Just to report my good news…MRI scan last week stable and markers stable.yeh. I am going to have an extra week off capecitabine because of sore hands and feet and then start cycle 19…long may it continue.
Thanks Liz that’ll be great
Herbgarden - congrats on your good news x
Great news herbgarden.
Where do you get the macademia oil from. I think i need some!!!
Melxx
Well done Herbgarden on being stable, great news.
Could i please pick your brains ladies? I went to my GP on Thursday with a numbness to my legs and undercarriage. It feels like the numb sensation you get with a dentist jab. My GP referred me to my oncologist who i saw today. I had no sensation in my toes and my knee reflexes have disappeared.
I was sent for an MRI scan of my spine then back to the oncologist for the results. He couldnt see any problems other than the spine mets already known about and he doesnt know why i have these symptoms. We discussed radiotherapy but decided to leave it and see how things continue. Has anyone else experienced these symptoms please?
Wishing everyone a good nights rest
Caron
Great news herbgarden 
Long may Capecitabine work for you, and all of us on it.
Caron - sorry can’t help with your numbness problem but this post should now be near the top so someone else may be able to.
Nicky x
Morning Lovelies!!
Just been reading back through the posts as have not been on for a couple of days.
I had my scan results on Monday - Phew!!! It shows a good response to treatment so far with one tumour shrinking from 42mm down to 15!!! And the bone mets have shown little activity ( something to do with how much dye is drawn into them? think thats right) and cos little was absorbed it means the little sods are having a quiet time! Long may it continue!
Not much hair growing - but eyebrows have just fallen out!!! WT??? anyway, it’ll come back (i hope)
Consultant has given me new pain killers for my back which are helping, so all in all feeling more positive!!!
Hope everyone else is feeling ok??
big hugs
Lorna xxx
Tillie 45, great news…it takes a whole weight off for a while doesn’t it. Carrie Anne I guess the worry was that you had cord compression…the symptoms of tingling and numbness and altered sensation or loss of control over bladder or bowels are classic symptoms so onc would have been keen to exclude or quickly treat that. I guess if things deteriorate do not wait but get back in touch ASAP. Best wishes. Pamx
For Caron, Hi I had some of the symptoms you mention but just one leg. (I was diagnosed with bone mets in 2003) I had an MRI and it was due to nerves being ‘squashed’ as they went down my leg. I had 5 lots of rads over the New Year which pretty much solved the problem. Take Care, Belinda. PS…edited to add the rads were to the sacrum area. I’d had rads there before but was able to have them again as the first dose were given about 5 years ago.
This thread has been a bit quieter than normal. I hope that is because you are doing fun things and NOT because you are having a tough time with your symptoms and treatments.
I don’t know what they put in my drip on Thursday but I have had an extreme burst of energy that has me doing stuff that I haven’t been abe to do for ages! I have done housework and tidied up things and am planning on making dinner tomorrow using a new cookery book that I bought today in Tesco…The Hairy Biker’s Great Curries…only £10 instead of £20 in other shops.
My husband has ordered me to sit down…he is making today’s meal which is roast shoulder of lamb, roast potatoes, roast parsnips and brocolli and his usual amazing gravy…the aroma coming fromt he kitchen smells delicious.
I just cannot stop my mind/brain going into overdrive…I wonder if they overdid the steroids by mistake…reminds me what I used to be like before all this chemo and hip repleacement started last year. And what a horrible year it was…the worst bit was losing my poor Mum who I think of every day…especially as I look in the mirror…with my bald head ( not that she was bald but I look so like her without my hair).
Sending hugs to those that need one and hoping that you are doing something nice and not having a difficult time. Much love Val
Val u make me smile - how many cookbooks do u own? Do u av a room devoted to them? We’ve been to see mamma Mia today. It was fabulous! Alice was singing alongWe r tired now and chilling out. Just put Alice to bed. I forgot how exhausting London can be. Well tomorrow we are off to look at bling or in other words the Crown Jewels at the Tower of London. Hopefully get in a few more sights. There’s the st Patrick’s parade too which could be fun. Just hoping I have the stamina.
Love to all. Hope u r all having a pain free weekend x
Katie so pleased you are having a good time in London.I worked in London in the late 60s/early 70ths(god that makes me sound ancient) and loved it but I it is so busy and noisy these days,I even learnt to drive in central London.Enjoy the ST Patricks Parade,I bet Alice loved mamma mia.
Val could do with some of that energy,the housework is piling up around here but OH has a man cold and I have slept most of the day.I have been doing well on the painkillers but tried to cut back on them a bit because I felt so tired, and, I think the new treatment is also causing me some fatigue, but the result was the pain starting getting worse so I had to go back to the full dose.Pain now back under control but so drowsy and energy levels nil.Hopefully will get to hospital this week,weather permitting, to get MRI results so hopefully they will have a treatment plan.
I know what you mean about missing your Mum.Since my grandson was born I feel so sad she is not here to see him.She would be so proud of how good a father he is and what a beautiful little boy my grandson is.Hope you enjoyed the roast lamb,we had lamb chops and hubby enjoyed his but sadly I can’t stand the taste of red meat at the moment.
My son is the cookery book fan in our house,he’s a great cook as well.We swap books and recipes but he’s a bit more into hot spicy food than me.Enjoy your curries and have a good weekend.Just hoping for some better weather and I can take my new scooter for a ride to the seafront ( well a slow one as it only does 4mph).
Have a good weekend all xx
hi all, feel really inspired especially by you dawnfc, to have bone mets for 10 years it is wonderful to hear all your stories. has anyone tried that new shampoo at boots that is supposed to help hair grow faster, i think it is 25 pounds which is a lot but i would pay it if it stopped my hair going any thinner. i always looked so well but now my hair looks so awful i dont look a picture of health anymore. mags x
Brighton belle - I have been using the fast shampoo since January! Not sure it works. Should have carried out controlled experiment and washed half my hair with fast and half with something else to compare! It could well be working but I am impatient. Had such long hair before.
Well I truly ache today - but had such fun!!! We enjoyed seeing the Crown Jewels - Al suitably impressed. Had a trip down the Thames, a walk up to Trafalgar Square to experience the st Patrick’s day celebrations then on to the natural history museum. I lived in London for short while whilst I was a child 30 years ago! I just wanted to take Alice to all the places I enjoyed as a child! Suppose in my way I am making memories ! I don’t mean that in a morbid way tho! I have been busy doing things like this since I had her. I catalogue everything. I started it originally so that when she hits those teenage years and says I did nothing with her - I have proof to the contrary!
well I will stop rambling. Good luck with your hair Brighton belle! Go for it and get the shampoo. Nothing ventured…
Xxx
thanks katie, i feel really bad with tummy ache i have decided to take a pill tommorow to put me out of my misery and am going to treat myself to the shampoo. i have got a liquid i put on my eye lashes , when i remember, but i dont think it is doing much. well thanks again mags xx
Hello Dawn
Thanks so much for getting back to me. Its so nice to hear a supportive voice which understands. I also wanted to ask both you and Val and Lemongrove and any other women who have lived with bone mets for a long time about what I should expect. I have bone mets widespread, had a double masectomy, and am on ibandronatic acid and tamoxifen. I find it very difficult to tolerate the side effects of both the ibandranotic acid and tamoxifen - they both make me very irritable and emotional and the hot flushes are unbreable. Has anyone got any tips to deal these effects?
I was told I had grade 1 and grade 2 tumors - does anyone know what this means in terms of the rate of growth of the cancer? I am very worried about how I would cope when when my condition gets worse…can anyone throw any light on what I should expect with time ?
thanks so much
I have so many anxieties I am constantly on edge. How do you all manage this awful fear? Ian scared of my partnerleaving me i am scared of pain scared of the future
Hi Sarb,
Unfortunately anxiety is part and parcel of cancer. Some of in this group find that councelling help with anxiety anger and fear.
Maybe this is something that you might benefit from. I was shocked when a colleague of mine’s first when he heard that I had secondary was are you going to have councelling. Now I understand what he meant. Maybe I do, but I haven’t yet made that step. I am good at giving advice and not following it myself…
I have my ups and dows, this past couple weeks have been tough, but there are other times when I quite “happily” live with it.
Take care.
Hi Sarb, I agree the anxiety is hard to cope with. I was diagnosed in July with both primary and secondary. I have found counselling, acupuncture, and massages have helped. I am waiting to hear about my scan results on Friday and the next part of my treatment plan. I am often more anxious during this time.
Take care
Mel
Hi Buffy3 Thanx so much for ur kind words. I try so hard to fight the fear but it is always there. I get so angry with the world and all the healthy people around. I just wish I could have my life back. My world has turned upside down since last April. I try to eat organic veg and meat, little fat, no caffeine, drink green tea, have turmeric. All in the hope of slowing down n
My cancer. I try and do a bit exercise. I really want live for at least another twenty years…,…i really hope I make it. I can’t believe the devastation this illness has brought
Hi Sarb
I don’t want to butt in but have you have seen any of the stuff by Russ Harris (http://www.actmindfully.com.au/upimages/The\_Reality\_Slap\_-\_Introduction\_&\_Chapters\_1\_and\_2.pdf) or by Anita Moorjani (Dying to be me). I have struggled with a lot of anxiety and I have been helped enormously by these two books - they may not help you but they might!
For me BC has been more of a mental illness than a physical illness (apart from the effects of the treatments!)
Sending hugs
maggyx