness and yes, sometimes bitterness, towards much older people who are diagnosed or have other life threatening diseases. I know its wrong and I’m working through it, but they are my feelings and to me are valid all the same, I feel bitter that someone in their 60’s 70’s has had 20 more years than me of innocence, of peace of mind, of not having to think if they’ll be here next year.
I get angry when I’m constantly harrassed angrily by pensioners about why im using a disabled badge when I’m young, I just want to scream at them, be thankful that you have got to the age you are,I certainly wont.
So please everyone, even if you dont agree with someones feelings, they are as valid and real to them as yours are to you and they should be allowed to express them too, and we dont all have the ability and tact to get something across in the media of text , yes we all have BC, but we all have very,very different journeys and feelings, we should respect that.
SS xx