Thank you. The waiting is hard and it’s awful to feel that you are causing so much worry for all your family and friends. I hope your bone mets are under control. Best wishes
Thank you. I am panicking and spending hours on google. My husband is very gentle and patient but I think he’s getting frustrated by my endless googling of “survival rates for breast cancer in the bone.” I need to get a grip of my thoughts. This forum is great! So sensible and thoughtful
Thank you! I will try to avoid google! By the way does anyone know how to turn on email alerts?
Hi Anne
The waiting is incredibly hard for everyone and you’re reaction is perfectly normal. Probably good to try not to Google as it can be scary and misleading! I’m amazed at the vast array of treatments and the quality of life they give. It’s a continual process of adjustment but you will find ways to relax and get through. Sounds like you’ve a great hubby supporting you
Hugs Phoebe xx
Hi Anne, PLEASE don’t google unless you are going to use sites like Macmillan or cancer research!!
Most of the others are outdated and not realistic of now, plus everyone who has cancer is different, no two are the same it’s individual!
I know it’s a horrible stressful time but it does get easier especially once you’re treatment plan is in place.
Take care we are all holding your hand,
Hugs Janette xx
yes Carolyn please do your sun dance.
Anne welcome to our group. They seem to manage bone mets pretty well these days. Mine are extensive. i also have soft tissue spread which they are hitting hard with chemo. 2 down 4 to go. Bald and feeling pretty rough, hope it works
love and hugs
ramade xx
Hello Ramade
Sorry u are struggling with the chemo. .it can really knock u for six but hopefully it’s getting rid of the invaders that have gatecrashed your body.
I had primary chemo 2004 but was younger and fitter so managed it ok but I think I would struggle now more !
Well hear we go …doing the sun dance especially for you. … Fed up with rain …think I’m growing Webbed feet !!!
Hugs ???
Hi Ramade
So sorry to hear you are certainly suffering at the moment. Chemo is awful.
I have fingers crossed it works really well and gets rid of the intruders.
Linda
Hi everyone
Got some good news to share rang hospital today regarding CT scans everything stable. Mind it took 3 weeks to get though.
Linda
Linda
Congratulations on being a stable Mabel …good news and long may Cape do its magic to keep the little blighters under control!!
Hugs ??
Hi ladies, welcome Anne. When I was diagnosed with bone mets it was a long and frustrating wait as each scan was inconclusive bone mets/site if old injury so we went for CT scan, followed by bone scan, regular MRI and then a more powerful 1 hour MRI which confirmed spine, sacrum and public bone.
I’ve been on zometa, zoladex, letrazol and Ibrance fir 3 months and just had my first MRI to see if it’s working.
GOOD NEWS! ! Tumours are shrinking and zometa is doing its job helping to rebuild my vertebra which onc thought might need urgucal stabilisation.
Really pleased to hear the news. Do something really nice to celebrate
Linda, congrats on the stable Mabel results!!! Really pleased for you.
Hugs Janette xx
Linda and Riverside, good news both of you, well done! Enjoy the feeling!
I have scan results today. Am I nervous? Me??!
?
Riversidedawn, brilliant news (I’ve already congratulated you on the MRI thread)
Hugs Janette x
Afternoon ladies
Thank you all very much for the kind words. It means alot
Good luck Tatyana for your scans results today.
Linda
Thanks Linda! My results were inconclusive, the affected lymph nodes have grown but it’s possible that this happened after my previous scan but before I started on capecitabine,as there was a 3week gap. So we can’t say for sure whether the cape is working or not. But as I’m tolerating it very well, the onc wants to give it another one or two cycles and see what happens, and meanwhile they’ll keep a close eye on me. I’m happy with that, as naturally I’d been expecting the worst! (Does everyone do that?)
Best wishes to all.
I think we probably all expect the worst because being diagnosed is such a trauma. It must take time to regain hope and any sense of trust x
So pleased for you too Linda!,!!?? It was a long wait but at least they told you over the phone, my hospital won’t do that but they are quick to get answers (not a private patient but you are well monitored on a trial).
My CT scan is also stable! So I’m still on my trial for now, phew! Good wishes to everyone, it does feel like spring may be here?! x
Good news. Very pleased.