Hi Again
Still waiting for the 26th (next Tuesday) One of the onc is Chowdry btway. However, have asked BCN, Emma, if I can Maguire or of not Razir(?) have to say have lost some confidence so feel I must make a few more demands to egt to see who I feel more confident in.
I know I’m probably need lots of convincing too and, if I’m being perfectly honest, now that there has been even some possibility of mets, I feel I want to have some regular checks to be reassured, as I know all of us feel like we’re left in this limbo land until we actually notice something different or painful we bring to the attention of the experts.
Thanks for all of your thoughts and concern again. Will be back on Tuesday/Weds with the updates.
Take care love & hugs
xx
Hi There
Joe Maguire was on the clinic recently and I have only seen him once throughout my treatment. That was after my first chemo had affected my bowel really badly ( Chrohns history) and they thought the chemo may not have been suitable as it almost caused a rupture to my intestines. I had a consultation with him where he put the ball totally in my court and said it was up to me if I carried on with chemo as they had no way of knowing how it could adversely effect my Chrohns. (The week I was diagnosed with bi-lateral BC I was due to go into Countess for a bowel resection under the care of Dr Johnson, this was then put on the back burner until after bc surgery and treatment completed and as yet I have not had any further surgery to my bowel)
I found Joe Maguire was very thorough and easy to relate to but, as you say that was the one and only time I’ve seen him. We’ll see if my request to see him on 26th is met, - not holding my breath on that one though. He was on the clinic a few weeks ago tho.
Dr Zia I found to be very straight talking and relatable, I do have to say tho that Dr Chowdry is ok think it’s been mixture of where I was at mentally when I’ve seen her, coupled with the fact that she had so obviously not read my notes the first time I saw her and the second time none of my results were available. I was psyched up for the worst news and then to go away with NOTHING was all a bit much.Also my sister and brother-in-law had travelled over from Abersoch to support me and I felt so bad for them too.
What do they keep telling us??? Keep your stress levels down. HA HA.
My BC nurse Emma is very slim and yes I guess you would say blonde hair. I’ve also had some dealings with Jackie and Nicky and they have both been lovely too.
What a lot of rabbit again! So sorry. It’s obvious that my Saturday nights aren’t for partying anymore isn’t it!!!
Keep in touch
Diane xx
What is whispering??? Sorry to be so dumb!
Thank you Katie thats very helpful.
Kind regards
Hi There
Well here’s the update. I have to warn you it sounds like one of those sick jokes…woman goes to the doctor and he says “well do you want the good news or do you want the bad news”
Firstly, the good news. I have three fractured vertebrae on my spine which is due to osteoporosis (?). The evidence of spinal metastasis is still uncertain. My bladder appears to be showing no evidence of disease and is probably mis-shaped due to the adhesions from my history of Crohns. Now the bad news…I have several ‘spots’ on my lungs which, again, at this moment in time is difficult to diagnose if this is a further spread of the cancer. I will have to wait for a further 3 months when I will have another CT scan and this will determine if these nodules have grown in size, in which case a PET scan and/or biopsy will be required.
I have a hand written letter from Dr Azir to give to my GP so that I don’t have to wait for his report to get to my Drs surgery. It states roughly as I’ve said on the above and also requests that he prescribe, Adcal; Bisophonates and some sleeping tabs as the ‘happy pills’ haven’t kicked in yet.
I’ve been debating if |I should pack in work as I feel so depressed and have quite alot of pain plus my lymphodaema seems to be worse at present. I need to know I can do that financially tho so waiting for a call from social services rep to sit with me and sort it all out. The laugh is my boss today asked if would like to do full time instead of the 18.5 hrs I currently do. I’m obviously making a good job of hiding the fact that i’m in agony with my back and it takes all my resolve to drag myself out from under the duvet most days. Sorry- having a feel sorry for myself moment or three!
Love to all
D X
Diane
So sorry to hear this and still so uncertain too!
Bosses! They’re great arent they? Mine has decided that he is going to change my job whilst I am on Maternity Leave btw!! He hasnt told me but he’s had a word with my colleague for her to broach it to me, he doesnt want to stress me out …mind you, there was also talk of a ‘package’ being done - as long as its the right amount, I’ll snatch his hand off!!! My job is quite demanding and I really dont feel like I have the energies to put into it - its time for me to be selfish!!!
How old are you? (sorry for asking personal question!)
Have you got a date for starting bisphosphonates? My next one is Tuesday 11 March 2008.
Do not apologise for feeling sorry for yourself - I think that we are all entitled to do just that!!
Take care, Diane
Anne xx
Hi Anne
Id it me or is it just so funny when you hear the phrase - “don’t wish to stress you out BUT,” I hope that you can get the package you want and then it will release you to have some quality time. When is baby due?
I am a VERY YOUNG 57 - ha ha!!! Just had a birthday and find I have to really think how old I am as I don’t feel my actual age at all.
I see my GP in the morning so I assume I will start bosphosphonates asap. This is all new ground for me now tho/ Any tips, tricks or experiences will be gladly rec;d.
Going to try and get a decent night’s sleep tonight, The biggest laugh I’ve had recently was when I genuinely felt the Earth move at 1.ooam this morning and not a man in sight!!!
Thanks for replying Anne. You take good care.
Diane xx
Diane
Sorry to disappoint, but no its not just you that finds that phrase so funny - they know exactly what they are doing, dont they?!
I went off with stress a couple of years ago - caught in the middle of one boss and the one that I’ve got dealings with now - one telling me to do one thing and the other telling me to do another - I flipped!!! they were so pathetic!! (the other boss left cos he couldnt get on with this one!! - feelings mutual!!)
Diane - I hope that the figures work out for you also - a VERY YOUNG 57 year old deserves to have some fun and not be worried about work.
Are you claiming Disability Living Allowance? Exemption from car tax?
I’m 42 and had my baby boy last August - born on 21st and dx with bone mets on 23rd.
I’ve got appointment with GP this afternoon - just to have a chat really. She has been on Mat Leave also, so she wants to catch up.
I would be due back in work 19 May - but if I take annual leave thats owing, I’ll be due back end of June.
How did you get on with GP? Are you on tablet form of bisphosphonates?I’m on Zoledronic acid/Zometa infusions - 4 weekly. I also have adcal.
LOL at the earth moving for you!!! My hubby thought I was crackers - he is the light sleeper and yet, he slept through it, Once my head hits the pillow, I’m out for the count and yet it woke me. 3 cats werent amused by it though - they went skulking around to investigate!!!
Hope that you are ok - I will pm my e-mail addy and if you want to ask anything/chat that way, then feel free.
Best wishes
Anne xx