ok lemongrove, you are absolutely right with the diet you can not keep your body acid or alkaline ,BUT AND HERES THE IMPORTANT BIT!!!
when maryanne first done the PH TEST you need too do saliva and urine, they both came out extremly acidic, now the bottom line is this(WE HAVE BEEN DOING A PH TEST EVERY DAY AND NOW HER BODY IS TOTAL ALKALINE)!!! and im not saying this because its my maryanne i am telling you all as it is ,she has colour retuning too her face , breathing slight improvement , dont seem so tired,!!! sodium bicaronate 75p, high grade maple syrup about Ā£5,. google, yahoo, you-tube sodium bicaronate and cancer, the way i understand it works is this, sodium pure alkaline which destroys the cancer cells, the sugar ,cancer needs too survive and grow, the cancer goes after the suger which has binded with sodium in the heating process , when the cells get the suger it also takes the sodium, and bobs your uncle it kills the cells, ive told you all and kept you all well informed you just need too make your own minds up if im honest IT TASTE LIKE COMPLET S**T but then its got too be better than chemo!!!, JUST ONE THING LADIES IF IVE STUMBLED ON SOMETHING AND GET PUT AWAY WITH THE REST OF THE DOCTORS IN PAST YEARS DO ME A FAVOUR AND GET ME OUT !!!LOL
love huggs and wishes too each and everyone of you
eachday passed is one closer too a cure
I have been reading your updates about your wife, it sounds really great. I am sorry, I am relatively new to all this, is this treatment in conjuction with conventional treatment?
hi tracey
maryanne has been on xeloda for 6 courses now and its been making her more and more tired, and taking the colour right out of her, i dont know about anybody else but im / we are not going too polish a seat with my a**e and let good old mother nature take its course, if the almond seeds dont do it and the B17 vitamin dont do it or hemp oil ill carry on looking untill i come up with something, i.e. the bicarbonate soda or DCA, of course we will carry on with chemo if needed, or what ever comes are way but i think you just need too be open minded ,surely too god no one can stand there and say the governments of the world can put people on the moon and go too the darkest depths of the ocean but cant find a cure for this crap??? ask yourself they say the cancer industries worth Ā£600,000,000 per year and god knows how many jobs its not rocket science what would happen if they stopped cancer, theyed be finished and you would probaly have the biggest up rising of all time , just my thoughts getting of my soap box now lol,
love huggs and wishes too each and everyone of you,
wayner each day passed is one closer too a cure
Had my mega blast of radiotherapy yesterday and look forward to the results i.e. being pain free in about ten daysā time! Well we have to be optimistic, and by all accounts from some of you it will be so. Also went first time to a drop in group that happens weekly here. It is only 10 mins walk away and was really welcoming and fun. Iām a single mum and only moved recently into this area so this kind of thing is vital for me so that I have some sort of local network of support.
Anyway I just wanted to call by and say hello and keep in contact.
hiya all you lovely ladies
ok just came home from the onc, the bloods ive been waiting for are as follows for the last 3 courses of xeloda 9weeks the markers have been hovering between 245-260 the markers started at well over 800 as you all know have been taking sodium bicarbonate for about 5 days before the last blood test which was monday just gone , we now got the results and the bloods have dropped too 174 now you need too ask yourselfs WHATS ALL THAT ABOUT!!! maryanne may have been my guinea pig but it seem too have paid off!!! also they have stopped the femara and changed it too aromasin, anybody had any experience with this one? i hope each and everyone of you are fine,
love huggs and wishes too you all
waynereachday passed is one closer too a cure
Hi Wayne, yes I have been on Aromasin and it worked well for me. But now my Oncologist has put me on Femaraā¦she likes to fool the cancer I think! I have also been on Xeloda (on more than one course of 6 months or more) and my markers halved after the very first course and continued to reduce throughout which boosted my morale no end. I have been off Xeloda for over a year and sadly my markers are rising again, which we knew would happen so that is not a surprise. So I am either going back on to Xeloda or trying another chemo altogether. But as my pain is under control I am not starting it just yet. I may need a blood transfusion soon though but drinking more red wine and eating steaks, watercress, and more chocolate in the hope that I will not need one. Hope your maryanne continues to do well, all the best to both of you, Val
Wayne, just a thought, I looked up iodine on the internet and it was very interesting, especially in connection with breast cancer. You might want to have a look - Iām now taking Sea Kelp which is high in it - nothing to loose really.
Just reporting in - had 3 vertebrae zapped tonight so Iām sorted now!!! They gave me anti-sickness pill and told me to put cream or aloe vera on the skin and have paracetamol for the pain as it will probably get worse for a couple of days. Have their phone number for any queries at all but know I will get any help from here too!
Yes they said it would be more painful for 24 to 36 hours, but no pain at all when at rest, only when I try to reach to do things like cleaning the bath. Serve me right. Shouldnāt clean the bath! Maybe it has just worked immediately for me. I am impressed so far. I had an interesting abstract drawn on my chest which reminded me of the old āgiraffe walking past a windowā pic, though not quite.
Must get some aloe vera. What an amazing plant that is.
Hope youāre all ok! Im still in abit of a dazeā¦denial i think, does need some getting use to before i can get my head round it!
Got my radiotherapy planning today on my spine, no date to start yet thoā¦maybe next week as planning today but il see what they say.
Bone scan tomorrow to check rest of bones, only had mri of spine so not sure yet if its anywhere else, extensive areas on spine so farā¦fingers crossed no more!
Hope everyone has a good day, take care,
Love Tracey xx
Went to lie on bed early last night as had funny stiffness/ache all round my middle - could hardly bend over but they did blast T8,9 &10 so that was inevitable. Seems slightly easier this morning and some of the aches I did have appeared to have eased a bitā¦hope Iām not speaking too soon!! Need to do some cleaning and ironing today, especially as itās zoladex and zometa tomorrow and they always tire me but there again it wonāt be the end of the world if they donāt get done !! No extra tattoos/drawings for me as they used my old ones.
CT scan next Thurs is next event to look forward to! Oh joy.
I had rads to my spine in October 2009 and it did seem to work but I also have to take Anti-inflammatory tablets to stop the nerve/muscle pain. But I went from struggling to walk more than a 100 yards to walking several miles again. My ONc explained that the cancer distorts/changes the shape of the bones so that nerve endings/muscles attached to the bone are damaged and that is why we get the pain.
The radiotherapy is to halt the cancer but it cannot repair the damaged nerves/muscles. So I take the tablets and I manage very well. Everyone is different as we know, so this is just my experience. But I am very pleased with the outcome so far.
Good luck.
Sue x
PS. Liz if you are reading this you are not doing your housework!!!
Update - Sue,you made me feel very lazy so while I was in the mood, I went and did the ironing. Included bed linen. Quite impressed with myself !!! Strolling to Morrisons and back this afternoonā¦worried??? xx
Well the inside of my house looks like a kind of collapsed house of cards with paperwork all over the place. Last night I decided that I couldnāt manage any longer without some help, at least on a temporary basis. So I put an advert in my local corner shop asking for a carer/household assistant. I couldnāt believe it when I got a text this morning early from a girl who lives round the corner who has just done her NVQ2 in social care, has a recent CRB clearance, and is willing to do the little and often that I want. I met her straight away and she is a sweetie. One of my sons has Aspergers, so we will be looking for direct payments for him, which will go towards paying her, and in the meantime I will just have to take the risk that I canāt afford it. I am finding that the things that I have told people for years in my work are now proving true for me, being on the other side of the fence. I want to save my energy for the things I choose to do, and get help with the things that wear me out, cause pain etc. My two boys are both great, but I canāt expect them to do all the stuff that I usually do. They have college and their lives too.
Sorry this is such a brain dump, guys. Interested to know if anyone else buys in help, though I realise it is kind of a different topic. But we were talking housework there!! I do think that the pain thing is more common with bone mets, so maybe there is a tenous link.
Tara, I have had bone mets for 12 years now and am on various medications for pain which was terrible at one time but is under control now. If I can help in any way to compare painkillers etc please send me a Private message with any questions you have if you donāt want to post directly on this thread. Also I claim Disability Living Allowance and wondered if you had too? I didnāt know it existed until a few years from bone mets diagnosis and the difference this has made to my life is unbelievable and it is not a means tested benefit. PM we with any questions about this too if you wish to.
A GP friend of my once told me " Val do not WAIT for the painā¦stay AHEAD of the pain"ā¦I have followed his advice from that date and it has been the best advice I ever had. Take care. Love V
Excuse me for interrupting your thread with this message from the Breast Cancer Care clinical team, in response to some recent posts on this thread.
Hi everyone
We thought it would be useful to clarify Breast Cancer Careās position on the use of non conventional treatments for breast cancer.
Conventional treatments for any medical condition go through intense trials and testing before they are recommended for use.
If you search the web, you can come across a number of non conventional therapies, which are often reported to be highly effective in treating cancer at varying stages. These āalternativeā treatments have usually had very little, if any, organised and reliable research done to support their use or look at their effects on the rest of the body.
In some circumstances, some of the suggested treatments may even have harmful effects on the body (even if they appear to be having a positive effect on the cancer and its symptoms).
If you are considering using any non conventional, complementary or alternative therapies, it is always a good idea to discuss these fully with your oncologist beforehand so that you can make sure you are not putting yourself at risk. It is also possible that an alternative medication or remedy may interact with any of your current medication or treatment.
If you are interested in using any other treatments, you may want to contact the Breast Cancer Care helpline on 0808 800 6000 to talk this through or you might like to read our publication specifically about Complementary therapies, available from our helpline or via the direct link below:-