Short history - dx with grade 3 invasive ductal, agressive triple neg cancer July 07. Had chemo, mast, rads - which finished Feb this year. Then in Sept, had full node clearance for cancer in nodes which I had found.
I was put into early menopause with chemo (I am 40), no period since Oct 07, and I know I am menopausal as my FSH is double what they would class as menopausal!!.
Over past couple of months, I have been getting lots of thick mucous discharge, which then turned streaked with blood over last couple of weeks, then last night, had a bleed vaginally with small clots. Is this normal when your menopausal??? Anyone else out there experienced this???
Incidentally, I have a lump on chest wall of affected side I am going to see Prof at hospital about tomorrow so doubly worried at mo!!. Hoping this is nothing but have a deep feeling of dread.
My periods stopped last year (Nov) just after my fourth Chemo. But then out of the blue I had a normal period in August. I then had 2 further normal periods exactly 28 days apart.
Periods have stopped again and hot flushes have come back since then. I havent been offered a test to see if I,m menopausal and my Onc says that its just the side affects of Tamoxifen. ( I,m 40 also )
Best of luck with your appointment tomorrow. I.ll be thinking of you.
Lots of love Andrea xx
I’m not on tamox or anything since I’m triple neg - but thanks for the reply and best wishes for tomorrow. Maybe my periods are returning but it was very very doubtful as FSH level was so high. - Who Knows???
I am menopausal (61) and haven’t had a period since coming off HRT 18 months ago. This week, period pains, discharge and yesterday blood with clots. Went to see doc at the start last week and am going for internal Wednesday. He thinks it might be hormonal . Am on Tamoxifen. Will keep you posted.
Wish I could say it was good news but it wastn’t. I have local recurrence of chest wall. Now need staging - ie bone and ct scan to check for spread and will need further surgery and chemo - dont know in what order yet. I am absolutely devastated, numb, angry etc and just cant bear the thought of starting again. I feel I dont have any reserves left, but know I will have to find the strenght. Everything still up in the air as to when things will happen, but know my team will get it all done asap. Its just not good that it has come back so quickly, being a nurse I know that. Everyone saying stay positive but thats very hard to do right now.
I am sorry to read of your recurrence, you are bound to feel devastated and it sounds like you’re going through a pretty worrying time. I’m sure you’ll get loads of support here from people who have had a similar experience but If you are feeling upset and worried and want to talk to someone who understands what you are going through then do give our helpline a call.
Everyone working on our helpline either has experience of breast cancer, or is a breast care nurse, and has an excellent knowledge of breast cancer issues. They are on 0808 800 6000 and are open Monday - Friday, 9am - 5pm and Saturday, 9am - 2pm.
Don’t know what to say except I am so sorry you have to through this again. Take comfort if you can in the fact that you’ve got through this once but the nasty b****rd is trying you a second time. I do hope you can find the strength and support to see this through again.
My thoughts are with you.
As for me ,have to go back for internal on Friday as he wanted to give it another couple of days. Am having a hyteroscopy as well when I get appointment.
How are you this morning? Bet your mind is still in a whirl, I can imagine . Are you at home today or at work? It’s difficult to function normally isn’t it. Hope you get support from your friends and family , but I bet you don’t want to talk a lot about it at the moment? I remember when a was dx I used to upset if people didn’t talk to me about it and upset if they did- it was a no win situation for them sometimes.
Hope things get moving quickly for you, at least it makes you feel as is something is happening.
How did they manage to diagnose that so quickly when you went to see the Prof?
Still numb, seems surreal, but very angry as well - if that makes sense!!
I worked yest but was off today. Bone scan done today and ct tomorrow. Was supposed to be working tomorrow and sunday but have taken a couple of annual leave as its really starting to catch up with me.
My friends and family are very supportive. You know what its like, some people you want to talk to and some not. But at the mo, I am pretty quiet about it as so angry and cant believe it I suppose. I get angry (but dont show it), at things people are saying. They are meaning well but its all just meaningless words - be positive and you have done it before etc etc - just want to scream you trying being bloody positive in this position!
When I saw Prof, it was a one stop clinic so they did fna under ultrasound guidance and had a lab person there, so saw the cells right away.
Looks like surgery is going to be on sat 20th dec - its so near christmas but I dont care as I just want this bloody tumour out - would cut it out myself if I could.
Know what you mean Sparkler, just get the bloody thing out, consider it a Christmas present or rather- past. I know I would feel the same. Keep moving and groovin’ and keep posting. You know we all on here know what it feels like, I am so bloody angry for you too.
So what my love- do what you want to do when you want to do it. We all change our ways of thinking with this damn disease. I hope you didn’t take it the wrong way when I said about Christmas presnt. I was only meaning it would be a gift to get rid of the damn thing.
Just going to raise a glass ( or 3 ) to you and yours.
Will raise a glass to you and yours too - cheers!!
Could just cancel christmas this year but cant for my daughter!!
WAs supposed to be getting new boobs for my birthday as recon was booked for same week as my birthday - but that has all gone out window. Would have laughed about that brithday pressie - what did you get for your birthday - new boobs!! Now I will just be happy to be cancer free!
When is your birthday? Will raise a glass or two to the riddance of the bloody cancer.
Went for internal and Dr said all is O.K. then as I sat down said 'Your womb is a bit *****. Aaarrgghh can’t remember the word! Was it bulky, lumpy swollen ? I can’t bl;***dy remember!! I almost felt like phoning him up and asking. Anyway am still having ultrasound and one of those Hysteroscopy things.
Do hope things get moving for you soon, The waiting is the worst.
Birthday not till April - but was meant to be getting new boobs then
Glad internal was ok - will keep fingers crossed that you get your other scans soon and that everything is ok.
I am still bleeding - not sure if its period or not - thats 9 days now!!! I know its been a year but I never used to bleed for this long. Surgeon didnt seem concerned but did say he woujld refer me to gynae
Just have my mob glued to me now waiting for results.
I had a busy weekend with friends so that was good that they are keeping me busy. Its gonna be a long wait now tho.
Its freezing here today - gonna go for a swim I think.
Sounds like you will get the same checks as me I think.
Glad you had a busy week-end to keep you mind off things. The quiet hours are worst aren’t they, especially if you wake in the night,you feel like the only person awake anywhere!
Go and enjoy your swim. Myself I am not a very good swimmer and can only do ( dare I say it) BREASTROKE- oh puleeez.
Soz I have not been in touch. Have not had a good week - in fact thats an understatement.
I had a phonecall on Monday - ct scan showed mets to lung and a couple of questionable other areas. So obviously my whole future has come crashing down. I will no longer be getting surgery and am starting chemo on 28th. I am now ‘terminal’, and the best I can hope for is control of the secs, try to prevent further spread for as long as possible.
I am not sure how I am going to come to terms with this - will I ever completely? I dont know.
Just taking each day as it comes at the mo and gonna try to enjoy christmas with my daughter and dad. God it was tough telling them - espcially Suzie.
And to top it all, its 2 weeks down the line - I am still bleeding - heavier each day, and today was horrible - clots, very very heavy - had to resort to phoning nhs 24 and have got some tablets for slowing things down!! I need to try to keep my blood counts up for getting ready for chemo and feel weak enough just now before that.
