Thank you Carolyn…and thank you Linda for the reassuring words. Just got back…nothing set in place yet as they want to take a biopsy first, which they have arranged for next week. Once done, then they have hit the information required to put a plan in place. The consultant was very reassuring, very confident and very positive.
Like you said Linda, the words chronic illness and live for years these days was said.
Think of that what you will, but did make me feel a bit better x
Hoping to get a good nights sleep tonight now…’Phew’…first step done ??x
Hi silver lining
Sorry I forget you are quite new to the forum. It is Everolimus and exemestane. Took that for 3 years 8 months. Now on capecitabine since October which is a chemo tablet.
If you ever have any questions please feel free.
Linda
well done for the weightloss ff. also good idea about your bag of useful goodies.
e/e worked for 9 months only for me and i felt massively let down by my body. Now back on chemo and feeling decidedly ropey. i didn’t use to swear but chemo can really bring out those 4 letter words i’ve noticed.
love to all
ramade xx
Remade
Sorry e and e didn’t work for you and that u have had to face chemo again but at least it should give the little blighters a good fight. .
Take care xx
Kay
How nice to hear from you as you have been very quiet lately …how are you doing? I think I last read that you were changing to the big guns chemo so hope it’s working but also you can still walk and look after your grandchildren.
Hugs xxx
Hi Carolyn, I just wanted to chip in and wish you luck for tomorrow, I think it’s your first E/E? Hope it goes well. Also FF, good luck for your scan and results, you get a speedy service across the pond at least…having a CT scan next week also, I think it will be “goodbye trial” time. Have a very Happy Easter everyone and eat LOADS of chocolate!! xx
Morning Funnyface
Good luck with your scan results next week. I had my 3 monthly CT Wednesday. Unfortunately here it can take upto 5 weeks to get results.
Hope EE is still working for you. Was tiur cataract caused by the different treatments you have been on over the years?
Have a good weekend.
Linda
Morning Ramade
I was wondering how you were getting on with your new chemo. Sorry you seem to be having a really bad time of it at the moment . Hopefully once you have a CT scan it is working really well and you don’t have to stay on it to long.
Have a good weekend.
Linda
Well been hospital early this morning ( shock to the system to be up so early ) got my E and E tablets now to start tomorrow …it’s 5 mgs dose of everolimus ( cant spell it or say it) which I think is the lower dose but still scared of side effects …but ignore me as a lot of you ladies are on big guns chemo and cope better than me !!
Hugs xx:relaxed:
Don’t worry Carolyn, i found the 5mg very doable.
So glad you’re back. the bone thread wasn’t the same without you.
love ramade xx
Oh remade. .that’s very kind of you to say …I’m sorry you are having the big guns stuff at the moment. .but hope you are coping ok with it all …think warmer spring weather will help our bones as all this cold and damp stuff isn’t good …why don’t NHS put a couple of months in Spain on our prescription to help us !!
Can’t remember if I posted this before but I bought a electric hot water bottle online ( amazon /eBay sell them) best £12.99 I have ever spent …it takes 10 minutes plugged in to heat up and stays warm for 6 hours …I love it for my hip pain and even for a headache if I get one etc. …also if u have hunt the vein and bruising …it’s lovely and soothing …
Hugs xxxx
Hiya Renee
Nice to hear from you …how are you feeling today ? Hope u are well enough to try a few easter eggs !!
Xxx
Hi everyone
Just adjusting to the news that my liver cancer has grown, so now abandoning capecitibene, after 9 months of a good quality of life. I do have pretty advanced liver mets and things were looking very bleak this time last year. 8 sessions of taxel saved my life and then I have been kept stable on capecitibene.
Now they are doing various tests to see if I’m suitable for Eribulin. If so, I will start on 10th April. Managed to get a date after next weekend when we have a big family celebration for my son and husband’s birthdays!
I remember seeing some posts from other ladies on eribulin but couldn’t find them today.
Is anyone else still on this and how are you finding it?
Thanks ladies
Phoebe xx
Phoebe, so sorry to hear that cape isn’t working for you any more. I hope you get on ok with whatever they offer you next. Big hugs.
And Easter love and hugs to everyone. I hope everyone’s taste buds are ok and you can enjoy the chocolate!??
Hi Phoebe
Sorry to hear cap has stopped working. There is a thread for eribulin under the title of Treatment and medical issues.
I have not been on the treatment you are to be on as I am still on cap at the moment.
Hope you can find that thread as there is loads of people are on it at the moment. Seems like it is a very torable chemo.
Linda
Hello ladies
Well happy easter to you all …I’m just cuddling the twins. .5 months old now and gorgeous. .too young for eggs this year so bought them a puppet instead …it’s a puppet as Brian connelly used to say!
Well now on my E And E regime …here’s hoping no side effects …devil pills someone called them.
Happy easter …forget diet and chomp as much choc as you can ladies xxx???
Red riding hood
You have made a mistake …I have TWO huge choc eggs on my lap right now !!
Yum …bigger knickers for me !
Hugs xxx
Happy Easter all and enjoy your chocs. It’s my birthday this week and my husband bought me a massive box of chocs which I keep resisting but have a feeling they will be gone by tomorrow ?
Happy Easter everyone, I demolished a large Malteser egg last night so have had to dig to the back of my draw for those bigger knickers today!!
Chocolate is my absolute favourite, can take or leave crisps and sweets but chocolate is my downfall.
Hope everyone is keeping well.
Hugs Janette xx
Happy Easter everyone! Janette, are you old enough to remember the days when they advertised maltesers as the chocolates with the less fattening centre?? So you’ve nothing to worry about. And anyway, chocolate eaten on Easter Sunday or any time in the following week contains no calories. That’s a well known scientific fact and you can’t prove me wrong!
But I admit I don’t have the appetite for chocs and desserts that I used to have, nor for fry-ups, lots of meat etc. I get cravings for green veg! Strange but true, and boy, does it make it easier to keep the weight off.
So chemo does have some benefits, girls…!