HI TO ALL YOU LOVELY LADIES
YOUR WORDS OF KINDNESS, I REALLY APPRECIATE AND HOPE YOU ARE ALL KEEPING AS WELL AS POSSIBLE SO THANKS VERY MUCH.
LOVE AND HUGS
RENEEX
Hi all,yes i thought this was interesting aswell. Apparently they can make a pill that would take all of this Aspergine out of your body and let you eat normally. i would gladly go on a trial if this was offered as i’m going downhill fast in my battle against mets.
love to all
Ramade xx
Hi Ramada, sorry to hear this. I do read canceractive website which has all the lates research on there and Chris Woollams. has been saying this for a long time.
thereare two books which I recently got…the rainbow diet and heal you body heal your gut
Both make excellent sense but go on there and have a read Chris recommended Me to eat a cup and a half of ordinary button mushRooms a day, then here came out this, in the paper last week.xx
Renee, how is the cellulitis going sweetie? It’s such a pain, isn’t it?
hope it’s improving!
Moijanx
Hello trudy
Thanks for asking …I’m fine …waiting for scan results as I have more hip pain than usual.
Just took a step back from the forum for a little while to give you all some peace and quiet from my usual ramblings !!
Hugs xxx
Well Carolyn sweetie, I have been missing youxx
Hi Carolyn
Hope your scan results come through soon and they show no progression. Maybe the bones are healing which is causing the pain.
Linda
Afternoon Renee
Good luck with your scan results on Friday. Hope pains you are now suffering turn out to be nothing to worry.
Take care
Linda
Hi ladies, can I join you? No bone mets (yet!) (as far as I know!!), but this seems like a lovely friendly group and I’m hoping somebody may be able to share their experience.
My first cancer was 15 years ago, ER+, lumpectomy, axillary clearance, radiation, zoladex, tamoxifen, letrozole for a total of 10 years, then all was well.
My second cancer is apparently unrelated but in the same breast, diagnosed May 2017, triple negative inflammatory BC, at the time of diagnosis there appeared to be some involvement of internal mammary nodes but nothing beyond that. I had FEC-T, then mastectomy in Nov 2017. Couldn’t have standard rads because of previous rads to same breast. A scan in January showed mets to mediastinal lymph nodes.
So now I’m on capecitabine, just coming to the end of my first two weeks of tablets, negligible SEs so far (isn’t it great when, just for once, not all your worst fears come true!). Onc says I’ll stay on this for as long as it’s working and as long as I can tolerate it; they’ll do a scan after four cycles to see whether it’s working.
So I’m trying to get my brain around the whole new world of secondary BC. I’ve found lots of helpful tips on the Xeloda/capecitabine thread. But I do have one question:
Does anyone, anywhere, have experience of mets to the mediastinal nodes??! Most people have never even heard of them (that includes me, until a few weeks ago). I’d just love to meet someone who’s been there, done that, got the lopsided t-shirt.
Meanwhile, best of luck to anyone currently having treatment, and a special hug to Scanxiety sufferers!
Morning Tatyana
Welcome to the bone mets thread. Sorry not able to help mediastinal nodes as not heard of them. Where abouts are they in body? being me I would google it.
Pleased cap tablets are going ok with not many side effects. What strength of tablets are you on.I was originally on 1800mg twice day. Reduced dose to 1500mg twice a day which I have been better. Now on course 7.
Hope someone comes along shortly with advice.
Linda
Dragoncarine, glad to hear that magic word “stable”! I haven’t had a bone scan so don’t know if there’s anything going on beyond the mediastinals. I only know that they are inoperable because they’re too tangled up with other stuff. I have a whole list of questions for the oncologist when I see him next week, last time I was too shellshocked to know what questions to ask!
Linda, I’m on 1800 twice a day, it seems to be manageable so far, tho it’s early days and we’ll have to see what the blood tests say next week, I suppose there could be things going on that I’m not aware of. But at the moment I can do more or less what I want, so I’ll take that! Not as much stamina as I had a year ago, but that’s hardly surprising.
Hi Tatyana
It was after 4 treatments that my neutrifils fell to 1.4 that cap was reduced. Yes I do agree regarding energy levels are depleted since last year when I was just on combo Everolimus/exemestan levels were good.
Linda
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Hi all, am now to start 6 months of iv chemo called Epirubicin and cyclophosphamide, anyone tried this?
It’s like being a cat with 9 lives isn’t it, i have not many left now, damn it. i don’t know how to feel now, i just feel nothing.
love to all
Ramade x
Morning Ramade
Sorry you have to change treatment. I have not had the chemo you are going to have. I am sure one of the other ladies will be along shortly.
If you don’t mind me asking were you told you were running out of options?
Linda
Evening Ramade
I am on Cap now. Have been since October last year. Had CT scan in December had results January everything stable. Back at oncologist on 5 March will ask about next scan.
Cap has been OK. Have you been on cap yet? If not that might be your next treatment.
Not nice when you are told treatment not working but there does seem to quite a few different treatments to choose from.
Take care of yourself.
Linda
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I was diagnosed just before Christmas. In December I had one zoladex injection and a month of exemestane. Changed in January, after scan results came through, to zometa infusion, letrazole and ibrance in addition to the zoladex.
In two months my niggling thumb arthritis has become a major problem. I can’t open jars, put on socks, do up buttons etc and at work yesterday I discovered I can’t even hold the phone to my ear!
I went to hand therapy today and came out with a collection of splints and supports which give some relief but make my dexterity worse.
I’m only 50 and sound like my mother! I love sewing, gardening, horse riding, yoga and going to the gym but all these things are getting increasingly difficult if not impossible.
Is there any hope or relief from this?
Hi Kate and Bentsen.I was taking turmeric/black pepper in milk with a little olive oil but gave me reflux.
my oncologist is fine with turmeric and with probiotics…I drink kefir daily.
have either of you (or anybody else?) ?any advice about the most palatable way to take turmeric please? I am on Paclitaxel and would like to keep taking turmeric if possible.
thank you
Moijan
Hello Ladies
Just to say my wife Ladybird has gone into local hospice after the scan showed lesion in her brain.
She is very comfortable and well looked after by dedicated staff.
Good luck everyone and thanks for your support over the months
Chris
X