Thankyou chocolates for your kind words , it’s so nice being able to use this thread where everyone is so welcoming and kind many thanks helen xxx
Im fairly new myself helen 12 but am finding myself reading and posting most days now as i get such encouragement from the ladies on here. Its really the only time i can say how i feel.
X
So very true carol ,feel like I have to suppress all my thoughts and what I would reallylike to say ,for my families sake xx
Morning helen…im doing ok thanks. Just wish the breathlessness would improve! There are some really tuneful hums coming from my “out breath”!
SCD…what a laugh!! Who the heck has decided that Judy is a better dancer than Caroline??
So disappointed to see Caroline in the dance off. She’s one of my faves.
On that subject…my son Michael has been cajoled into taking part in a charity event for our Breast Centre at Cardiff and Vale Health Board called Strictly Top Dancer! They held it last year and raised over £10,000 !
Think there are 8 couples taking part…none of the amateurs can dance…and they are partnered with a British Champion and train from oct to march when the final will be held.
the 2 dances he has to learn are the Paso doble and the cha cha cha!. His partner is called Sam and she’s a Brit champion.
They have a justgiving page on facebook for sponsors to donate. They sell dvds from the live final afterwards too. Hoping to beat last year’s total and have loads of fun along the way! Can’t wait to be there for the final in march!
For the newbies, helen12, jan and LD…please dont feel you can’t post because of lack of experience!
Believe me…this is where you’ll gain experience and learn a heck of a lot about SBC!!
Never be afraid to ask ANYTHING! Whatever you want answers to there will always be someone here to help you including of course the bcc nurses.
Good luck to you and sending you hugs (((( )))) at the start of this rocky road.
love bev xxx ?
Wow good on your son Bev. 
Helen I just read of your sciatica type pain. I had similar which just got worse as I was trying to ignore it, put up with it.
CT showed nothing untoward, markers were ok. Then I had an MRI and all was revealed. I had a met crushing the nerves travelling down my leg. If you had the same it would not mean your treatment isn’t working or anything. Just where it is. A couple of rads and the pain went.
Hi to all, at work, at home, on holiday. X
Good morning everyone.
Thanks for your reassurances about posting I feel a lot more confident now.
You’re right about SCD-Caroline is good and Judy’s inability to dance is getting on my nerves now.
Bev, your son sounds wonderful and I bet he’s so much better than Judy too.
Talking about men, I think Philip Schofield could be a contender. I’d be gutted if there was ever a scandal involving him!
LD x
Hi Julie, that is fantastic news!!! really pleased for you, these good news posts help keep our confidence and stregth going!
love and hugs Janette x
Julie thats wonderful. I love hearing gd news bwcause it gives me hope and i am sure your liver can cope with the wine!
Helen. Hubbys appt went well. No change and go back in 6 months. However the journey was a nightmare. It took 2 hours in fog and we only just got there in time. But at least it was worth it.
Hello to everyone else out there. Agree bout SCD…people must bw voting for anton cos surely no one wud vote for judy. Its getting a bit unfair now.
Bev you must be so proud of your son. Hope he does well and raises lots of money.
Kaye hope you felt more yourself as the day went on.
X
Faraway so sorry you have ended up in hospital. Hope you will soon be back at home recuperating.
Helen sorry to hear you are also feeling unwell. Hope you feel better soon.
X
Hi Faraway, sorry to hear your in hospital, stay strong i’m sure you will be back home and feeling better soon, sending you huge hugs take care
Janette x x
Faraway no one likes being in hospital but they’ll take the best care of you and you’ll be out in no time as good as new. As soon as theyre up to full count you’ll be surprised at how much better you’ll feel.
Sending you huge cyber hugs (((( ))))
Love bevlaar ???
Hi again ,many thanks to all the encouraging posts earlier ,appreciate it .im a fan too of strictly and anton is so nice must be public voting for him in sympathy for having to throw stiff judy around !!.its sad to see that a few of you are feeling poorly ! But good news for Julie is kadcycla for her 2 positive cancer ? And can I also ask and I hope I don’t offend at all in anyway as I really don’t know but is treatment better for patients with her2 + than er + I only ask as I really don’t understand and hope I haven’t put my foot in it helen 12
Hi to all you ‘boneys’ :). It is a long time since I have posted although I too have kept up the reading. I don’t normally seem to be able to concentrate my thoughts long enough to post (will that excuse me note do Miss Angry Eyes LOL). I promise I will try & keep this short as I think I am known for rambling on a bit. For the new members here - and it is so lovely to see so many - I’m one of the old hands at bc having been dx back in 1990 - primary for 12 yrs and then bone mets for 12 yrs. ER/PR neg but her2+++ discovered for me about a year after mets dx. On herceptin & bisphosphonates of one kind or another since. But things especially this past few months have got a lot worse pain-wise and consultant wanted me staged again with a view to going on kadcyla. Someone asked if it was for everyone (sorry but I cant see your post just now) and I think Julie covered most of the facts except for one important point. NICE have refused to licence it for cost reasons. How have I got it? My consultant applied through Cancer Drug Fund and thing were done is such a rush. I was amazed having had the MRI & CT one week then next week Clinic for results and a MUGA scan on the Friday funding was requested and ready for my next normal treatment day on the next Tuesday! I have cancer damage to almost all of my vertebrae plus a lot going on all round my lower half bone-wise and the cauda equina is ‘compromised’ oh plus all sorts of other bits - the report was full of medical terms most of which were unfamiliar to me but the long & short of it is that if this doesnt work I’m stuffed! So Helen I am really hoping for the success you have had - as I am sure Kimi (Homer) is too…there is lots more I want to say but I think I am starting to drift off so it is bed-byes for me. Apologies for any rubbish I have spouted 'cos haven’t read this back. I am so glad this thread goes from strength to strength.
Dawn
xx
Nice to hear from you dawn. Its so gd to hear from someone who has such a long history with bone mets. Sounds like you have been on a long journey through many treatments and have a wealth of knowledge. Hope you continue to do well in your present treatment xxx
Hi Dawn…nice to see your post. Spoke to you previously when dx with my primaries in 2005 and 2009. Hope you continue to do well xxx
Morning helen and all the other mets ladies☺
Just a quick sign in this morning. …going to see oncologist before starting the iv docetaxel on friday. Assume this is to sign consent forms etc and maybe bloods… again!
Been having such a burning pain in centre of chest between breasts where mets are for the last week.
Its so painful…but this is the first time I’ve had any pain. Hope the docetaxol will sort that out too.
Good luck helen with the fire walk. Hope the weather stays dry and hope you feel a bit better.
Love and hugz to everyone xxxxxxx
Morning everyone. Off to hosp today for next bone injection bloids etc.
Faraway hope you are feeling better and bloods are improving. You need to get home asap.
Helen sorry you still feel rubbish. Firewalk? You are so mad …sorry that shud have read you are so brave lol. Good luck with that and hope it raises lots of money.
Good luck to everyone facing scans and results today.
X
Morning ladies, Helen hope you are feeling better soon and sorry to hear your sister hasn’t had a great time either, please let her know the cyber bunch are thinking of her.
Faraway hope things are improving for you and your wbc is on the up.
Bev good luck with your onc appt today, i know your struggling at the minute, stay strong sending you a big hug.
Hi to Chocolates, Shelia, carolsav, Mavis, Kaye and everyone else…the list is growing!!
Love and hugs Janette x x
Tracey…will be hoping and praying that all will be ok when you go for results on tuesday. Best to err on the side of caution though and its good theyre doing all these checks.
had my bloods done at clinic before docetaxol on friday. …all ok. Although naturally TMs had risen from 91 to 110…
all the nasty side effects were explained to me…can expect them to kick in on sunday night.
giving me a high dose. Onc said he thinks we should attack this aggressively. Originally said 3 cycles, the last one on 26 December. But now thinks he may give me 6.
i asked what date the 3rd would now be given because it falls on boxing day and he said…“boxing day”!! The only days they dont give it is xmas day and new years day. Thats going to be just great!! 
Hope youre all coping ok xxxx
I started Denosumab 2 mths ago and agree its been wonderful - in less pain since starting it.