Actually LG I haven’t met anyone who has had this done so it is good to hear of others. The main problem with me is because of the difficulty of getting between the vertebrae and the damage in that area of my spine he can’t get the steroid as close as he would like so is going in below and shooting it upwards! But I am hoping 
for a result.
Dawn
xx
Oh Dawn, hope you get some relief. Sounds a right palaver.
x
Yes, best wishes Dawn. J xx
Hope you feel the benefit from your new treatment soon Dawn. You deserve a break from the pain you have been having. Take Care, Val
keep my fingers and everything crossed for you Dawn. Keep us posted how you get on! Take care xxxxxx
Hi Dawn - I also hope that this rather gruesome procedure has done the trick. I guess you may get some bruising from all the attempts but fingers crossed that it has done the trick and you get some good pain relief.
Hi to everyone else on this thread - what a lot to read as someone else has said! It is good to come on here and share our doubts and questions - at least we do all know what it’s like even when (well meaning) friends say how well you look when we’re actually having to deal with a lot of medication and treatment all the time. Good luck to everyone having more active treatment right now.
Nicky xx
ps - the bisphosphonate question - I moved from Pamidronate to Bondronat 2 years ago - at my request as my veins are shot to pieces. There’s been no talk of changing or coming off these as they are working well for me, along with my Arimidex. My onc was very pleased with my total lack of progress (well, my bone mets total lack) when I saw her 3 weeks ago - even though I found out I’d got 2 other tiny mets on my spine that no-one had ever mentioned before, although they had been there from the beginning. What a ‘lovely’ surprise!
Hi Dawn
Hope you are getting some relief from the spinal injection
nicky08
Goof to hear that you are not making progress( how would we all have felt at school if this were said!!) It’s comforting to know that there is an alternative to Pamidronate as my veins seem to be geting to ther stage that each time it’s harder to get ther cannular in and is more painful.
Love to every one and to say it’s so good to share all the feelings we have
Love RosieXXX
Just a brain dump from me - prompted by Dawn’s treatment - you’ve given me a lot of support since my sec dx Dawn and wishing you all you could wish yourself in terms of luck.
I have a mental brick wall right now which I am refusing to cross - we have a cruise booked from Bangkok to Hong Kong over Xmas and New Year and including our 33rd wedding anniversary. I come back from that to CT scan on 6 Jan to check my lung nodule to see if it’s changed, and presumably they’ll look at the spine and skull mets to see if the exestamane and ibrondant is doing anything as well. But I’m not letting myself think about that - amazing from a control freak who plans everything 24 months in advance!
Oxycodone is gradually getting me more into its grasp as I’m up to 25mg twice for the slow release but needing breakthrough of 10 mg at least once a day which means I think I should up my SR - but I really don’t want to. Sleep is my new best friend - punctuated by odd dreams, and altho it’s 2 year since my last cheno I’m still chemo brain affected - either that or I’m underestimating what pressure I’m under - pain, diabetes playing silly B’s, clinical depression having a gala day, acclimitatising to being on the scrap heap work wise having been retired in May.
Just had to sort out my latest mess - we were going down south to see very aged Aunt and Uncle, who begged us to keep in touch when we saw them in September at my Brother in law’s funeral (from BC)and I’ve just realised the flight I’d thought was tonight was last night - joy! More money down the drain for rebooking flights.
Thanks for listening - I feel bit better now.
Nina
Hope you are feeling better today BSL/Nina.
Got up early to go to ward to get 2 units of blood. Was told they would have crossed matched it and so would be in 4/5 hours. Arrived early. Got me hooked up. Nurse told me it would be 2 hours before blood was ready as needed to be crossed matched. Told today’s nurse that last Friday nurse had phoned to check and bloods on Friday would be fine. WRONG! I was in hospital from 9 15 until 5pm. I said if I had known I could have popped in yesterday and had bloods done and not only would save me 2 hours extra in ward but they wouldn’t need to look after me. I was hooked up to saline drip by this point. I got hooked up with first unit of blood at 12.10! I am SO CROSS. I have had a low HB for 2 weeks now and no-one checked my blood results at hosp until I phoned THEM to see if they were ok before they gave me my Zolidronate infusion. Lesson learned. PRESUME NOTHING and check check check because they don’t seem to know what they are doing…or they are running around trying to do TOO much and getting nothing done. RANT OVER. And know I don’e feel any better!
On a better note I wanted to know if a Secondary’s Group was still on on Monday night at our hospital. The BCNurse was at clinic but the clerkess/nurse went down to McMillan Office to find out for me and called me back on my mobile in 5 minutes. Now that is really GOOD Service. Thank you. You made my life easier. Home now and feeling shattered. Love to all BM ladies. val
Hi everyone,
Dawn the nerve block procedure does sound very uncomfortable, I hope it relieves the pain.
Val, I am not surprised that you are fed up with hospital chaos. Whilst I am waiting for treatment I often see people put back because they had their blood taken more than 72 hours before treatment/infusion. I think they should put up signs explaining the 72 hour rule.
I went on strike this week. I did some picketing, gave out leaflets, and managed to put stickers on two police officers, one police van, a community payback van and one offender who was waiting to picked up to do his unpaid work. And I didn’t even get arrested so all in all a good day out.
Alex D
Hi Nina
You rant away! That’s what this site is so good for - off loading on ladies (mainly) in a similar situation who understand how this bloody disease affects us without upsetting our loved ones. Hoping that your trip down South has gone ahead OK. As to the fantastic sounding cruise - wow - wishing you well with the pain meds so you can enjoy every minute of it
Val - what a pain. When the hospitals get it right it’s great but when they get it wrong it seems to be so much worse. I expect you will be shattered for a few days now so I hope you rest up and the transfusion brings back your energy levels.
Hi to everyone else, hoping your weekends are good.
Nicky xx
Good Morning Ladies,
It has been 2 weeks since my last consultant appt and JUST about feeling better mentally. I get very down when i come back from seeing them and takes me this long to calm down and get back on track! It was a good appt and all seems to be stable but i get so stressed that after i feel almost back to when i was first diagnosed .
I have started on AI’s and have felt quite achy and a few pains in my feet!!? Anyone had similar?
Love to all
Liz xx
Hi, I am new to this forum. I had mastectomy in 2005 and now find I have bone mets in my hip. I had a total hip replacement 4 weeks ago and am seeing my oncologist today about next steps.
Hi Thumbie
I fairly new to this thread myself. Was diagnosed with bone mets in Sept and have found every-one so helpful and supportive and informative. Feel free to ask any questions, there seems to always be son-one who can give you the answer. I
I too had a total hip replacement and that’s how the bone mets were found. Good luck with th Onc.
Rosie x x
Thanks for the welcome trash. I hope you recovered well from your hip replacement. I am getting frustrated with not being very mobile, but on the other hand am catching up with reading and films, and being waited on. Found out today I probably have some mets in my spine. I will be having an MRI to look into it, bisphosphonate infusions, hormone treatment and radiotherapy. Is this similar to your treatment?
Hi Thumbie and welcome to the BCC forums
I am sure you will find lots of support and information here from your fellow users, in addition I am posting a link to the BCC secondary information page where you will find further support ideas and information booklets:
breastcancercare.org.uk/secondaries
Our helpliners are also here to offer you support and a listening ear on 0808 800 6000, the lines are open Mon-Fri 9-5 and Sat 9-2
Best wishes
Lucy
Hi thumbie,
I just wanted to say welcome to this really quite special thread. It is such a help to know there is quite a large group of us here with bone mets. Mine is not similar to yours in that I have not had any bones break, or bits replaced. I have had extensive bone mets though since 2002 and mine are kept in order! with bisphosphonates and herceptin. I have over the years had quite a bit of radiotherapy to help with pain and generally the pain from my bones hasn’t been too bad. I have a lot of pain but that is down to a sneaky tumour sitting next to my lower spine and squeezing the nerves. (OUCH)
I think as you get replies you will find quite a few who have had hip replacements - so lots of support for you.
Dawn
xx
hello thumbie
I have mets in my spine,hip,pelvis and femur but luckily to date no broken bones.I had a lot of pain in my spine when dx in 2009 and had rads to help.The pain now is not too bad unless I do too much and then it’s painkiller time.
I am having zometa for the bone mets and take letrezole.My latest scans show all bone mets to be stable so the treatment is doing it’s job in at least stopping progression.
Make the best of being waited on and hope you get started on your treatment plan.
Sorry you had to join us and I am sure someone will be along who has also had hip replacement and more info for you.
Love Lucinda xx
Hi thumbie, I was diagnosed with breast cancer and bone mets together when my hip spontaneously fractured in 2003. I had a new hip and 8 years later I’m pretty much pain free and I’m doing ok…all the best with your treatment…x
Hi thumbie and I can see you’ve had a good welcome already
It is a huge shock when you hear that your BC has spread so we all know what you must be feeling right now, let alone the frustration of not being mobile. However, at least you know you are already in the treatment planning stage which has helped us all once we are fighting the buggers! My Bc came back after 4 and a half years and I have mets in my hip plus a few small spots on my spine. Since having chemo in 2008 (to also treat a local recurrence) I have been on hormone treatment (Aromatase Inhibitors) and Bisphosphonates and my most recent scan 3 months ago showed stability, therefore no progression since 2008. Like Belinda, I am pain free - although have not had any operations - and live life pretty much as I used to before my dx. I hope you have a good appointment with your oncologist and your treatment plan is as unintrusive as possible. Good Luck
Nicky x