Hi Belinda, totally understand you wanting a “forum break” I do this from time to time. Sometimes you just need to step back and have some time out.
Take care hugs Janette xxx
Hi girls - sorry I haven’t been in touch… had oncologist thursday and they said the letrozole hasnt’t worked ? Tumors have grown and spread and there is a question mark on my liver so will have to have an MRI to investigate further. If they think it’s cancer then I’ll have to have chemo. Don’t know what the treatment plan would be at all… just trying to take it one day at a time… in the meantime I have started another tablet (exemestane) in the meantime
just hoping that this works…
Hello pmol
So sorry the letrozole magic hasent worked …hopefully exmestance will be better
Hugs xxx
Hello Renee
You must be physic. …I was just thinking of you as we haven’t heard from you the weekend.
Best of luck with the treatment …phew sounds like a all day thing with travelling too but enjoy a few cuppas and some people watching to fill in the day.
Phew it’s still hot here but mustn’t complain as before we know it …it will be (swear word coming up) .Xmas …aah.
Hugs xxx
Pmol, sorry to hear letrozole didn’t work for you, good luck with your new treatment plan though.
Hugs Janette xx
Yup PMOL, looks like it will be on July 17th xx
Hiya ff
Hope u enjoyed your weekend away …it was a hot one here …I huffed and puffed and was a real sweaty Betty! !!
Hello Renee
How are you now …assuming a long day at hospital and you are resting now .
Hugs xxxx
Pmol
I live in fear of letrozole stopping working too , it has a lot of work to do!! I have always lost a lot of hair in the 20 months I have taken it …and realised that the last 6 weeks it stopped. .but in the shower this morning …hair thinning again so fingers crossed it’s still doing something ? Maybe I have false hope …oncologist says on average it works 3 months to 3 years …everyone is different.
Xxx
hi all,
everything has been a mess!
first of all the pain has been bad really bad in her tibia! ive never heard my mom say shes in pain she cries and can barely walk sometimes!
second erubilin and immuno were suppose to start yesterday, but the clinical trial nurse forgot to inform her she needed to be off the arimedex 2 weeks ago so it doesnt interfere with the immunotherapy. so treatment got postponed although we found out yesterday the computer did not choose her to be one to take erubilin and immuno therapy together. but in order to still have the option to take immuno after 9 weeks incase the erubilin doesnt work she still needs to have stopped the arimedex for at least 2 weeks before.
so as for treatment were not sure if this is
good, if this is bad. im still far and shes just sooo sad, sooo in pain. erubilin is set to start on the 21st. thankfully ill be there. the onc believes the erubilin should be enough for the pain and she wont need radiation…but im not so sure because its causing her so much pain! the oxycodone and ibprofeun together arent helping!
also found out the lesion on the lining of her lung is 6.3 cm that also scared us to death…i dont know what happening and why its all so confusing this time…
joelle praying for a cure xoxo
Suze
I am keeping my fingers crossed that your ray of hope becomes reality
Wendy
Chrissy that’s great news! What a horrible few days you must have had xx
Jellytot! I haven’t been on the forum for ages but just dropped in today and saw your question about an oophorectomy.
I had one last year. It was very easy compared to lots of the other things I’d had and you’ve probably had.
I had 3 incisions, was in and out in a day and exactly a week after the op I travelled by train to my mindfulness class and had lunch out (and I’m a wimp!!).
There were just 3 little plasters covering the incision areas (one was in my belly button!).
I found the referred pain a bit uncomfortable… It was sore in my back/shoulder a bit and I felt full of wind (from them puffing air in so they can see what they’re doing). I set up camp in my living room, right next to our kitchen and loo and was a bit couch bound for a few days. But it really wasn’t that bad.
If you’d like to know anything else please give me a shout. Xxx
This is just to say Goodbye and to wish you all well.
I’ve had confirmation now that the lesions on my spine are not cancer and no longer have to take letrozole,
Keep fighting this dreadful disease ladies and thank you for all your support. Hugs Sue x
Hello suze
That’s great news and it’s been nice having you here but go off now and enjoy life xxxxxx
Suez, that it amazing news, sooooo happy for you.
Wishing you all the best for the future!
Hugs Janette xxx
Thank you Stripey.
Suze - Brilliant news! Luck, love and life to you xx
Can anyone recommend a good painkiller that isn’t drowsy. I find co-codamol is the only thing that really gets the pain under control but it makes me very sleepy. I really want to go back to work and I can’t unless the pain is under control and I’m not asleep!
xx
Thank you Renee x
Hi Jellytot, what strength of co-codamol are you taking? Do you know there are 3 strengths of it?
8/500mg
15/500mg
30/500mg
I’m the same if I take 30/500 I’m fit for nothing, so I either take 15/500 or 8/500 along with a naproxen 500mg.
Hope this helps, hugs Janette xx
Hi Girls! Sorry I’ve been quiet.Life at work has been miserale. They fired our director of the senior center. He was a wonderful person but terrible at the finances. This is a non profit and he wasn’t getting the funds. Move on new director! She came in told me my work was preschool, that I don’t do enough work and asked if I was even capable of looking anything up on line!! She also said she didn’t understand the Circle of Care program I was running and was closing it. I tried to explain the program to her and she said she didn’t care. I explained to her that the things that looked pre-school to her was the best work of the dementia clients and they were proud if their work. That they had as much right to display their work as the seniors who do fine art work. She said NO! She said it gives the senior center a bad reputation. The next day when I came in she had ripped down their stuff and had thrown it away! As far as not doing enough work I was furious! The day she said this to me I had done a fund raiser for the center. I shopped the day before (on my day off) for supplies. Hubby works at the center too. He is the janitor. He shopped with me.Donating his time too! Then we sliced up all the onions and tomatoes for the hoagies (you probably call them subs). We got the production line ready fir the next day. Hubby got up early and drove to a bakery in the city to get good rolls. I got up early and went the opposite direction to get potato chips. Then we made the hoagies. Then I worked my shift. I spent 8 hours of volunter time plus worked my shift. Ross did the same! We made 500 dollars for the center! Mind you she didn’t show up to help. She also said that if the seniors don’t like her changes they can leave. It is their center not hers. She keeps throwing things away without asking what they are used for. We have a l day in a motorized wheel chair. She said she is going to tell her she needs a a smaller chair! She set up a little table inside the doorway and stated she doesn’t care if they trip over it and fall. They are seniors and will fall anyways she says! We have a table of seniors who don’t join many activities, but are happy chatting. They come their to socialize. This is the purpose if the center. It is so they are not home alone! She said she plans on getting rid of them bc they make the place look bad with their inactivity. She speaks highly to our board of her love for the seniors.How she wants to make an amazing place for them. If the circle of care program failed, I was to be made director of programs. This was the old executive director’s plan. She knowsew this and discussed it with me. On Monday she brought in a new lady and introduced her to me first telling me this lady was director of programs.She has succeeded to make me feel like a nobody! She is nothing but nasty to me. Other employees have said they can’t believe how she threats me. I even had presented her with ideas for a diversity program I created, a free senior bullying program I found, a community give back program (making and filling stockings to be given out at a community Christmas dinner), and a community outreach program to put our more active seniors in the public eye. She said, no to all of them. Then that’s when she told me I don’t do enough work.I certainly don’t know what I should be doing!! I have applied for two jobs. I’m positive I got the one. Sure hope so. I think she is going to fire me and I don’t deservd it. I have volunteered fir the center for 21 years. I have worked there 4 years. The center and seniors are a big part of my heart! The way she is read ing the place apart is ripping me apart. I desperately need out, but need my money too. Please cross your fingers for me. I’ve been crying every day! I won’t be in for a couple days, going camping! No internet there!
Hello ff
OMG. .that is horrible and I know you love the job too …hope you get another one soon where they appreciate you and hubby …I expect you are in between age that you don’t get your state pension yet ? In the UK they move the age gatepost all the time …mine was at 62 …but some ladies have to be 66 …not sure what US offers for you …pension wise
It’s miserable for you as you are living with cancer and side effects. .the stress is not good but neither is having no income. .
I worried when we retired how we would survive on less money but it’s surprising how much I saved by not buying office suits, buying lunch daily, petrol and buying ready meals and convenience foods.
Anyway. .forget about it and enjoy your weekend.
Xxxx