Hi Zometa has been around a long time,
i have been on it 3 1/2 years myself, with no side effects.xx
thanks moijan for the input!
funnyface, you didnt miss anything its me who didnt share bc i didnt want to bother you ladies with my details when you and my mum are the more important ones here. last time my mom was dx in 2012 i was at home with her i had just finished college. i didnt skip a drs appt or treatment appt. i got married in 2014 and moved to lebanon where my husband lives, which is why im not with her at the moment so my brother and sister and mum are relaying the info to me as i pack and get ready to leave here for good to go be with her because im her rock.
i think because of my location this forum came up when searching and im real glad it did. xoxo
im not sure why this time im so afraid, maybe bc im far at the moment? maybe because its bone mets because before your faced with it you hear these stories about stage 4 and you just pray it never comes close? and maybe bc im a mom this time around and want my mom to stay around for longgggg.
enough of my sob story! god be with you ladies you all amaze me and i keep taking strength from each of your posts
joelle praying for a cure xoxo
Hi ladies
Joellek, don’t panic. Make sure the move goes ok and then you’ll be able to be with your mum and enjoy times together. I understand more than you can think… I live in the UK but originally from Argentina so have ALL my family there. Its been hard on everyone the distance but we have to be grateful for the tecnology we have nowadays that allow us to speak/see each other. When we found out that the bc had come back, i facetimed my mum and didn’t have to say anything because she knew… her and dad came a month later once we knew what was going on and I was on the treatment so it was better for them and me.
when are you moving? Xxxx
pmol, nicky, and ff thank you so much for your replies…cant tell you how comforting they are…the big move is gonna be in 2 weeks. its just all so hard to wrap my head around because mom was suppose to arrive here this past tuesday for summer vacation. so it all flipped around so quickly.
she had her cat scan today we get the results on monday and she will start zometa on monday as well. i cant explain the how sick i feel and im sure she does too waiting for the scan results. i just cant handle anymore bad news at the moment…
joelle praying for a cure xoxo
Zometa is easy to have - I had it 3 times and then changed due to my veins.
make sure you pack your baby’s favourite teddy in your suitcase and not in the boat! My youngest’s fav teddy got put in one ofnthe boxes and took 2 months to arrive… 2 months of chaos and stories about this zebra being the captain of the boat! ?
The weeks will fly by and before you realise, you’ll be giving her a massive hug xxxx
Joellek
What a hard decision for you having to give up your new lifestyle to be with your mom.
Its hard with so much distance though.
When I got my primary dx in 2004 my sister was living in Italy …she couldn’t settle due to the worry and miles and packed up and came back home. She was my rock through chemo .
Hugs xxxx
I’ve just managed my first walk in a fortnight! Just a mile around our local park but I’m feeling v accomplished ? Was lovely to get out and get some fresh air and a change of scenery xx
Hello dragoncarine
Welcome to the forum and this thread …phew what a lot to deal with …
The ct scan will probably be the one that prompts the right treatment regime for you but tamoxifen is a good tried and tested pill and denosumab is the bone juice so you are being treated with the correct procedure .
I think we all expect the oncologist to pull the magic bullet from the bag at times !!
Anyway …we are here for you …real people that understand your rants !!
Hugs xxx
Hello jellytot
Well done for your “jellytot toddle” …you can’t beat a bit of fresh air in the lovely summer weather.
I go out everyday although some days I am tempted to slob out but even just a walk around my area in the evening is very theraputic sometimes.
As the rads wears off in time …no doubt you will feel stronger and be able to do more.
Take care xxx
I think hospitals vary in their scan regimes …they say its not good to have too many.
I’m due for my ct scan this month but I’m always concerned as they don’t cover the femur and legs where my problems are so I think I will have to ask for xray as an extra.
We have to trust on oncologists with our welfare and care but in 13 years I have had really good care on the nhs.
Xxx
Renee
Sounds like it was a private message ?you will see a little envelope at the top left …click that …if not hopefully the lady will read this thread and understand.
I’m so glad you are feeling better today . It’s good and bad days with this dreadful dx but hey hoo …enjoy the sunshine today …we are just off to get a nice roast dinner at our local walkable pub.
Loads of hugs xxxx
hi ladies,
im kinda worried my mom has been in agonzing pain the past few days and each day its getting worse. my mom isnt one to complain and has a high tolerance for pain. im not sure whats going on if she tired herself out in the house, if it could be the emotional shock, or perhaps psychological because she saw the bone scans and where the spots are and she feels them aching? but its to the point it hurts to wallk hurts to sleep on the arm that has a spot?? she goes on monday for the CT scan result and to begin zometa injection.
i dont know is this pain normal? she feels weak, and her legs hurt hurt bad. and why is it all of a sudden now?
i told her to ask the onco on monday if there are any painkillers to take as well?
any advice?
joelle praying for a cure xoxo
Hello Renee
Maybe Sheila will reply again I’d she is reading this.
I decided when I got to the pub to have a cheeseburger and chips and a shandy …oops not healthy but I did have a bit of salad with it !
I think if you have a small appetite you must just go with what you enjoy to be honest.
Hugs xx
FF and Renee
I’m sat here with my smug face on …ate a whole bag of Terrys choc orange yesterday and they tasted lovely !!
Actually it would be good for me to loose the taste as my jeans would fit better !!
Hugs xxc??
Calling bone Mets ladies …where are you all …feeling like Billy no mates and this thread was slipping down the queue and in danger of being redundant .
Happy days xx:relaxed:
Hi ladies, sorry Carolyn for the absence I know your not a happy bunny if we don’t check in!
I’ve been busy with work etc.
Hope everyone is keeping well.
Hugs Janette xx
Hi all
Still here… just trying to cope with anxiety as first results appointment looms so keeping my head busy with housework, work, family, Wimbledon… or just sitting outside in the sunshine!!!
xxxx
hi,
i have a question for you all when you were dx with your mets how did the scan process go?
so first my mom had xray then mri on her tibia where the pain was and a larger lesion was found. next she requested a bone scan where the onc only wanted a biopsy at the time. bone scan showed numerous spots and biopsy showed mets. so next the onc asked for a ct scan for her lungs and liver…should he have checked anywhere else brain for example??
im trying not to be angry or frustrated with the situation i trust the care at dana farber boston and her onc is very smart and teaches at harvard univ and the whole 9 yards…but now im just sad why didnt he do scans every 6 months for example? why was his way we dont scan unless theres a problem…
is there any other tests we should be asking for? i read you guys writing about tumor markers? no one has said anything to us about those?
lost, confused, sad…and keeping myself together when i talk to mom!
joelle praying for a cure xoxo
Hi all
I have been reading but not responding as busy couple of days. Went horse racing /abba night on Saturday so spent a Sunday doing housework. Yesterday had denusomab injection and today boob inflation. Fingers crossed will get some respite for a few weeks before my next set of appointments and then off on hols yippee. Enjoy the sunshine wendy
What am I Iike? A mother duck checking her ducklings are all ok!!
Glad you are all doing ok.
Hugs xx