Blondie - 21 years on

Hi Blondie

Thank you for posting Blondie, it gives so many of us hope for the future.

I was diagnosed just before xmas 2023 with breast cancer and liver mets.
I had my final chemo today and will continue the Herceptin & Perjeta injections every 3 weeks. Awaiting first scan results.

Best wishes to everybody :heart:

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Hi Blondie, It’s posts like yours that really encourage me. I was diagnosed with bone mets last September. Unfortunately there were two lesions in my spine that needed immediate radiotherapy and I have had to wear a neck/back brace ever since (except when I’m laying flat on my back). I’m having monthly bone strengthening injections in my tummy and taking Ad cal so really hope that my next CT scan will show that my spine is strong enough to do away with the brace. I know that my cancer can be contained but not cured and I take twice daily Abemaciclib and daily Anastrozole. I just really want to know that there is a life for me to look forward to after the brace is removed, so love to read positive stories. Also, is there anyone else out there wearing a brace.

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Hi @ness2

Welcome to the forum. The group nobody wants to belong to but has really supportive people to keep you going.

I’m so sorry to hear of your diagnosis. I had bi lateral invasive primary so can’t fully understand your situation but it’s always something on my mind.

I thought I would share with you some links on BCN that may be helpful. The someone like me and secondary group might be useful. You might find someone who also has a brace.

  • Helpline: 0808 800 6000 (Mon-Fri 9am-4pm; Sat 9am-1pm). Speak to our trained helpline team. No questions are too big or too small.
  • Ask Our Nurses: You can message our nurses here on the forum, or confidentially. Whatever you prefer.
  • Someone Like Me: Will match you with a trained volunteer who’s had a similar experience to you. They’ll be a phone call or email away to answer your questions, offer support, or simply listen. Call on 0800 138 6551 or contact our email volunteers
  • Secondary breast cancer is full of uncertainties. But you can count onLiving with Secondary Breast Cancer to be there for you, no matter what. You’ll be able to talk, listen and learn with people who understand the challenges that secondary breast cancer brings. Our groups are open to people with a secondary diagnosis. Monthly sessions, facilitated by a therapist, are held in a variety of locations across the UK and online. Find a group. And if you are 45 or under? Our Younger Women with Secondaries Together events provide information and support
  • LiveChat: Open to people with a secondary diagnosis. A private chat room where you can talk to others in a similar situation.

Take care :smiling_face_with_three_hearts:

Apparently people who have infections after lumpectomy surgery are more likely to have recurrences or maybe that was just coincidence. There’s so many bits of research out there but some are probably of higher quality than others. At one time women who were night workers were supposed to be more at risk and the generations study I am in have proved that to be untrue

Hi
I had 3 collpsed vertebrae 2 years ago, so i had to wear the neck collar, and a bust. I was walking with a old people stroller. But most of the day lay flat, use a pan in bed instead of toilet, eating in bed. Than start to move very carefully, i didn’t want to injure myself…but slowly improving and moving more and more. Than i ditch the stroller and used two canes and the bust and neck collar. Than no more cane, than no more bust and collar. It took about an year because my injure was very sevear…
Now i trail running again as i used to do, and do cardio yoga 30 minutes a day. I hold my 4 year older of 17 kilos again! I truly never expected it! I though walking was over for me.
So best wishes to anybody with bone mets, movement is very important to heal bones!

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Thanks for your reply. I’m up and walking everyday and just waiting for life to return to some sort of normal once the collar and brace is off. Still struggle to get the brace on by myself, so grateful for a helpful husband in the middle of the night!

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Well done I hope you soon progress to getting rid of the collar and brace.

Seagulls