Ok the WIND topic has brought that issue out into the open - can I ask whether anyone else has bladder control problems when on chemo? Very irritable bladder keeps me running quickly and I’m wondering if others have the same problem?
Hi
If you are getting cyclophosphamide - the C in FEC and CMF, it can have that effect. The advice is to drink plenty of water 2-3 litre per day. Do speak to your onc or BCN, according to the fact sheet I’ve got, if you are on a high dose, there’s a drug that they can give you that can help prevent it.
Good luck
Dx
fec made me feel some urgency. The sort of urgency as though you’ve been drinking alcohol with the uncomfy tingle feeling.
It did pass by fec 3.
Yep I had that as well, was up and down all night during chemo. I was told to drink 2 litres of water following the chemo. Embarassingly I sometimes had problems knowing if I’d stopped having a tiddle. I mentioned it to my onc as I thought perhaps the chemo had damaged my pelvic floor or bladder but he just looked bemused. I swear it’s not 100% now x
Sorry to hear others are suffering too - but also “relieved”!! Yes “urgency” is a brilliant description Elttiks and it does sound as though I should mention it to Onc so thanks for the suggestion D. Yep, I had it with FEC - not too bad with TAX - and now I’m getting it with Vinorelbine… better some days than others but not sure of the pattern re chemo timing yet so will need to monitor things. Maybe I should drink more water and less green tea…
Try dumping the caffine. All of it, tea included.
Made life far more comfy for me :o)
I have had similar problems, never used to have to get up during the night before chemo - now I am up about 2 to 3 times. I stopped drinking coffee and tea straight after diagnosis. Now only drink water, and fruit juice and also some fermented fruit juice (cider ha!)
I did have this during chemo - it got better, but it’s back again with Tamoxifen. And not just urgency but less actual control as well - suddenly not finding the jokes about old ladies smelling of wee quite so funny!
Ooooh, that’s a different matter. I really would make a point of getting some help with that.
Yep know just what you mean Flinty about lack of control… maybe we should mention it to Oncs instead of suffering and buying lots of pads (cheapest I’ve found are Sainsbury’s basics at 14p!!) Has anyone asked a medic about this problem? I’ve always had a “sensitive bladder” that seemed to be hormone related so that might relate to your Tamoxifen issue - but not sure about the chemo except that chemicals might be causing muscles/values to “malfunction”; it’s getting beyond a joke for me too which is why I felt I had to start this thread …
Yes, have had an irritable bladder since starting chemo and need to pee often and it is often strong-looking wee even if I drink loads. Then spontaneously, it goes almost clear again. The colour/concentration seems to be out of my control.
Call me weird, but does anyone else get an urge to go and pee on the lawn after chemo, just to see if it kills it?
I have managed to resist - and I would only have done it after dark!
Dx
Ninja what you said is so me, one min wee strong next clear, smelly and sometime it has like an oily film on it as well, I have taken to wearing tena lady at this time, cos it comes on so quick. And 3 times a night sound right too, I stopped drinking caffine and alcohol when I started chemo cos of sweats so I know that that not making it worse. I feel like one of those old wee smelling ladies you sometime see.
DJ says: “Call me weird, but does anyone else get an urge to go and pee on the lawn after chemo, just to see if it kills it?”
I can see why your avatar is a pussycat!!!
OMG I hope we don’t all start with Fish Odour Syndrome…
Ninja - I blame it on being an outdoors sort of girl, spending lots of time in fields with horses and no loo in sight, long walks ditto. Alfresco peeing comes quite naturally!
Me, too, but no horse, just outdoor lifestyle. I am the proud owner of a SheWee. It’s great at night in a tent; I can use a pee bottle with it, just like the boys and don’t need to get dressed to go outside in the pouring rain to pee.
DJ says: “Call me weird, but does anyone else get an urge to go and pee on the lawn after chemo, just to see if it kills it?”
Ha ha ha ha ha ha ha ha ha ha ha ha brilliant.
DOnt have a lawn but wonder if I should have a bash at a pot plant, just to see 
DJ - fantastic! I now have “an urge to go and pee on the lawn after chemo, just to see if it kills it?”
I’ve had FEC3 this morning so concentration will be good and strong…
I needed a giggle… thanks
Should we set up an experiment - my last tax was on Tues, so I bet there’s still some in my system! Might be worth it’s own thread?