Bone mets - please join in (Part 1)

Ladybird’s had her morphine increased at the suggestion of the Macmillan nurse. I have to supplement her pain patch with a syringe of liquid morphine.
Early results appear to make her dopey…I hope this will improve as the pain is still troubling her.
Never a dull moment!
Chris(topher)
X

Chris

Poor ladybird …sending hugs that the morphine helps the pain …
Xxxx???

2:32 PM
Hello all,
I haven’t posted for ages, just because I’ve been hectic with other stuff. Sending warm and gentle hugs to you all. I started to read through previous posts but I don’t think I have much I can add other than I really do empathise and send my very best thoughts. The unknown, the waiting, pain, sweats…! I’m sorry everyone who’s having a particularly tough time at the moment.
I’m really sorry to stomp in but in the very off chance…
I wondered if anyone has had or has heard of having a rib removed? My mets are only in one place at the moment (one of my ribs), I have a meeting with a surgeon on Wednesday who has suggested he cited remove the rib.
I had an unsuccessful biopsy a week or so ago (they couldn’t get samples because it was getting too close to puncturing my lung apparently).
I have no idea about this surgery and I can’t find a thing about it for secondary breast cancer anywhere.
Please don’t feel obliged to respond! I’m okay and I think other people on here at the mo need more support than I do. I’d just love to hear from anyone that has anything to say on this?!
Thanks all xxxx

Hello stripey

Welcome back …sorry haven’t a clue about rib removal …think I read in the olden days …models had them removed to give them smaller waists !! Not much help am I?

Hi Stripey, I seem to think/recall it has been done before…why not start a new thread with that as a title?

may make really good sense if the bc isn’t anywhere else, have you had a Whole Body MRI?I recently was given one as apparently they are very (much more) accurate and then if it is true-then you are in a better place to decide…awful if you went through that and then they discovered it was also elsewherexx

Hi guys my name is Alex I’m new on the forum but I’ve been looking on here a while . Got consultant for me Thursday to be told there might be not any treatment for me I have a young family is there any else going through a similar thing X

Interesting about ports…they do dopower ports at my hospital, but mine was a rt mastec and Lymphoedema and so my guess is a port would be left side. I bottled out last time…but one day likely will need one…I seem prone to all sorts of infections so. Knowing too much, I’d worry about a port being a infection risk

 

the other thing is…local hosps near me - nurses etc not trained to use ports…and it’s not a backwater!

 

recently was in with cellulitis and usual nightmare ensued re veins etc.

 

hey ho

Mx

Haha B that is sooo funny…but true!!!
Hi ladies, hope everyone is doing ok, I don’t post that often these days but I do still read all the posts.
Take care ladies, hugs Janette xxx

In June 2017 my mum had been feeling very unless for some time but couldn’t pin point what was wrong with her she was also getting some back ache so she went to her GP which he told her it’s muscular pain she went away thinking it would get better. But it started getting worse so in august she went back again and they said we will do some bloods and a x ray just to see if anything comes up anyway bloods come back high calcium and x ray on chest area come back full of small lytic lesions everywhere they could see so they referred her to the breast clinic because my mum had breast cancer previously 10 years before they did biopsys scans etc which showed she had breast cancer but this time it’s in the over breast the one she had in before is clear… she has these cancer spots all over her ribs collar bone shoulders spine and hips but no major organs as of yet! Calcium levels are making her very sick and week she’s lost so much weight as she can’t eat and on very strong pain meds she’s in and out of hosp trying to get calcium levels down too! She is feeling very down and she can’t stop thinking she hasn’t got long left we haven’t even seen a oncologist yet it’s been 3 weeks since they finally referred her but heard nothing as of yet! She as been referred to someone else too to check her bloods for cancer now they also want to do bone marrow biopsy is this rountie? Or is there something they aren’t telling us? How long did it take you all to see oncologist? And once you did how long until you started treatment and what treatment did they put you on? How long has it been since your diagnosis and how well are you all doing we want to speak to people in same situation life is so cruel to do this to people! My mum is moving in with me as she can’t take care of herself anymore she struggles with the most littlest things now picking the kettle up with water in it hurts her. Is there a good possibility she is going to be here for some time or do we need to prepare ourselves for the worst if anyone can relate and wants to talk direct please email me_ email removed_ thanks for reading xx

Hello Lauren

I replied to you on the other thread …as much help really as a chocolate teapot !! But we are here to support you and your mum …
Sending hugs to you both xxxx

stock-vector-cute-cartoon-twin-babies-both-in-separate-layers-for-easy-editing-25612000.jpgMy Twin Grandchildren now hatched.A Girl And A Boy. …soooo excited can’t wait to visit them later. Xxx

Awww Carolyn this is amazing news!! Congratulations so pleased for you.
Hugs Janette xxx

Hello Renee

Yes they will certainly drain the purse strings as they are grandchildren no 5 and 6 !! Already have 12 year old grandtwins !!

Xxx

Renee
Your grandson sounds wonderful taking on 2 small boys but with so many broken relationships these days it’s very normal.
How are you feeling? Hope you are coping with all the treatments thrown at you recently …
Hugs xxx

Afternoon Carolyn

Congratulations on your new additions to the family

By the way have you had your scan results?

Linda

Hello lindy loo
Thanks …no scan results yet …not seeing oncologist to 29th November so maybe will have to wait to then …I’m working on the theory if they were bad …they would call me in before that but I honestly don’t understand how things work !!

Xxxx

Congratulations Carolyn. Wonderful news! xx 

Congratulations Carolyn! More lovely babies ?? ??? 

Thanks mo …I’m just glad they are now delivered but they are premature and in incubators but visiting them tomorrow.
Hope u keeping ok too …and holding onto the hair !
Hugs xxx

Hello Jeanette

Happy birthday to you ???
Happy birthday to you ???

Have a lovely 50th birthday …
Hugs xx???